Best Of
Re: First mamogram ever
Thank you so mich everyone for your words of encouragement . And ideas and experiences . I really appreciate listening to all the good advice from a. Variety of survivors . Thank you all xxx
Pepsijax
1
Re: First mamogram ever
Hi @Pepsijax
Sorry you’ve joined us, but I’ve found this forum so welcoming and helpful in the last 5 weeks since I was diagnosed.
Something to consider down the track (I know it’s a lot to comprehend right now and the focus should be on your current treatment plan) but this also may help future readers...
Given my young age (27) at diagnosis I was automatically referred to a geneticist. I saw a geneticist last week and they asked about stomach cancer in my family. The fact that your husband died of that and you now have breast cancer may mean your children are higher risk for a mutation called TP53 (or TP54 I can’t 100% recall sorry)
Anyway, I don’t want this to scare you, but the geneticist said if there’s a family history of both stomach and breast cancer risk is higher for this mutation.
This is something you could discuss with your team in a few months when things have settled down and see if your children might qualify for testing.
Once again I hope this hasn’t scared you and I am not a geneticist! Just wanted to reiterate what I was told only last week.
Best of luck with waiting for the results to decide, ask lots of questions here or just post feelings !!!
Sorry you’ve joined us, but I’ve found this forum so welcoming and helpful in the last 5 weeks since I was diagnosed.
Something to consider down the track (I know it’s a lot to comprehend right now and the focus should be on your current treatment plan) but this also may help future readers...
Given my young age (27) at diagnosis I was automatically referred to a geneticist. I saw a geneticist last week and they asked about stomach cancer in my family. The fact that your husband died of that and you now have breast cancer may mean your children are higher risk for a mutation called TP53 (or TP54 I can’t 100% recall sorry)
Anyway, I don’t want this to scare you, but the geneticist said if there’s a family history of both stomach and breast cancer risk is higher for this mutation.
This is something you could discuss with your team in a few months when things have settled down and see if your children might qualify for testing.
Once again I hope this hasn’t scared you and I am not a geneticist! Just wanted to reiterate what I was told only last week.
Best of luck with waiting for the results to decide, ask lots of questions here or just post feelings !!!
Re: Nerlynx for Her2 + early stage breast cancer
Thanks very much poodlejules - I just found the link and read a the other ladies comments. I have probably missed the boat also as I finished herceptin Jan 2018 - maybe that is not a bad thing as from one of the ladies who did the trial - it sounded horrendous.
Re: Permission to speak: Giving older adults a voice in teaching health professionals how to communicate
It's a good decade! I enjoyed my 60s very much, even with bc! 70s are doing OK too.....
Afraser
2
Re: First mamogram ever
Welcome @Pepsijax . I'm sorry that you're here but pleased you've found us. I never had the genomic test done as I didn't fall into the "grey" area but I know a number of women here have had it and I'm sure you'll get some responses from them during the morning. While no-one wants chemo, if you find you need it, it is doable for the majority of us, and for some, it's not a big deal at all.
Sister
1