Forum Discussion
OTISMYCAT
1 year agoMember
Joint pain, muscle stiffness
Hi all I am 5 weeks post radiation for invasive lobul ar carcinoma. 6 lymph nodes removed. I am on letrizole. I started getting joint pain and muscle stiffness in my knees shoulders hips and muscle tightness. When I mentioned it to radiation doc she said it would not be from radiation to breast area. Has anyone experienced similar symptoms. I had a mastectomy. No chemo.
17 Replies
- OTISMYCATMemberHi i was prescribed anti depressants for the hot flushes and insomnia by my medical oncologist.Elaxine sr 37.5. Has anyone else tried these and had sucess. She also prescribed Fezolinetant to try if i dont like previous tablet. I dont handle side effects very well.🩷🌺
- arpieMemberI ended up on a 3rd one before I found the one that suited me (Anastrozoloe) ..... and have stayed on it for nearly 7 years - just coming off it now.
Ring our helpline for a chat as well ..... as they'll be able to talk you thru some of your issues xx
take care - OTISMYCATMemberHi all omg how many ladies have had to change their hormone blockers because of side effects. Im on second one. Side effects are if anything worse than first one. Excess sweating..hot flushes are a given..are joint pain also a given no matter which one you take. Sleep disruption..sensitivity to heat in finger tips..tingling too.I am going to talk to medical oncologist and find out my options.I am 7 months post surgery..4 months post radiation. Feeling a bit overwhelmed atm by everything. Take care.
- TriMemberhi @OTISMYCAT I am really happy to hear your joint pain is almost all gone!! Fantastic 👏🙃🌸🌻 good on you for discussing the side effects with your doctor and trying an alternative aromatase inhibitor and what’s more - it’s so encouraging to hear that it appears to have been a change for the better. Thanks for sharing.
I am sorry about the sleep interruption though - I have fortunately dodged that side effect (except in the days when my neuropathy sometimes woke me up, now in the past). I do try really hard to keep my activity levels high because I think it probably helps me on the solid sleep front.Hoping your lymphodaema is improving too 🌻 - arpieMemberGREAT that the aches & pains aren't too bad & the hot flushes too @OTISMYCAT ... but the lack of sleep is so annoying, eh?
It is SO muggy just now, even here (where we don't normally get the muggy weather!). It makes it very difficult to sleep. Even just a small fan (desk fan) moving the air can help cool it down a bit....
take care, all the best - OTISMYCATMemberHi all. I have been on exemastine for nearly 2 months. Now joint pain is vertually gone. Hot flushes are not as bad. Mainly nights. Have heat sensitivity and tingling in fingertips and feet. Weird. Just get up and get on with day. Not sleeping though. I dont sleep anymore than 2 hours at a time then wake up. Mentally tired. Try nap during day.Take care.
- OTISMYCATMemberThankyou take care
- TriMemberhi @OTISMYCAT great to hear the hot flushes are a bit better but I am sorry to hear about the joint pain- it cannot be easy ❤️ on top of lymphoedema.
Sending you lots of positive energy. - OTISMYCATMemberHi all hope you had a nice Xmas. I am now on aromatase 25mg 1 a day. I am having a tough time dealing with joint pain. Especially my shoulders wrists knees and hips.my muscles are also stiff. Hot flushes not as bad as when on letrozole. Night time is worst time. Can't sleep with the pain.i end up having to have a nap later in the day. I get up in the morning feeling very stiff but life goes on. Just keep on doing what I need to do. I have lymphodema in my left arm so here in brissy it gets very hot having to wear my garments. Oh well hope everyone's new year brings new hope for cancer research.
- TriMemberHi @OTISMYCAT sounds like you and your oncologist are doing what you can to find an aromatase inhibitor that works best for you 🌻 🌸🌺
I take my tablet around dinner time in the evening.
On the point about heat sensitivity after radiation therapy, I didn’t feel unduly hot but I covered up from the sun once I had a bit of exposure (to top up my vitamin D) to avoid heat rash.Hope your symptoms settle, and they don’t disturb your sleep overnight. Everything is better when I feel rested! Merry Christmas to you 🎄🌻