After 13 years and 2 diagnoses today the biggest celebration yet...

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  • June1952
    June1952 Member Posts: 1,897
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    Thank you for a lovely post @melclarity.  Congratulations on being discharged by your onc.  You have been so much help and are definitely an inspiration to many on this forum for many years.
    Perhaps add a link to your book for newbies who may not have read about it ?
  • melclarity
    melclarity Member Posts: 3,524
    edited May 23
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    @June1952 thank you so much, it's still a very surreal feeling today. Oh I think we all try and help and do our part through the chaos of BC. My book can be found on Amazon  https://amzn.asia/d/i1vI8JN

    This is a Poetry compilation of the delicacies of loss, love and self. It explores how hope, optimism and resilience are key elements in moving forward into a place of peace and self-discovery. It reaches into the vulnerability and honesty of emotion that flows from the heart to the written words.

    Thankyou for the suggestion. I know for me the years have helped me heal through writing and really get into the depths of my emotions and feelings. It's this path through BC that I started to write again. x


  • GinGin
    GinGin Member Posts: 146
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    Congrats @melclarity! I am so happy for you. 🤗
    thank you for taking time to share your progress. It gives me a lot of happiness when reading such good news.
  • melclarity
    melclarity Member Posts: 3,524
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    @GinGin thanks so much for your wishes. What I've learnt is even now the future is not certain, but to focus on the NOW. It was so easy to lose hope along the way for me, I dreamt I would get here, but of course you just never know. I hope you are doing well? x
  • melclarity
    melclarity Member Posts: 3,524
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    @Cath62 Thanks so much :) xx
  • melclarity
    melclarity Member Posts: 3,524
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    @Annie C thank you for your beautiful comments. I'm so glad I helped in some small way and that I wrote in a way that very personable. It's just such a tough path and not alot of positivity through it, so to help even 1 person feel seen and heard matters to me. Thank you for the Kimberley hug :) xx I hope you are doing well?
  • Zoffiel
    Zoffiel Member Posts: 3,374
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    Good on you Mel. I rarely visit here anymore so it was nice to log in and see something positive. MXX
  • melclarity
    melclarity Member Posts: 3,524
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    @Zoffiel wow been a long time :) yes I am not too active these days either. Thank you! and yes I think it's equally important to share the positivity and good news when it comes. xx
  • lrb_03
    lrb_03 Member Posts: 1,269
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    Another one not very active these days, though I often read whilst not logged in. Great news for you @melclarity. It really is  always good to see the stories of those further down the track. My oncologist discharged my last year after active treatment and 7 years on AI's. In his view, for me, the risks of continuing outweighed the relatively small potential benefits of continuing. I'm now 9 years out from diagnosis.
    @Zoffiel, good to see your name. How are you going?
  • June1952
    June1952 Member Posts: 1,897
    edited May 27
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    @lrb_03 - lovely to see your name appear.  Have thought of you over time and wondered how you are.  Gosh, 9 years - good news.  Hope you remain healthy and have a happy life.  ❤️
  • melclarity
    melclarity Member Posts: 3,524
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    @lrb_03 hey there! That's great news to hear you 9 years from diagnosis.  I wish you a long and happy healthy future. 

    I gave up AIs at 7yrs bc I had been on them 11 years including my previous diagnosis. I've been on prolia injections 6 monthly for the past 8 years since chemo. I'm 1yr off prolia and latest dexa showed stability so that's why he discharged me :) it is a new normal as you'd agree and survivorship is not easy by any stretch. Good to hear from you. Xx
  • June1952
    June1952 Member Posts: 1,897
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    Hi @melclarity, I am interested that you are no longer on Prolia.  We are led to believe that once on it one can never come off it as the bones go back to what they were at the beginning.  You give us hope !
  • melclarity
    melclarity Member Posts: 3,524
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    @June1952 Hi there, so you can't stay on Prolia long term eventually you do have to come off it. Yes they say you go backwards, having said that according to my Dexa it did go a little backwards however I still was way in front of where I was when I began if that makes sense. So the Oncologist was really happy with the result. I don't need any further treatment for osteoporosis. It really was the best thing I could've done post Chemo and really I felt a little off sometimes but overall nothing at all. I'd recommend it to anyone to be honest. xx 
  • June1952
    June1952 Member Posts: 1,897
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    Thankyou @melclarity, it is interesting given that the specialists say one can never come off it.  I was told it was for life, the same with all others I know who are on it.  Keep well.  You are an inspiration to many on here.