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Pharmaceutical Benefits Advisory Committee (PBAC) - Enhertu for HER2-low Metastatic Breast Cancer
The Pharmaceutical Benefits Advisory Committee (PBAC) has recommended the drug Enhertu (trastuzumab deruxtecan) for people with HER2-low metastatic breast cancer (MBC) to be subsidised on the Pharmaceutical Benefits Scheme (PBS). We now call on the Australian Government to work with the pharmaceutical company to list…
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Join us next week in person or online! Free Information Forums in Devonport and Hobart
Next week we will be in Tasmania as part of our free national Information Forum series. We are bringing leading experts to events in Devonport on Tuesday 30 April and Hobart on Thursday 2 May to talk on a range of breast cancer topics. Our events are for anyone who has recently been diagnosed with breast cancer or who is…
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Long term Herceptin
Hi was just wondering how long people have been on Herceptin and how they are doing? I have celebrated 14 years this January and will have my 238th infusion next week. I have had a mastectomy and am waiting to have the other one removed as I hate the lopsided feel and having all my clothes moving to the left very annoying…
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BCNA Leads First National Roadmap to Collecting Metastatic Breast Cancer Data
A roadmap to finally count the number of people diagnosed with incurable and life limiting metastatic breast cancer (MBC) is a step closer thanks to the $1.5 million announced over the weekend by Prime Minister Anthony Albanese to fund a cancer data alliance. Almost two years ago a group of Breast Cancer Network Australia…
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Free BCNA Information Forum in Murray Bridge, SA
We are heading to Murray Bridge, South Australia as part of our national Information Forum series. We are bringing leading experts to the local community to provide insights on a range of breast cancer topics. We extend an invitation to anyone located in or around Murray Bridge to join us on Wednesday 6 March for this…
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goodbye xeloda hullo to navelbine
Hi to everyone, just thought I would drop by and say that after 34 months of xeloda its time for a change, I had scans last week and went back to my oncologist yesterday, he had been discussing with me the gradual change in my markers and now with one of my tumours growing slightly its time to make the decision to change…
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Time to Count People with Metastatic Breast Cancer - A Way Forward
We are proud to release Time to Count People with Metastatic Breast Cancer – A Way Forward – a report and roadmap on how Australia can collect and report cancer stage and recurrence data. We need this data to know how many people are living with treatable but not curable metastatic breast cancer. Without this visibility,…
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Season 2: Podcast Series "What You Don’t Know Until You Do, with Dr Charlotte Tottman"
Charlotte is back with an 'unlimited' season! Season 2 of our popular Upfront About Breast Cancer podcast What You Don’t Know
Until You Do with Clinical Psychologist Dr Charlotte Tottman is available now (You have direct access via the bottom of the Online Network homepage) With over 58,000 listens, Season 1 proved to be a…
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New to MBC. How to stay positive when every Onc meeting seems to bring less certainty?
Hi, I'm new to online forums, so here goes. I was diagnosed stage 2 grade 2 BC in 2014 aged 36. Find out 27/12/23 metastasised to my bones at age 46. Married, 3 kids (9,11,12). It's not hormone receptive anymore, so treatment is looking like chemo, after hip replacement and radiation. I enjoy a laugh and some practical…
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An In Depth article on BC Recurrence - what to look for - well worth a read
The article (below) is a 'must read' .... I've attached a PDF of it as well, so you can download it too. http://www.melbournebreastcancersurgery.com.au/breast-cancer-recurrence.html?fbclid=IwAR3HS79ElQjVbGpDuHUU538J-cm9RfZZ1qZ8vO-3Xc4u87SWilz--wGvxa0 There is a specific link to Invasive Lobular Breast Cancer, within the…
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New metastatic diagnosis
I’m new to this group. I’m 43 years old and today I was told I have ER, PR negative, HER2 positive metastatic breast cancer. I have mets in lymph nodes, bones and liver. No symptoms- only had a mammogram as my Mum was diagnosed with breast cancer 2 months ago. I’m married with an 8 year old son and 11 year old daughter. It…
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Exciting research showing possible 'on/off' switch for Mets
Exciting research being done on an 'on/off' switch for BC Mets - let's hope this one makes it thru the trial stages. Given this study has produced results from a mouse model, the timeline for introduction at the clinical level for *successfully* approved drugs and testing is closer to 12-15 years. It should be noted that…
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Vale Peta Murphy MP
It is with much sadness that Breast Cancer Network Australia
acknowledges the death of Peta Murphy MP. In Peta’s maiden speech to Parliament in 2019, after she was
elected to represent the federal seat of Dunkley, Victoria, Peta told our
country that she had been diagnosed with metastatic breast cancer. In this
speech she…