Forum Discussion

cranky_granny's avatar
cranky_granny
Member
6 years ago

The answer wasn’t clear

Well I’m off to see Oncologist on Thursday 
am i silly to ask. 
The answer to the proposed radiation was delivered to me by by the nurse coordinator that I wouldn’t be having radiation and a letter would be sent to my GP. None arrived at my visit with him this week so
the question 
is the sclerotic bone lesion in the  Sacrum metastasis 
or is it the result of the coccyx pain which is now easing with the anti inflammatory tablet. 
and the smaller lesion on the chest bone.
And
How long will i be on  tamoxifen do the side effects get less. Though i am getting less joint pain everywhere compared to the anastrol   ,  but the hot sweaty flushes the Headaches and disturbed sleep and always feeling like i want to punch someone out  Let alone the sudden feeling of dread that something is wrong. Feeling like I'm carrying lead weight all over. The tinnitus has trebled and the vision gets blurry 
there you go another load off. 
Now all i have to do is last till Thursday 
writing this all down Might help me remember. 
Then again my brain is mushy half the time 
I know others are worse off but sometimes it’s lonely and the why bother creeps in 

emotions
side-effects
  • Beryl_C_'s avatar
    Beryl_C_
    Member
    6 years ago
    cranky_granny strongly suggest you take a friend or family member to your next appointment - rehearse any questions you may have and write them down; have your 'assistant' take notes. Stress impairs our thinking and memory, ie, our brain is 'mushy' which is hard for others to understand. Keep in touch with others on this forum - its a very safe place to tell it how it is for you. There are no rights or wrongs just you finding your way through the maze of side effects, appointments and treatments and you will never be alone in those awful times of not knowing. I think you are a bit feisty which will carry you through this challenging (aka 'bloody awful') time. Keep in touch!
  • Afraser's avatar
    Afraser
    Member
    6 years ago
    Sorry to hear about the problems you are having @cranky_granny, it’s very aggravating. I confess I get ‘difficult’ when specialists provide my oncologist or GP with information but don’t tell me too! I may be having treatment but I am also an adult (paying adult frequently!). Best wishes and I hope you get answers very soon - and some relief.