Home Metastatic breast cancer



Are you a member of the private Living With Metastatic Cancer group?

2»

Comments

  • BenmamyBenmamy Member Posts: 29
    @Riki_BCNA @RachelleRachelle
    Hi.  After I posted this comment I became a member so I thought somebody from BCNA helped me.  Sorry to let you know late.
    but it did took a while.
  • Riki_BCNARiki_BCNA Staff Posts: 323
    Hi Everyone access to the MBC private group should be fine now. it has been checked. Please let us know if you have any further problems.
  • Georgie17Georgie17 Perth Member Posts: 7
    Hello, I have requested to join this group but not sure that my request was accepted.  
  • Riki_BCNARiki_BCNA Staff Posts: 323
    Hello @Georgie17 and welcome. I haven't seen your request in the group but will send you an invite.
  • SsbabelSsbabel Member Posts: 3
    @Riki_BCNA I'd like an invitation too as I also keep going around in circles.
  • arpiearpie Mid North Coast, NSWMember Posts: 6,225
    Hi @Ssbabel ..., welcome to BCNA - So sorry to see you here, but you are in the right spot for support, tips and even laughs! 

    Feel free to put up a post outlining your story so far in Newly Diagnosed .... what type of BC you were diagnosed with and what treatment you’ve had .... then chat on the Mets group about more private stuff. Xx

    Personally I found that it mucked with my BRAIN more than anything else!  And sometimes that is very hard to control, as it has a mind of its own! Keeping BUSY doing things is the secret .... get back into your hobbies or take up a new one - even more so now with Covid as we can’t always get together with buddies as readily as before.  

    Try & keep your sense of humour 'up there' - we have a really good 'funnies page' (called Friday Funnies, but we add them every day!!)  Just click on the link to add pics and posts ... 
    https://onlinenetwork.bcna.org.au/discussion/19116/friday-funnies#latest
    If you are into arts & crafts, we have a 'Creative Corner' 
    https://onlinenetwork.bcna.org.au/discussion/14979/creative-corner#latest
     and if into your garden, a Gardening post as well!! 
    https://onlinenetwork.bcna.org.au/discussion/comment/186078#Comment_186078

    For your checkups, here are some ‘tick sheets’ to help you put your questions together for your medical team.  (Make sure you click on the documents at the BOTTOM, as the others are only sample pages.)
    https://onlinenetwork.bcna.org.au/discussion/21973/questions-to-ask-post-surgery-of-yourself-to-your-specialists-tick-sheets-self-assessment/p1

    Shoot me a message if I can help you in any way.  We have a great bunch of people here who ‘get it’ .... so you can raise any issue, ask any question and get an honest answer from someone who’s been thru it xx

    take care
  • Riki_BCNARiki_BCNA Staff Posts: 323
    Hi @Ssbabel I have sent you an invitation for the MBC group. Kind regards
  • Mags44Mags44 Member Posts: 41
    edited June 2021
    Hello, I have been diagnosed just over a month ago with secondary breast cancer. Bone Mets. 

    I am interested in hearing if other women have had similar side effects to the medication I have been put on (Verzenio and Letrozole). I was managing ok (just minor expected side effects) but now starting to feel dizziness in morning and chest tightening / discomfort. 

    Can I please join the private group.

    Thank you,



  • KattykitKattykit Member Posts: 252
    @Jenny_BCNA could you please send  @Maggs54 the link to join the living with mets group, thanks @kittykat.
  • Jenny_BCNAJenny_BCNA Administrator, Staff, Member, Moderator Posts: 98
    Hi @Maggs54 I've just sent you a request to join the Living with metastatic breast cancer private group.
  • Richo2Richo2 Member Posts: 4
    Hi could I please join the MBc group?
  • arpiearpie Mid North Coast, NSWMember Posts: 6,225
    edited August 2021
    Welcome to the club that no-one wants to join, @Richo2 - here, you can ask any questions & those who've 'been there, done that' will do their best to answer them xx   You can ask more private & personal questions & get support in the private Mets Group - I shall tag @Riki_BCNA & @Jenny_BCNA - to join you up xx

    You may also like to check out this site for Mets Support too
    https://counterpart.org.au/support-services/metastatic-cancer/

    If you are up to it, feel free to put up your 'story' here, so those who've had similar treatments/diagnosis can jump on & help.
    https://onlinenetwork.bcna.org.au/categories/newly-diagnosed

    Check out this post for general 'forum stuff' ...  and also put your 'city/town' on your profile, as locals may know of specific info that may be of assistance to you xx
    https://onlinenetwork.bcna.org.au/discussion/comment/201679

    Take care, all the best xx

  • Jenny_BCNAJenny_BCNA Administrator, Staff, Member, Moderator Posts: 98
    Hi @Richo2

    I've just accepted your request to join the private Metastatic group. I've also sent a private message with some information.

    Kind regards
    Jenny
  • Mary8Mary8 Member Posts: 3
    Hi I recently diagnosed with metastatic breast cancer,  I will like to join living with metastatic breast cancer group please. Thanks 
Sign In or Register to comment.