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Katie46
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Joined 2 years ago
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Re: Letrozole and high cholesterol
Just an update re my collestrol. Having spoken to my GP and oncologist I started taking statins, even after being careful about what I ate my collestrol did not come down, it was 7. My oncologist told me I could be a marathon runner and it would barely budge, Letrozole is the culprit. So I started statins. So far, 8 weeks in, I don't notice any new side effects, so that's good.34Views3likes1CommentRe: What to expect - AC after Carbo/paclitaxel/pembro
I had AC first and then paclitaxel. My diagnosis was different IDC ER+ PR+ HER2- It's hard to predict how your body will react to AC everyone's experience seems to be a little different. I would say the side effects I had from AC were middle of the road, I didn't suffer from nausea, and my appetite was ok. I did get extreme fatigue around day 4 after treatment that lasted around 4 or 5 days, I was tired and weak and could barely walk across the room before wanting to sit down. But that did pass and I'd feel ok again before the next round. All said and done it was manageable. When I was feeling well enough I'd meet a few friends for coffee. I didn't work while I had my AC treatment, although I know that some people do. If it wasn't for the severe fatigue I think I could have. I had more niggly side effects on paclitaxel but I did have I more energy and I went back to work 2 days a week. However, after round 8 I got terrible mouth ulcers, and I had to stop for a week before resuming with a 30% reduction for the last 4 rounds. Through it all my bloods were good, and I kept my appetite and some taste buds. Listen to your body, don't overdo things, rest when you need to, and be kind to yourself. Wishing you all the best on your journey. Katie25Views1like1CommentLast Abemaciclib
Today is another milestone for me, I've finished my 2 year course of abemaciclib. It was a bumpy road, but I managed to complete the course, the last 6 months on 50mg x 2 daily. My main side effect was diarrhoea, it was manageable but persistent, and could be physically and mentally exhausting. It only stopped once I was on the 50mg dose. I had 2 dose reductions over the 2 years, so if you are struggling with side effects chat to your oncologist. I had a few short breaks along with the dose reductions. Reasesrch is showing the lower dose doesn't seem to reduce effectiveness and my oncologist said the objective was to keep me on the 2 year course if at all possible. All the best, Katie28Views1like0CommentsRe: Travel Insurance
It's very likely that my premium increase was mainly due to my surgical procedure in the last 6 months. I had to complete their medical declaration, and the questions for breast cancer were mainly to establish where I was in relation to my treatment. I finished all my 'active' treatment 2 years ago and I'm just taking hormone therapy now.85Views2likes1CommentRe: Travel Insurance
I'm using Covermore for an upcoming overseas trip. I declared my breast cancer treatment. I've also had a hysterectomy and ovary removal in the last 6 months, so I'm paying a few hundred extra on my premium (optional), I'm not sure if the breast cancer increased my premium as well, but they've covered me for it.111Views2likes4CommentsLetrozole and high cholesterol
I'm struggling to reduce my cholesterol, it's always been a bit high and it's now jumped up to 7, yikes! I'm almost certain this has been caused by the Letrozole as it's a known side effect. I have a pretty healthy diet and pretty much follow the healthy heart diet, and have for years. I spent 6 weeks being even more strict and managed to reduce it by 0.04 😆 I'm giving it another few months, and picking up my extercise, and will then seriously consider taking statins, if I haven't managed to reduce it more. I've lost 10kg since diagnosis 2 years ago. My good collestrol is still pretty good. I think I'm kidding myself that it will get better, my husband eats pretty much the same as me, but with more biscuits, and his is perfect 🙄 Has anyone else had a similar issue?131Views0likes3CommentsRe: Post-treatment fatigue - feeling discouraged and frustrated
Our bodies have been through a lot. While I felt much better after finishing chemo, it was about 8 or 9 months after that I realised the fatigue had improved at lot, and the dragging tiredness that I'd get all of a sudden had almost disappeared. Less nanna naps and flopping into bed after work. The ongoing fatigue was frustrating, but did improve with time. Wishing you all the best. Katie121Views1like1CommentRe: Xanthelasma and raised cholesterol on letrozole.
My oncologist told me I should get my cholesterol checked as the drugs I am on (including letrozole) can cause it to rise. My cholesterol was relatively high to begin with which is hereditary, and was 7.2 when I had it checked a few weeks ago up from 6.1. There isn't too much I can do with my diet to reduce it as I'm pretty much following the healthy heart diet anyway because of my history. I'm giving it a go for 6 weeks, but if it doesn't improve my GP has told me the next step is statins.84Views2likes0CommentsRe: Hormone Blockers
Hi tonichris I've been taking letrozole for almost 2 years. I did experience some aches and muscle tightness at first which gradually improved over time as my body adapted to the lack of oestrogen. I was pre menopausal, so I was also getting Goserelin injections to shut down my ovaries, so I had a very rapid loss of oestrogen. However it was never bad enough to stop me doing anything. I found stretching, walking and keeping active helped reduce the the muscle stiffness. I felt a bit creaky if I sat for too long, but once I was up and moving I felt fine. Unfortunately with all these drug no-one knows how their body will react, some people get no side effects at all. You have a bit of time before your trip to see how you go, and if you do happen to get severe side effects you can always speak to your oncologist about trying something different. All the best, Katie39Views1like0Comments
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