-
Anyone on the AZTEC trial??
I have metastatic TNBC and have recently commenced treatment on the AZTEC trial. Is there anyone else here on that trial???
-
Avastin
Is anyone out there with metastatic TNBC with skin Mets on chest wall using Avastin? could you tell me about your experience as this is about my last resort but onc doesn’t really give it a big wrap but I do understand it can only give me some extra time if it was to do something but that’s something I’m looking for whilst…
-
Medication not available
Has anyone else been told that their medication hasn't been ordered and subsequently isn't available? That is what has happened to me this week. I was supposed to pick up my medication on Wednesday, but I still don't have it. I am thinking that perhaps I am cured and don't need any more medication. 🙄
-
Time to own up to mets
Hi pink sisters I feel like it’s time to own up to my stage 4 liver Mets that I was diagnosed with 12 months ago I can’t say I’ve been paddling in that Egyptian river.... de-Nile.... denial (get it? :smile: ) but I have been avoiding owning up to it. I guess I’ve been wishing it’s all just a bad dream... alas! Here it is:…
-
ADVANCE NOTICE: Bellarine MBC Support Group
A new support group for women with Metastatic Breast Cancer living on the Bellarine Peninsula is being established. The group will offer support, information and resources, meeting monthly in Drysdale. It will be registered with BCNA and Cancer Council Vic. If you’d like to be involved in the planning stages, and be part…
-
Advance notice: Bellarine MBC Support Group
A new support group is being established for women with MBC living on the Bellarine Peninsula. The group will offer support, information and resources, meeting monthly in Drysdale. It will be registered with BCNA and Cancer Council Victoria. If you’d like to be involved in the planning process, please contact me through…
-
Advance Notice: Bellarine MBC Support Group
A new support group for women with MBC living on the Bellarine Peninsula is being established. The group will offer support, information and resources, meeting monthly in Drysdale. The group will be registered with BCNA and Cancer Council Victoria. If you’d like to be involved in the planning stages, please contact me…
-
Perjeta access as second line treatment for HER2+ MBC - suggestions please
I was diagnosed with MBC in Nov 2011 (first diagnosis: mets to liver, bones, lung & brain), and have been feeling very well for years on Herceptin. However, this month, there has been new growth in the breast & supraclavicular lymph nodes - so there is some cancer that has become resistant to Herceptin. I would like to…
-
Still crying
Hi Everyone, After 8 years clear I was diagnosed with metastatic breast cancer on the 19th December 2018 and I am devastated. You can imagine what Christmas and New Year celebrations have been like.... bloody miserable. I have been on the Ribociclib treatment since Boxing Day, the side effects have come in waves but not…
-
New to Support Network
Hello I am 36 years old and was diagnosed with Stage 4 breast cancer (right breast and tumours on my left lung) in May 2018. I have been having chemotherapy since then and no end in sight so far. I have two very young children and I guess I was just hoping to connect with other women in a similar position as me or women…
-
Venetoclax Clinical Trials
Hello everyone, I heard about this research on Friday last week and have posted some information below. It sounds like a very interesting clinical trial, in the very early stages and aimed at assessing safety. We will keep our members updated about any other developments regarding this research. If you would like more…
-
Fasting for improved health
Hi everyone, im new here and have a fairly recent stage 4 bc diagnosis. I’ve heard 72-hour water only fasts can be efficient to kill tumor cells and help protect your healthy cells from chemo. Does anyone here have experience with this? I’m also open to hearing the view from a BCNA staffer or nurse. My bc nurse didn’t…
-
Summary from BCNA metastatic breast cancer information forum Saturday 13 October 2018
Hello eveyone, Find attached the summary of the metastatic breast cancer information forum held on Saturday 13 October 2018. Regards Giovanna