Best Of
Happy Halloween Y'All
Just thought I'd pop in and celebrate with everyone that today is my 8 yrs NED anniversary.
Wow, where did the time go?
This time 8 years ago I was where a lot of the newly diagnosed people are at the moment. A limbo land of fog and unknowing. In hospital after surgery with a million things running through my brain about what the next year was going to be like with recovery from surgery, chemo and radiation. I feel for you I really do. Still gives me the cold shivers thinking about it.
For those just starting on the rollercoaster, one breath at a time, and just keep going one foot in front of the other.
Eventually, you'll come fly out of the fog and into the sunshine,
You've got this, and you'll find a strength inside you never thought you had—although you probably won't realize it for a while.
You also learn that you have a very low tolerance for bullshit, peoples whinging and worrying about the small stuff.
Look for those moments of brilliance in the every day.
I've never really celebrated as such each year but this time I decided to have an 8yr/Halloween party. Plus I love a good costume party so why not.
I'm off to make ghosts and creepy stuff.
Oh and Witches brew cocktails!
Love to all. xoxox
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Prioritisation of prophylactic (preventive) mastectomy for people at high risk of breast cancer
Under current national and state/territory guidelines for elective surgeries delivered through the public health system, a prophylactic mastectomy is treated as a Category 3 surgery holding a 365-day waiting period.
BCNA is advocating for change because people at high risk of breast cancer shouldn’t have to wait this long to have preventative surgery. We have learned that people are receiving devastating breast cancer diagnoses while they are waiting.
We have developed a position statement calling for the re-categorisation of prophylactic mastectomies for high-risk people (which we have defined as those with BRCA1, BRCA2 or TP53 gene mutations) from Category 3 (365 days) to Category 2 (90 days). This position statement will be launched at Parliament House on 21 November 2024.
How can you get involved?
BCNA is looking for people who want to share their story. Your contribution may form part of our paper and/or inform our ongoing advocacy on this issue. We want to display the true impact that a long wait for a prophylactic mastectomy has on the lives of people who are at a significantly high risk of breast cancer.
What are we asking for?
A 30-minute interview via Teams or phone, or email response to some questions, based on your preference.
We are looking for people who have:
- Chosen to have a prophylactic mastectomy and are currently waiting to have their Category 3 surgery
- Received a breast cancer diagnosis whilst waiting for a prophylactic mastectomy via the public health system
- Waited beyond the 365 days recommended for Category 3 surgery
- Decided to have a prophylactic mastectomy via the private health system the because the surgery wait time through the public system was too long
If you are interested, please contact Julie-Anne Pho, Senior Manager, Policy and Advocacy by 5pm AEDT 30 November 2024.
By phone: (03) 9805 2509
Via email:jpho@bcna.org.au
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Also as mentioned above, you are welcome to contact our Helpline 1800 500 258 for a chat