Lymphedema garments in the heat grrrr

mum2jj
mum2jj Member Posts: 4,317 ✭
in Day to day
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  • primek
    primek Member Posts: 5,392 ✭
    How annoying
  • SoldierCrab
    SoldierCrab Member Posts: 3,430 ✭
    OMG I have done that a few times @mum2jj so bloody frustrating, while we had that really hot weather I really struggled with my sleeve.... 
    Hugs Paula I know how you feel..... it took us 20 mins one morning thru the heat to get mine on I said to kids as it was going to be really hot again overnight and the next day ... I am leaving it on... AND I did .... no ill effects from that I wont do it regularly but I knew my arm was swelling at night due to the extreme heat....

    Oh the gifts that Cancer leaves behind ho hum 

    Hugs and energy 
    xoxox 
  • Brenda5
    Brenda5 Member Posts: 2,423 ✭
    Nice to hear someone else has done that lol. <3
  • Jane221
    Jane221 Member Posts: 1,194 ✭
    The struggle is real! How frustrating! 
  • mum2jj
    mum2jj Member Posts: 4,317 ✭
    Thanks girls, I am usually pretty good but just got me yesterday!! I am due for measures on Tuesday. I am hoping my diligence with massage and wearing of my garment has helped improve my measures after the sudden shock increase 6 months ago after being stable for so long. 
    Fingers crossed. 
    Paula xx
  • socoda
    socoda Member Posts: 1,767 ✭
    Good luck tomorrow Paula. Crossing fingers for reduced numbers for you. Xx Cath
  • Jane221
    Jane221 Member Posts: 1,194 ✭
    Hoping for good news for you on Tuesday xx
  • iserbrown
    iserbrown Member Posts: 5,764 ✭
  • Michelle_R
    Michelle_R Member Posts: 901 ✭
    Good luck tomorrow, Paula - everything crossed for you! xx
  • Deanne
    Deanne Member Posts: 2,163 ✭
    Fingers crossed for you, Paula! xxx
  • Hopes_and_Dreams
    Hopes_and_Dreams Member Posts: 760 ✭
    Sending lots of positive thoughts for tomorrow Paula xx
  • socoda
    socoda Member Posts: 1,767 ✭
    Paula @mum2jj, just wondering how you went with your measurements on Tuesday?
  • mum2jj
    mum2jj Member Posts: 4,317 ✭
  • socoda
    socoda Member Posts: 1,767 ✭

    Paula, that is excellent!! Xx
  • Share
    Share Member Posts: 217 ✭

    Hi Paula,

    Great results for you - well done !

    Oh, the heat and humidity can be a real bummer. Apart from the fact that when you are finally able to get it on successfully, you feel like you are walking through an open fire sometimes !

    I sometimes find that I wait a good 10-15 mins after having a shower (or switch to tepid water right at the end to help cool my body temp) as the garment seems a bit more problematic if put on straight away.

    Would love to hear some of your "successful" stories about massage and how it has helped.

    Although I had partial removal of lymph nodes in 2003, I developed lymphedema in December 2016 (never a problem in 13 years - aaaahhhhh).

    So, this is all very new to me. In less than 3 months I have gone from a temporary stretchy garment to weekly lymphodema massage & measured up for full fitting garment including hand. There is now a 50cm difference between my left and right arm.

    I do self-massage once a day and exercises 3 times a day and deep breathing when I think of it and rolling of shoulders etc to try and stimulate the other lymph nodes to become more active !

    Have now had 2 x sessions of laser treatment as I have developed cording.

    Thanks for sharing your successes :)

    Best wishes, Sheryl   

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