Why not join the Living with metastatic private group? Access group via the link here.
Will I see my girls grow up
Comments
-
Hi casgirl123 sorry that you had had this appear.
Its early days yet til the treatment is finetuned
I have scattered mets to lungs still ok ..my treatment is for hormone positive bc
Until you have nodule/ tumour biopsed its a waiting game
Keep in contact
Bright in hope1 -
My thoughts are with you casgirl1230
-
The user and all related content has been deleted.0
-
Feeling for you.
My experience has been that it is possible to have good quantity and quality of life post MBC diagnosis. When I was diagnosed, at 36yo, I had mets to 75% of my liver, many bones including my spine, pelvis & femur, a spot in my lung and a lesion in my brain. Initial prognosis was 2 weeks - 2 months. That was 6 years and 2 months ago, so maintain your hope! Best of luck with your appointments and make sure to surround yourself with a great medical team who understand your goal is to see your children grow up. Thinking of you.13 -
Hi there thanks to all on here who have given us all reassurance about living with MBC. I think it must be so hard to know if we even have it in the first place as I’m assuming you don’t always have symptoms. I worry that my osteo symptoms are nasties sometimes and it’s not recommended we get scanned all the time either so thanks for posting and letting us know it is something we can all live with. Margie x
5 -
Thanks for sharing, feeling a lot more optomistic about things now. It is so hard not to let thoughts run wild sometimes.1
-
Thanks for for all your comments and private messages. I saw my oncologist yesterday. I'm having a PET scan Thursday to see what it definitely is. My oncologist and the radiologist can't see what the other doctors in Queensland were talking about. They can't see these 8 - 10 tumours, but maybe but the resolution hasn't copied across onto the disc. They see one enlarged lymph node that yes probably is cancer, but at the same time it can sometimes be indicative of damage from my heart failure which I suffered in August (chemo induced). A glimmer of hope. Will just have to wait and see. Results on Friday.3
-
So nice that many ladies can share their experiences this is why we come here. Xx we all wish you the best1
-
Oh @casgirl123 we are all holding our breath with you hoping it is a big stuff up and at the very least things are looking much more positive. Please let us know how things go. Kath x.0
-
Hey there @casgirl123 please keep us posted how you go. I forgot to mention I had a heart scan post chemo which showed some damage and my gp wasn’t happy with the report so he sent me to another radiologist and it came back normal and so did the repeat scan. I also had an initial ct scan after diagnosis and before chemo that showed a ? Lesion on my lung and again the oncol wasn’t happy with the that one either so he sent me for another and it was comfirmed as scar tissue. It was also repeated post chemo and it was the same. I have everything crossed for you lovely. Biggest hug. Margie xxx2
-
Oh @casgirl123 I have everything crossed for you xxx0
-
Sounds more hopeful for you @casgirl123. Keeping you in thoughts and prayers.. hugs0
-
Fingers crossed. No point in saying don't be anxious but getting the information straight is a pretty critical first step. Best wishes.0
-
Does anyone have any updates for this lovely lady ?.xx0
-
Sadly our story has another hiccup. There is cancer in two of the lymph nodes in my chest wall. So as my oncologist says "I have incurable cancer". But it is once again found early and before I have any symptoms. I will start on a trial drug that is having good results called Ribocicib. We just have to hope all these modern treatments will prolong my life and that in the meantime they develop a cure. And as a funny addendum to all this drama, the PET scan revealed I do have two broken ribs. Thanks for all your lovely words.1
