Ovestin Cream
Hi everyone!! I accidently sent this info to myself. So have worked out how to send it to everyone else. I had a recent appointment with my oncologist which went well. He doesn't need to see me for 12 months. Got my repeat for Anastrozole. I mentioned the Ovestin cream which I have started using again since surgery. At a previous appointment he said it was okay to use as I use it just twice a week. He said he didn't say that. I'm positive he did. I've stopped using it and have gone for an over the counter product he recommended. Replens. Then in the next breath he said if that doesn't work for me go back to using the Ovestin. I felt confused. Intimacy is uncomfortable as I am dry and sore inside again. Intimacy is an important part of our relationship. Because of this I really don't want to be intimate. I would love some feed back, please.
Scalp issues on medications
Hi. Just wondering if anyone has any issues while on Abemiciclib and letrozole with scalp dry patches? I’ve always had beautiful healthy hair and skin but since my diagnosis and treatment I’ve had scalp issues. I didn’t have this problem during chemo etc. but have the last 2 months. Any tips on how to resolve it would be very appreciated. I have tried several creams, shampoos etc. X
Abemaciclib Verezenio side effects
Hi Ladies, I have recently started on Letrizole/Hormone Therapy, and Verenio / Abemaciclib and am struggling with the side effects. I am in the fortunate position in that both these drugs are being given as a preventative measure. I don’t have Mets, but am at very high risk of re-occurrence. Originally diagnosed with bi-lateral early breast cancer back in March 2023. Had a small 1cm triple negative tumour, and a larger (5cm), more aggressive (grade 3) oestrogen positive tumour with lymph node involvement. After initial breast reduction to remove both tumours and additional auxiliary clearance, I had 6 months of chemo, plus radiotherapy to both breasts. I managed to keep fairly positive throughout these treatments, and while at time a struggle did manage to work albeit at reduced pace throughout. Just as I finished radiotherapy my oncologist recommended abemaciclibb as part of a trial that is showing reduction in recurrence rates of around 6%. I’ve only been on these for 5 weeks, and while the side effects are manageable, they are not a lot of fun - diarrhoea, fatigue, vertigo, and just generally feeling unwell. Hot flushes and insomnia with the hormone therapy which again are manageable and on their own no big deal, but the combination has me exhausted. I was soooooo looking forward to end of my active treatment and getting some energy back, getting back to working full time aswell, but now with two years ahead of me on this regime, I am wondering if it is worth it. Oncologists reluctant to reduce dosage and are keen for me to stay on the Abemaciclib, but I’d love to hear from anyone else is in a similar position and how you are managing the pros and cons of the treatment options versus quality of life, and from anyone who’s been on Abemaciclib for a while to know if side effects improve over time. Thanks JenniMy armpits feel like they are coated with ADHESIVE!
Hello, I had a mastectomy and lymph node removal two weeks ago . The last few days the most annoying side effect, my armpits feel quite sticky. I have regularly cleaned, tried using and not using deodorant and even moisturising cream. None of which has worked. Did anyone experience this? if so how can I get rid of it?
Joint pain, muscle stiffness
Hi all I am 5 weeks post radiation for invasive lobul ar carcinoma. 6 lymph nodes removed. I am on letrizole. I started getting joint pain and muscle stiffness in my knees shoulders hips and muscle tightness. When I mentioned it to radiation doc she said it would not be from radiation to breast area. Has anyone experienced similar symptoms. I had a mastectomy. No chemo.
Ribociclib Side Effects
Good morning, Sharing my experience with Ribociclib for early stage BC. (Diagnosis Nov 23, Stage 2B, Grade 2, WLE, Rads and then Letrozole / Ribo / Zometa / monthly zoladex) I had been on the Ribo medication (400mg daily, 21 days on 7 days off) for 5 months when my standard blood tests came back with high liver enzymes. I'd been feeling more tired than usual, but figured this was because I was slowly starting to do more. My wee was very dark, so I figured i wasn't drinking enough water. 2 weeks later (whilst off the ribo) my LFT was even worse. After seeing a gastroenterologist, having a liver ultrasound, MRI, and luckily avoiding a liver biopsy, the conclusion was Drug Induced Liver Injury. An uncommon but known side effect of Ribociclib. This will no longer be part of my treatment regime, and it'll be weeks to months before my liver function is back to normal. I was wiped out for a few weeks. No appetite, nausea, constipation, fatigue - i lost 4kgs in 4 weeks. My med onc has been away and I've been seeing a locum, but when she returns (my next appointment is early November) I'm going to ask if there are any other side effects I should look out for on my other meds. Just when I thought i was doing so well, and now i have to get physically stronger (again) and then mentally get my head around the fact that the Ribo for early stage isn't for me. My BC nurse said 'well, the letrozole is the main one, the ribo was a bonus' and this really concerned me. Significant (but very luckily) reparable liver damage as a 'bonus'? The gift that keeps on giving. Trying to not let this get me down, but boy oh boy. Sharing so that hopefully others can be aware of this rare side effect. KellyPaclitaxol and neuropathy - decision to stop
Hi there, What are people’s experience with weekly taxol treatment and neuropathy? I’m currently having weekly taxol + Herceptin for a recurrence of HER2+ BC. I’ve manage to do 8 taxol infusions but the neuropathy is getting tough. I’ve already had a 2 week break and steriods but the pain keeps coming back. My symptoms aren’t only in my hands and feet, I also feel like I’m being stung all over my body at times. Pressure and drying off after a shower can set it off too. My oncologist is talking about stopping the taxol and I’m meeting with her next week to discuss. Just wondering if anyone a had any experience stopping taxol early (I’m supposed to have 12) and how you felt about weighing it all up? I’m exhausted by the side effects but also want to have the best chance that this doesn’t come back a third time! Thanks!
Kadcyla - feet numbness
My concern is around nerve damage in my feet and how stopping this regime will affect my prognosis. Has anyone got some advice. Hello and thank you for creating this forum. I was diagnosed in late Jan 2024 and straight in at the deep end with 6 rounds of chemo then mastectomy in June. I was advised that there were still cancer cells present and told I needed to move to trans2 + Kadcyla. thanks in advance
