Lymphedema garments in the heat grrrr

mum2jjmum2jj Member Posts: 3,145
Spent a good 10 mins in the Cairns heat putting my garment on today, only to realise at the last minute that it was inside out grrr
It is a soft seamless one so didn't realise until the very end that the silicon grips at the top was on the outside..
Paula :)


  • primekprimek Broken HillMember Posts: 3,822
    How annoying
  • SoldierCrabSoldierCrab Bathurst NSW Member Posts: 1,738
    OMG I have done that a few times @mum2jj so bloody frustrating, while we had that really hot weather I really struggled with my sleeve.... 
    Hugs Paula I know how you feel..... it took us 20 mins one morning thru the heat to get mine on I said to kids as it was going to be really hot again overnight and the next day ... I am leaving it on... AND I did .... no ill effects from that I wont do it regularly but I knew my arm was swelling at night due to the extreme heat....

    Oh the gifts that Cancer leaves behind ho hum 

    Hugs and energy 
  • Brenda5Brenda5 Burrum Heads, QldMember Posts: 1,786
    Nice to hear someone else has done that lol. <3
  • Jane221Jane221 Central Coast, NSWMember Posts: 915
    The struggle is real! How frustrating! 
  • mum2jjmum2jj Member Posts: 3,145
    Thanks girls, I am usually pretty good but just got me yesterday!! I am due for measures on Tuesday. I am hoping my diligence with massage and wearing of my garment has helped improve my measures after the sudden shock increase 6 months ago after being stable for so long. 
    Fingers crossed. 
    Paula xx
  • socodasocoda LeumeahMember Posts: 1,605
    Good luck tomorrow Paula. Crossing fingers for reduced numbers for you. Xx Cath
  • Jane221Jane221 Central Coast, NSWMember Posts: 915
    Hoping for good news for you on Tuesday xx
  • iserbrowniserbrown Regional VictoriaMember Posts: 1,851
    Paula fingers crossed for good measures for Tuesday

    Take care
  • Michelle_RMichelle_R Gold Coast QldMember Posts: 868
    Good luck tomorrow, Paula - everything crossed for you! xx
  • DeanneDeanne Sunshine Coast QldMember Posts: 1,959
    Fingers crossed for you, Paula! xxx
  • Hopes_and_DreamsHopes_and_Dreams Gold CoastMember Posts: 698
    Sending lots of positive thoughts for tomorrow Paula xx
  • socodasocoda LeumeahMember Posts: 1,605
    Paula @mum2jj, just wondering how you went with your measurements on Tuesday?
  • mum2jjmum2jj Member Posts: 3,145
    Thankyou to all you lovely ladies for your beautiful comments.  Have barely had time to scratch myself these past couple of days.  My measures are the same in some places but much improved in others.  My "aldex" measure... I think it's called that was upto 14 last year from a usual negative measure. By the time I had my new garments last time and after lots of hard work with massage and wearing long garment again it was down to 5,  Well oon Tuesday it was negative 0.5.  I am taking this as a big win.  Still in long garment but can alternate with shorter one that I used to wear which I have slowly been doing this last month.  Still massaging daily... It's really a long term thing, but happy with the 1 1/2 cm loss in my arm and the low aldex reading.  You  ladies are awesome xxx
    Paula :)
  • socodasocoda LeumeahMember Posts: 1,605

    Paula, that is excellent!! Xx
  • ShareShare Member Posts: 217

    Hi Paula,

    Great results for you - well done !

    Oh, the heat and humidity can be a real bummer. Apart from the fact that when you are finally able to get it on successfully, you feel like you are walking through an open fire sometimes !

    I sometimes find that I wait a good 10-15 mins after having a shower (or switch to tepid water right at the end to help cool my body temp) as the garment seems a bit more problematic if put on straight away.

    Would love to hear some of your "successful" stories about massage and how it has helped.

    Although I had partial removal of lymph nodes in 2003, I developed lymphedema in December 2016 (never a problem in 13 years - aaaahhhhh).

    So, this is all very new to me. In less than 3 months I have gone from a temporary stretchy garment to weekly lymphodema massage & measured up for full fitting garment including hand. There is now a 50cm difference between my left and right arm.

    I do self-massage once a day and exercises 3 times a day and deep breathing when I think of it and rolling of shoulders etc to try and stimulate the other lymph nodes to become more active !

    Have now had 2 x sessions of laser treatment as I have developed cording.

    Thanks for sharing your successes :)

    Best wishes, Sheryl   

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