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brightspace

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Joined 9 years ago

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Re: Complete Metabolic Response De Novo TNBC
Woo hoo such a great post Awesome response to treatment Always bright in hope
12 days ago Place Living with metastatic breast cancer
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Re: How Do you decide what treatment when there are so many options?
Hello CaptnK Big huggs my dear...It is always a challenge to get your head around the multitude of decisions Perhaps mentioning the diagnosis and treatment options you were given will allow others to give their input Yes we are given options and in recent times treatment options have become more tailored to include pretreatment therapies before surgery and reconstruction. And these differ due to the diagnosis we are given. With DCIS For me I was an older chic of 56 ..it was the down time tthat could affect my uni studies an travels with possible reconstruction chemo rads made me decide to have a single mastectomy . All the best Bright in hope
7 months ago Place Early breast cancer
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Re: Stage 4 breast cancer
Hello Gerry New year greetings takes some time to do those special small and big things you enjoy My mantra.... start the treatment... monitor the side effect which are often mild...ask for a reduction in dose if affecting daily activities. When side effects have settled down.....Book the holiday or weekend away a few treatments that were daunting but I have done so knowing that there were many treatments available. Everyone differs in how therapies affect them. We are lucky to have the best treatments a and care available Now lucky to be 11+ years. Forget the 5 % It is only an outdated number All the best Bright in hope
7 months ago Place Metastatic breast cancer
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Re: Settling of the scars from my double mastectomy
Hi Ellie Iwas lucky live close to a city breast clinic and to have instant relief as I saw my surgeon twice in a few weeks after surgery to have fluid build up removed from chest wall and underarm Always check with care team and follow up discomfort All best Bright
9 months ago Place General
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Re: UTIs ... Do you get them often? What do you use to 'fix it'?
Treated with antibiotics Then took Cranberry ttablets while on Leterzole Uti resulted from hormone reduction causing vaginal changes
1 year ago Place Living with breast cancer
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Re: Not sure where to turn for advice
Hi my dear many here have similar diagnosis... Old chic 55 at DCIS diagnosis15 years later many bc miles later For me it was to just have mastectomy no recon One step at a time was my mantra ...on with swimming n hiking n uni degree Post surgery no pain and minimal scar for me...need for rads or chemo Everyone is different and there is a lot to take in Pathology after surgery will more accurately determine the next step for your therapy decisions We are so lucky to have the most amazing health system options Great health profesional offered me the options available and I made the decision with family support All the best Bright in hope
1 year ago Place General
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Re: DCIS
Hi Melzzs Lots of info to understand... Generally DCIS is diagnosed with ER hormone positive or negative/ and Progesterone positive /negative receptors which means that the treatment is usually to reduce the hormone positive by giving tablet Therapy such as Leterzolefor 5+ years Generally Dcis does not have a Her2 status and is said to be stage 0 ..unlike like other breast cancers stages 1 to 4 More details need to be given by treatment specialist for your different result as its is Er negative so nxt appointment the therapy treatment will be discussed. Good luck with follow up
1 year ago Place General
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Re: Hello
Hi GraceyS Followup protocols post treatment are usually checkup 6 mths/ yearly for Five years Important to touch base with GP/ surgeon for followup scans Usual for breast screen ultrasound checkup mine for remaining breast was organised by breast surgeon as I was Private patient We are our own advocates in this journey important to seek advice for followup check all the best Bright
2 years ago Place General discussions
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Re: UTIs ... Do you get them often? What do you use to 'fix it'?
Recommend cranberry capsules had kidney and uti infection while on leterzole ...none since four year ago
2 years ago Place Living with breast cancer
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Re: MBC found 1st May 2023 and as of 25/12/2023 .... no pet scan.
Hi again Kiwigal hope you will stay Only here to offer guidance and assistance if required Trying to stay postive is very difficult and sometimes some posters are confused as to the treatment that is needed for them. As you mentioned. Denosumbab...this is a bone strengthener So have you started another treatment such as AI...anti esterogen hormone these are usually offered first Kisquali is usually offered in combination with another AI called Faslodex..I have been on both All the best Bright
2 years ago Place Living with metastatic breast cancer
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Living with metastatic breast cancer
This is group for people living with metastatic breast cancer (also called stage 4, secondary or advanced breast cancer). This is a safe, understanding space to connect with others who truly get what it’s like to hear the words that you are living with metastatic breast cancer. Together, we offer each other strength, compassion, hope encouragement and a place to talk openly—whatever you're facing.
Let's talk: vaginas, menopause & me
PRIVATE GROUP. This group is a safe, supportive space to talk about sexual health and emotional wellbeing during and after breast cancer. We discuss topics like menopause, vaginal dryness, pain during sex, UTIs, and changes in libido, and share ideas and products that may help. Whether you're navigating intimacy with a partner or reconnecting with yourself, you're not alone here. This is a place for open, respectful conversations and shared understanding.

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Living with metastatic breast cancer

Let's talk: vaginas, menopause & me