GorgyS
Member
Joined 2 years ago
User Profile
User Widgets
Contributions
Re: Neuropathy- need some moral support
Hi Anna I can not share any good news, as I feel the same as you. Some days are good, some days are bad. What really helps me is taking off my shoes or house slippers and resting. It also helps me when I ignore it and keep myself preoccupied with some 'distractions' such as swimming or light housework or painting. However, for me it is important to rest between activities. I developed neuropathy after my treatment is finished (chemo and radiation). As I am on hormone blockers, Letrozole and additional medication to complement hormone blockers called Abemaciclib, I believe that all of this together contributed to the development neuropathy in my feet. I do not have neuropathy in my hands, otherwise I would be breaking anything I hold. I also developed lymphoedema so there are a few issues I have been dealing with. But to go through all of this, I have to keep positive. I always report this to my oncologist who wanted to put me on some medication for neuropathy that I refused as I am already taking so many meds. I hope there will be some more positive responses to your question.Re: Abemaciclib Verezenio side effects
I started abemaciclib in November 2024 at a dose of 150 mg once per day. I paused treatment for three months until my liver recovered. I am now back on 50 mg twice per day. My oncologist told me that letrozole, which I have been taking since August 2024, is the main medication for my treatment.Re: Abemaciclib Verezenio side effects
hi Katie46 They haven't ruled it out yet. In two weeks, I will have another blood test and will see. I will share it with the network when I find out. However, I feel so good since stopped the Abemaciclib that I am seriously thinking not to continue regardless of the blood test result.Re: Abemaciclib Verezenio side effects
Hi Shirley0411 I have been on Letrozole since August 2024 and Abemaciclib (150 mg) since November 2024. I thought I was managing the side effects well, but after having to stop Abemaciclib due to elevated liver enzymes, I’ve noticed a significant improvement. I have more energy and feel much better. It has been almost two months since I went on a break from Abemaciclib. I have another blood test coming up and will be seeing my oncologist in two weeks.Re: Surgeon or oncologist first?
My treatment path was a lumpectomy followed by further surgery to achieve clear margins. After the surgery, I saw a medical oncologist who prescribed chemotherapy, and a radiation oncologist for radiation therapy. The breast surgeon was the one who decided whether further surgery was needed. And you're right—they work together and consult with each other as a multidisciplinary team. I was well guided through the whole treatment and didn’t worry much because I trusted the medical team and their expertise. They had experience in treating breast cancer, but for me, everything was so new and unknown. Take careRe: To port or not to port...
I had a PICC line for 6 months. I really did not have a choice as my veins were so weak, and the port was not recommended to me. I did not have any problem with a PICC line. If you opt for the PICC line, make sure that they take you blood test from it as well. It is much easier, and you need to take advantage of it and save your veins.
Groups
Carers corner
Whether you're caring for a partner, parent, child, or family member, this group offers a safe and understanding place to connect with others in similar roles. Share your experiences, talk through the personal challenges of being a carer, and find support from a community that truly understands the emotional and practical realities of caregiving for a loved one with breast cancer.Work and breast cancer
PUBLIC GROUP - This is a space to connect around the challenges and questions that come with managing work and breast cancer. Whether you're navigating time off, returning to work, dealing with workplace conversations, or exploring your rights and options, you're welcome here. This group is open to the public (not just members of our online network) to help broaden access to important information, practical advice, and peer support.
