Night Howls
Comments
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Well, I hope you're all back to sleep. I, however, am up at my usual 4am.0
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@eli86 that bell that rings in our heads signalling danger you can't quantify is, I think, the last tiny bit of our primitive selves. We should listen to it more often. I'm very glad you did. Big choices, and a huge shock with the results --my 'healthy' boob was corrupt too--but you've given yourself the best chance of survival that you can. Onward from here. Mxx0
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Chose the couch and eventually managed another hour or so of sleep. @Vangirl I’m makng my way through the whole outlander series. I’m half way through book 7
@Kiwi Angel - I’m not keen on adding melatonin to the mix during chemo but definitely happy to try it later if I’m still having sleep issues. Many nights I actually sleep really well and then I have a burst of wide awake at 3am episodes. Never know when that’s going to be.
Have a great day xxx0 -
@Eli86 I know exactly how you feel! I didn’t have to plead the case for a double mastectomy because (by pure chance and an incredible radiographer) they found lobular cancer in both my breasts but while on my left side, which looked distorted and with an inverted nipple, everyone expected there to be extensive cancer, the real shock was on the right.
With only one tiny spot showing up on ultrasound - and so difficult to find that they almost didn’t bother biopsying it - the pathology after my surgery revealed 16.8 cms of tumour in my right breast - nope, not a typo!
All cancers are a bitch and lobular particularly so because it creeps silently and undetected through a large area, like spiderwebs.
Good for you for insisting on what felt right. Instinct is everything, and it’s brought you the best result. Wishing you all the best with everything.
Xxxx0 -
I’ve finally hit the sweet spot between cycles where I slept for 6 hours last night oh the joy! Sadly won’t last but.....
also saw the onc quickly on Monday (was actually seeing the psych) and said the temazapan did nothing. Have a script for something else so we will see how that one goes when the no sleep kicks back in1 -
I've been taking benzos for sleep for ages (lately it doesn't always work), but I might try Melatonin. I have a vague memory that I tried it once and wasn't happy with it, but I should try again. For anyone looking for an engrossing book to read in the wee hours, I've just finished one of the best books I've read in years: "The Nightingale won't let you sleep", by Steven Heighton. What impressed me most was that, for a story embedded in a war situation (Cyprus - Greeks/Turks) - it is overwhelmingly sensitive. Available in public libraries.
I kept being woken during the night by pains in my hands, shoulders, feet and legs - guessing it's the Letrozole.
But some joy last night - for the first time since before surgery and chemo, I went out to the monthly meeting of a group I belong to. I'm the president and I've been chairing meetings by phone/loudspeaker, to avoid the risk of infection, because there was always someone in the group who warned me that they had the flu. It was wonderful to be there in person among my "family" of like-minded thinkers. I hope to be able to continue that during radiation.5 -
@Eli86 I'm so glad you followed your gut instinct. I had two lots of aggro DCIS in one of my boobs that were invisible to mammograms and ultrasounds. Only discovered in pathology after the removal of the tumour, and then the double mastectomy. Needless to say, I'm relieved I listened to my gut as well. The aftermath, the adjustment, can be tough, but what a load off the mental shoulders. Big hug, K xox0
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@Sarnicad I have used Temazepam from time to time through my cancer experience and have found it very useful for putting me to sleep. I still wake up but it enables me to get back to sleep easier as well. Two are better than one and definitely give me more sleep. My GP wrote me the prescription & gave me permission to take two if needed.1
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I've tried melatonin with sort of okay results. I'm intending to try again when sleep schedules become more important.0
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My melatonin experiment has been going for a month. The standard 2mg. It's definitely helping. It's probably knocked off one of the wake ups, and it's made it easier to get back to sleep with the other wake ups. It doesn't always work but it definitely helps me.0
