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ABC Global Alliance Executive Committee Webinar
Hello everyone, Following a meeting of the Advanced Breast Cancer (ABC) Alliance Executive Committee, we have been asked to distribute this webinar link for some consumer feedback. I have only had one reply so far and was hoping that some other members of our online community would be able to review this webinar and…
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Is there an information day in October for metastatic breast cancer and latest research?
hi folks, just wanting to clarify, is there an information day coming up in October regarding metastatic cancer and latest research etc? I can’t find anything on the website and now thinking I might have dreamt it
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newly diagonosed
Hi all. I have been diagnosed with st4 breast cancer going to the t4 vertebrae. This was found after I had been found to have a pathological fracture of the back. This has now travelled to my t3. My t4 has collapsed and the tumor is sitting very close to the spinal cord.The neurologist wants the oncologist to try to shrink…
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Feeling numb & sad as cancer is spreading
I was diagnosed with metastatic breast cancer in 2015. I was told it had spread to my liver & lymph nodes in my chest. The cancer started slowly growing in my liver last year, so tried two different types of chemo. Abraxane didn't work at all so was taken off that within 6 weeks. I was on Eribulin for around six months.…
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Faslodex / Xeloda / Ribociclib with Letrozole
Hi All Tomorrow my oncologist wants to talk about a new drug as others not working, she has pretty much given me 2 options Faslodex (non PBS) Or Xeloda (which I believe is a chemo drug) There is also talk of drugs called ribociclib with Letrozole I just like to hear your stories/ experiences with these drugs. Many thanks…
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Nerve pain
good morning ladies, another question if i may. Ive been battling tnbc sine last year. Briefly. Got through it, well i thought after aggresive chemo rads etc. have had 4/5 lovely blooming mnths only to now discovering i have tumours around nodes and nerve endings. Around lungs front n back. Was totalyy clear at 3 mnthly…
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Newly Diagnosed
Hi, I was diagnosed in April with mets in bones. After three different cancer journeys with breast cancer over many years had a bilateral mastectomy 10 years ago. Now what? I am just at the beginning of a new learning curve. Feeling overwhelmed and unsure but will plod on and deal with whatever comes. Life is good and…
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I can't connect with my diagnosis..
Hi there, This is my first post for 5 years. A month ago, I was diagnosed with metastatic bc in my spine and rib, 5 years almost to the day of my initial diagnosis. I am perfectly well, and it was picked up after a routine oncology check showed elevated markers in my blood. The week that my oncologist phoned me, I was…
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Caelyx & nausea
Hi all, I started a new chemo called Caelyx last week for my numerous mets. I had the chemo last Wednesday. I felt good up until today (Monday). My stomach is very upset & I am off my food. Any tips to combat the nausea would be appreciated? What other side effects should I expect on this chemo? Thanks
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New to the group with spinal mets
@FYONA1 posted hi everyone i really would like to hear from someone who is going through mets to the spine I was diagnosed a few weeks ago and did radiation and am currently doing letrozole and ribociclib am feeling very scared and worry about some of the frightening side effects that I may experience if someone can plz…
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Indian head massage seriously beautiful..
Today I had an Indian head massage ....wow. I thoroughly recommend it to all my sisters on here. It was so beautiful I nearly fell asleep . An Indian head massage is not only extremely relaxing but really good for lots of reasons including helping to stimulate hair growth after chemo .It's good for circulation and to…