Lymphedema garments in the heat grrrr
Comments
-
Sheryl
What a bummer! People always think I am weird when I say I'd rather have got lymphoedema soon after surgery (as I did) rather than years later, but I still think I was better prepared for impacts and outcomes than I might have been when I reasonably could expect it was all in the past.
Best of luck with your new garment. The all in one is supposed to give best results although I had a bad experience (partly through a local supplier who couldn't fit properly) so my excellent therapist has settled for an arm and glove that keeps us both happy. I wear them daily (occasionally skip but only if it's cool) and also keep up daily exercises. My swelling is much less though and I manage well with monthly massage (self massage and elevation when I remember). I hope you get some improvement very soon.0 -
Hi Ladies this was on my facebook this morning thought I would share it ....
http://www.mylifehouse.org.au/teach-patients-self-manage-lymphoedema/
0 -
0
-
0
-
Great, thanks for the updates and info ladies - forum always a font of knowledge and support. Thanks @soldier_Crab for the facebook link and @mum2jj for the info.
Yes, my lymphedema therapist has shown me several exercises to be performed 3 x times a day (bit difficult to try and find a quiet spot @ work to do for 10 minutes - sometimes I lock myself in the toilet !) along with self-massage once daily for 10-15 minutes.
My physio has also recommended a night garment now (will speak about that at my appointment next week). More additional costs - grrrr.
Up until a few weeks ago, there was some reduction in the swelling overnight (I always keep it elevated) but that is no longer the case.
Just cannot believe the huge change in such a short period of time.
My physio said it could have been something as simple as a mozzie bite, small scratch etc even though I am vigilant with my hand sanitizer !
Enjoy the w/e ladies.
1 -
P.S. - Oh and @soldier_crab - you are not going to believe this but the lovely lady featured in the Lifehouse link, Jessica, was my initial lymphedema therapist who recommended me to another physio as when the cording developed she said I may benefit from laser treatment and she does not perform this !
What a small world !!! xx
1 -
OK I just read post from where I had put the LINK today.... you can claim the garments through various government departments depending on state.
NSW is ENABLE I will find the links and get it up here ....http://www.lymphoedema.org.au/about-lymphoedema/compression-garment-schemes/Compression Garment Schemes
State
Garment Subsidy
Eligibility
Subsidy
Limit
Prescriber Guidelines
ACT ACTES (ACT Equipment Scheme) 1) Lymphoedema diagnosis
2) Means test - Commonwealth pension and/or health care card holder100% Two sets of Compression garments every six months Public or private lymphoedema trained health professional NSW EnableNSW 1) Lymphoedema diagnosis
2) Centrelink, or full pension holders eligible
3) Means tested for those in receipt of an income with some co-contribution for those on a low income100%
$100 Co-payment required annuallyTwo sets of compression garments every six months. Lymphoedema therapist registered with the Australasian Lymphology Association - National Lymphoedema Practitioners Register – Level 1 (or eligible for registration) VIC Lymphoedema compression garment program (LCGP) 1) Lymphoedema diagnosis
2) Centrelink, Pension or healthcare card holders eligible40-60% of cost of garment
Limit of 6 garments per year Lymphoedema therapist registered with the Australasian Lymphology Association – National Lymphoedema Practitioners Register – level 1 (or eligible for registration) QLD Compression garments for adults with malignancy related lymphoedema 1) Scheme available for those with cancer-related lymphoedema
2) Aged over 16 years
3) Pension or healthcare card holders eligible100% Provision based on clinical need as determined by treating therapist Lymphoedema therapist registered with the Australasian Lymphology Association – National Lymphoedema Practitioners Register – level 1 (or eligible for registration) TAS CES (Community Equipment Scheme) 1) Lymphoedema diagnosis
2) Centrelink, Pension or healthcare card holders eligible100%
$50 co-payment required annuallyLimit of 2 sets of garments per 6 month period Public or private lymphoedema trained health professional WA CAEP (Community Aids and Equipment Programme) Centrelink, Pension, healthcare card, or Commonwealth seniors healthcare card holders eligible Contact the WA Disability Services Commission for this information Limit of 2 sets of garments annually Public lymphoedema trained health professional NT Lymphoedema Compression Garment Subsidy (accessed through the Occupational Therapy Department, Royal Darwin Hospital)
(08) 8922 8888Lymphoedema diagnosis
100% Limit of 2 sets of garments per 6 month period Public or private lymphoedema trained health professional SA None National DVA (Department of Veterans Affairs) 1) DVA gold card holder
2) Lymphoedema diagnosis
3) GP referral to lymphoedema trained health professional100% Provision based on clinical need as determined by treating therapist Lymphoedema therapist registered with the Australasian Lymphology Association – National Lymphoedema Practitioners Register – level 1 (or eligible for registration) Information provided in this table has been simplified, please refer to the relevant websites for full details and eligibility requirements.
2 -
0 -
Hi I am lucky to only have mild lymphodoema but had an appointment in December to get new garments and still waiting on two of them.0
-
1
-
1
-
Ladies my therapist orders mine from this place I had them in a few days .... http://www.tslaustralia.com.au/
I also got my sizing and bought some off Ebay.... they came from Lativa and were here in less than a week.1 -
Mine are Jobst, Germany. Made to measure, ordered through my therapist and usually here in 7 - 10 days.0
-
Thanks for advice I am following up on the orders and also ordered one off ebay0
