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Hi
Hi all, I'm not meaning to exclude anyone as having metastatic disease is not great, but I'm just wanting to know if there are other young women out there with metastatic breast cancer? I was diagnosed with EBC at 25 and then ABC at 28. I'm looking to see if there are any other young women out there that are in the same…
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So Confused!!!
My tumor markers has risen after only 3 months on new treatment. Started @ 219 went down to 151 the 6 weeks later back @ 235. Recent bone scans show some bone lesions undetectable, some unchanged, some more obvious, not bigger as i understand it just more obvious, no new lesions. CT scan was fine. Onc said its not disease…
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PIKNIC clinical trial
I was diagnosed with metastatic breast cancer in 2016. I've tried a few different chemos in that time. The latest was Eribulin. All the scans show the cancer is stable but my tumour markers have been rising. I've tolerated the chemo well up until the last 6 weeks where I have been getting almost daily headaches & numerous…
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I climbed Mt Kosciuszko
Thanks to the OTIS Foundation, I have been staying in Thredbo with my beautiful family for a much needed break together. I have been in so much discomfort in all of my joints, including hips and especially knees and lower back. I was diagnosed 9 mths ago & have stage 4 bc, it has spread across my entire liver. I thought…
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Strategies for those rough days
Hi everyone -Many of you have traveled this path longer than me -I am 10 mths in with no surgery but liver and bone mets and had several chemo rounds and now on Xeloda and coping better side effect wise apart from neuropathy and hot flushes made worse since I now take Exemestane. I am having a ratty couple of days -losing…
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Im new here
Hi everybody I was diagnosed with metastatic breast cancer in April 2016. I am on three weekly Herceptin and Perjeta plus Letrozole. I have tumours in both breasts, in lymph and lungs Its good to be here. My main problem is fear.
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New to sharing
Hi all, first timer here I was first diagnosed May 2013, 6 rounds of chemo, 30 radiation treatments, then Tamoxifen til 31st Oct 2017 when my world fell apart, bone , lung, and a few other places mets, nail inserted on 24th Nov, lucky to get a place on the ribociclib compassionate access program, combined with letrizole…
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Research
Today I have been in touch with a friend who is the director of a research institute. I asked him about funding for metastatic breast cancer: if there was 30% of research devoted to metastatic breast cancer. He was non commital. He did however tell me that 2 oncologists associated with his institute were doing research…
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Treatment query
Hi folks, I'm very new to the scene. My elderly Mother has recently been diagnosed with HER2+ breast cancer, and after a bad introduction to Chemo, has now moved onto the more specific treatment with Herceptin/ Perjeta/ Paclitaxel. She has just had her second dose and I couldn't seem to get a sense of how vulnerable she is…