Why not join the Living with metastatic private group? Access group via the link here.

Im new here

Bird
Bird Member Posts: 3
edited May 2018 in Metastatic breast cancer
Hi  everybody
I was diagnosed with metastatic breast cancer in April 2016.
I am on three weekly Herceptin and Perjeta plus Letrozole.
I have tumours in both breasts, in lymph and lungs
Its good to be here.
My main problem is fear.
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Comments

  • RachaelBB
    RachaelBB Member Posts: 9
    edited May 2018
    Hi Bird
    I’m aso new here. But it  seems like the place to be. Was motivated to join after going to the Pink Lady lunch in Sydney yesterday. I did most my treatment in Singapore so was a bit out of touch with the resources and support available in Australia. 
    Best wishes 
    Rachael x
  • Zoffiel
    Zoffiel Member Posts: 3,374
    Welcome ladies.
    @bird there is a group for those living with metastatic cancer - look for the 'groups' icon on the upper right hand side of the page.
    None of us want to be part of this club, but we are all in it together.
    Being frightened is normal. Horrible, but normal. We get it. Mxx
  • SoldierCrab
    SoldierCrab Member Posts: 3,430
    hi Bird and Rachel

    sorry to have to welcome you into the forum....
    do you have the hopes and  hurdles kit ? https://www.bcna.org.au/resources/ 

    and

    do you know about the group  Living with Metastatic Cancer? http://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer 



    Below are a couple of links to help you find your
    way around the forum and also how to find a breast care nurse and how to order
    a MY journey Kit if you haven't got one yet. 
    It can be a a whirlwind when we first get a
    diagnosed.... Breathe and take it one step at a time. 
    The what and how thread.
    http://onlinenetwork.bcna.org.au/discussion/14879/the-what-and-how-thread/p1 
    Breast Care Nurses
    https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx 
    My Journey Kits and other
    resources. Hopes and Hurdles 
    https://www.bcna.org.au/resources/
    BCNA Helpline 1800 500 258
    If you have any questions, concerns or require any further information
    or support please call 1800 500 258.  The Helpline is open Monday,
    Wednesday and Friday from 9 am till 5 pm EST and Tuesday and Thursday from 9 am
    till 9 pm EST.




















    we are a really supportive bunch on here and there is normally someone around at all times to chat with. 

    it is Ok so admit we have fears... 

  • Riki_BCNA
    Riki_BCNA Member Posts: 322
    Hello Bird and Rachel and welcome to the online network. Thank you to everyone who has provided key information to link you in with BCNA resources. Please do not hesitate to contact the Helpline if we can assist you in any way.
  • primek
    primek Member Posts: 5,392
    Hello and welcome. We are here to support you as we can. Kath x
  • Sister
    Sister Member Posts: 4,961
    Hi @bird and @RachaelBB .  Welcome to the group.  You'll find lots of support and info here.
  • jennyss
    jennyss Member Posts: 2,084
    Dear @Bird and @RachaelBB
    Best wishes from jennyss
  • Brenda5
    Brenda5 Member Posts: 2,423
    Welcome to the forum. You are just high maintenance gals now. You are still the same you, just a bit slower. <3
  • Kiwi Angel
    Kiwi Angel Member Posts: 1,952
    Huge hugs to u both xoxoox
  • [Deleted User]
    [Deleted User] Posts: 0
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  • Eastmum
    Eastmum Member Posts: 495
    Welcome! The ‘warrior’ women on here are absolutely incredible. You will find it an invaluable place for support and advice. All the best! Xxx
  • kmakm
    kmakm Member Posts: 7,974
    @RachaelBB It sure has been the place for me on this rollercoaster so far. I lurked for a long time. Results to my Googled questions kept throwing up answers from here. I hesitated so long, but in the end I dipped my toe in and it's been invaluable for me. I hope it helps you.

    If you're happy to say, tell us where you're at in your treatment  :) K xox
  • kmakm
    kmakm Member Posts: 7,974
    It's bloody awful @Bird. Have you got some strategies for managing the fear? Big bear hug. K xox
  • RachaelBB
    RachaelBB Member Posts: 9

    kmakm said:

    @RachaelBB It sure has been the place for me on this rollercoaster so far. I lurked for a long time. Results to my Googled questions kept throwing up answers from here. I hesitated so long, but in the end I dipped my toe in and it's been invaluable for me. I hope it helps you.

    If you're happy to say, tell us where you're at in your treatment  :) K xox

  • RachaelBB
    RachaelBB Member Posts: 9
    Hi @kmakm
    I have recently finished all my treatment. I’m triple negative and did 4 cycles AC and 12 cycles Tax plus carbo in Singapore. I did 5 weeks radiation here and finished end Feb.
    x