Best Of
Re: Adrenal mets - anyone?
Hi Abbydog,
Scan was inconclusive. The recommendation was to either do a MRI or wait and scan again in 3 months to see if there was any change. I mentioned it to my oncologist and he decided to send me for the MRI to put everyone's minds at ease. MRI determined it was an adenoma, sigh of relief! Turns out they saw it on my original PET scan and it hasn't changed in size.
Scan was inconclusive. The recommendation was to either do a MRI or wait and scan again in 3 months to see if there was any change. I mentioned it to my oncologist and he decided to send me for the MRI to put everyone's minds at ease. MRI determined it was an adenoma, sigh of relief! Turns out they saw it on my original PET scan and it hasn't changed in size.
colthul
3
Round 2 ??
Well, here we are again, and so bloody soon, who’d have thought it . In 2020 was diagnosed, had treatment, then started tamoxifen… well they can bash that crap up their jacksy… 2 years of side effects and cancers back anyways… all those joint aches, anxiety, insomnia , and let’s not forget the healthy eating, giving up smoking, making better lifestyle choices, less drinking… oh my goodness gracious.. missed 2 years of partying hard all for nothing, am sooooo not impressed. Jack Daniels distillery rang me, where are you they said, we miss your financial contribution to our alcohol sales… getting healthy after breast cancer I told them 🤣🤣, trying to do all I can so the bastard disease doesn’t come back… huh… maybe if I’d have stayed drinking I’d have killed those mongrel cancer cells instead cause in 2 years had 3 melanomas, 1 full face skin cancer pd treatment and now going in for the other boob. Fair diddly dinkum sometimes life is just not playing the game how I’d like… can I roll the dice again, can I play a different game .. 😝..
terror, fear, anger. … I didn’t buy a ticket to get on this roller coaster again, someone dismantle the bloody track …
terror, fear, anger. … I didn’t buy a ticket to get on this roller coaster again, someone dismantle the bloody track …
Chevvy
4
Re: Public / Private
I went public. Free pillow, bra, McGrath nurse, prosthetic, information galore, extra dressings, free bag for tube box thingy.
Re: Public / Private
I was private
My surgeon has 2 breast care nurses on staff and I was provided with a lot of literature, Berlei bra, bag of goodies including BCNA DVD
https://www.bcna.org.au/health-wellbeing/strengthen-your-recovery/
Zonta pillow, drain bag, bag to carry xrays and.......
Very fortunate to be given lots of information and follow-up by the Breast care nurse once home
My surgeon has 2 breast care nurses on staff and I was provided with a lot of literature, Berlei bra, bag of goodies including BCNA DVD
https://www.bcna.org.au/health-wellbeing/strengthen-your-recovery/
Zonta pillow, drain bag, bag to carry xrays and.......
Very fortunate to be given lots of information and follow-up by the Breast care nurse once home
Re: Public / Private
Was public here, saw a breast care nurse before my surgery who gave me a nice bag for X-rays which had a pillow for after surgery, drain bag which I didn’t need as had lumpectomy and a lavender sachet plus info including about Otis foundation. The bags and pillow are made by volunteers, I have a friend who sews them at Spotlight. Also a berlei bra. Not sure where I found the information about the Look Good Feel Better program, might have been when I had radiation. But I had to do a zoom session for that as it was during the beginning of lockdown. But doing that I got some free skincare and makeup. Lucky my surgery was in February 2020 just before lockdown.
Jwrenn
1
Re: Was it only a cyst??????
Yep.
My lump that wasn't a lump because it wasn't there when someone else was looking it for turned out to be a lobular tumour the size of my thumb.
This was only discovered after 4 years when I'd lost ten kilos without trying in 12 months and insisted on surgical exploration. I was made to feel like a hysterical nuisance but if I hadn't have chucked a right wobbler about it I'd be dead now.
I think the little bell that rings in our heads when we think something is wrong should not be ignored.
My lump that wasn't a lump because it wasn't there when someone else was looking it for turned out to be a lobular tumour the size of my thumb.
This was only discovered after 4 years when I'd lost ten kilos without trying in 12 months and insisted on surgical exploration. I was made to feel like a hysterical nuisance but if I hadn't have chucked a right wobbler about it I'd be dead now.
I think the little bell that rings in our heads when we think something is wrong should not be ignored.
Zoffiel
1
Re: Still living with mbc
Great to hear you are doing so well, @Angelo ... just keep on what you are doing, as it is working xxx
I think we've all been badly hit with Olivia's passing - as we all held her up as a beacon of hope - with many tears shed by many members .... as it has made us all feel that little bit fragile and vulnerable again.
Please contact the help line and chat with them for a bit of emotional support and back up xx
take care xx
I think we've all been badly hit with Olivia's passing - as we all held her up as a beacon of hope - with many tears shed by many members .... as it has made us all feel that little bit fragile and vulnerable again.
Please contact the help line and chat with them for a bit of emotional support and back up xx
take care xx
arpie
3
