Melbourne ONLY: Opportunity to participate in a study designed to improve your health and wellbeing

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Comments

  • Cate64Cate64 Member Posts: 446
    @Rosie_BCNA - open to those with metastatic disease yes but that is if you completed treatment within the last 12 months. Metastatic disease the treatment never ends... Can you please clarify this section & if those of us with MBC who will forever be on treatment are able to participate?? Thanks :)

  • Rosie_BCNARosie_BCNA Administrator, Staff, Member, Moderator Posts: 202
    Thanks @Cate64 - the EX-MED Cancer program information does say the model is designed for people throughout all phases of treatment and that people can be receiving hormone therapy. I take your point about continual treatment for people with metatstatic disease but as we know, there are many types of treatment and people can be well and active while on treatment. You are the perfect example. I have contacted EX-MED to clarify this and will post as soon as I have this information. 

  • angg66angg66 Melbourne VicMember Posts: 188
    @Rosie_BCNA and @Cate64 - I spoke to the EX-MED people yesterday. People with mets (like me) do not currently qualify if they are doing treatments like chemo, radiotherapy etc. Only people with mets taking hormone tabs qualify for this study. Most people with metastatic breast cancer are continually undergoing treatment. So we dont seem to qualify for anything!

    Ange 
  • Hello5678Hello5678 Melbourne Member Posts: 15
    @Afraser
    who else do you remember who are Melb based members ? 

    Hi @SoldierCrab I’m in Melbourne and interested! Will contact them. Thanks!

  • Cate64Cate64 Member Posts: 446
    @angg66 & doesn't it just friggen suck??? we seem to be excluded from everything.
  • Rosie_BCNARosie_BCNA Administrator, Staff, Member, Moderator Posts: 202
     Hi @Cate64 ;@angg66, @Hello5678 and any other Melbourne based members with metastatic disease interested in exercise programs. I have spoken to Eva at EX-MED and she is keen for you to contact to the EX-MED Cancer Hub on (03) 9230 8728 to discuss your personal situation.

    Due to funding limits, the study is able to include people having hormone therapy, Herceptin and PARP inhibitors but not chemotherapy.

    EX-MED is committed to extend the service to everyone regardless of stage of cancer, type of treatment and level of activity and they are working to secure funding for this. In the meantime they can link you with an exercise physiologist who is skilled at working with people with cancer. Exercise physiologists can be accessed through the Chronic Disease Management Plan via your GP.  For more information on exercise programs available in each state, link to the BCNA website Exercise programs

  • melclaritymelclarity Member Posts: 3,382
    I just wanted to say I don't have Metastatic Breast Cancer, however, I accessed through my income protection an Exercise Physiologist, I worked with her for a year, it was AMAZING! alot of them can work via skype too, so please keep this in mind, regardless of your diagnosis everyone should be able to access the same things! Hugs Melinda!

    @Cate64 how are you!!!! been so long I haven't seen you on :) hugs Melinda
  • Hello5678Hello5678 Melbourne Member Posts: 15
    Thanks @Rosie_BCNA but I don’t have Metastic Breast Cancer. I’ve had a mastectomy and just started Chemotherapy. Expecting to have Radiation Therapy and then Hormone Therapy. Am I eligible? 
  • Rosie_BCNARosie_BCNA Administrator, Staff, Member, Moderator Posts: 202
    @Hello5678 this particular program is targeting people who have completed treatment in the last 12 months but ask at your treatment centre about cancer exercise programs. Have a look at the  information on the BCNA website about other programs - the link is in the above post. 
    Rosie 
  • [Deleted User][Deleted User] Posts: 0
    edited January 2018
    The user and all related content has been deleted.
  • Cate64Cate64 Member Posts: 446
    @angg66 & doesn't it just friggen suck??? we seem to be excluded from everything.
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