Feeling angry
I have recently been diagnosed and had a lumpectomy last Thursday. I’m feel fine not overly sore but tired. Mine was picked up on a mammograms so early and I’m very grateful and know how lucky I am. I’m ok with diagnosis 1 in 7 my turn. The issue is I’ve been through so much recently and I’m finding myself angry. Well the last 2 days. 2 knee replacements, fibromyalgia, depression, late adhd diagnosis at 62, mum with dementia I’ve had to put into care, I sold her house without her knowing which is heart breaking - no help from siblings and that just this year. Lol. I had a breakdown a few years ago through work, got divorced, my dog died and I burnt my nachos the other day. A bit of light relief. There is more but that will do. I’m exhausted keeping a lid on everything. I’ve spoken to my psychologist who suggested Emdr. I’m by myself and just so angry. My kids have their own lives and basically my safe place is my home (with a massive mortgage) and my dogs. I had started a wonderful new business but have had to put that on hold until I find out what happens next. Which is next Monday. This is not a why me post it’s a is it normal to be angry. Not all the time but it’s scathing and my dogs have heard some words that I have never mentioned before. I’m not really good at asking for help. And was disappointed with the support I received with my knee replacements so reluctant to go through that rejection again. I think maybe it’s the lack of control, not knowing where we go from here. Again I know how lucky I am and whatever treatment (looks like radiation and hormone therapy and possibly another op and chemo if it’s travelled) I will gladly do and be thankful. I guess I’m just bewildered and have no idea what’s normal and whats not. And if I’ve honest I’m teary too. Ok I feel lonely and unsupported as well.
Mental health and new diagnosis.
Hi all, been struggling really bad finding out i have cancer in my right breast early diagnosis. I dont know what sort as i cant cope with the details of it all. I have seen the doctors and waiting MRI appointment and surgery date. I am really struggling with the anxiety and the moving forward bit. I suffer with anxiety and depression quite badly. I was given the option of just having the two lumps removed or the whole breast. I cant decide which option will help me move forward better. So firstly is there any mental health accept to this organisation? I only have my hubby to rely on who is also classed as my career. I am unsure which option to go with as my mental health plays a big part in my descion. I need to make a descion that i can be happy with and wont make my anxiety worse. Unsure of who to talk to or where to go for help.New grade 1 diagnosis
Hello. I’ve just been diagnosed: left breast invasive ductal, grade 1, hormone receptor-positive, HER2-negative. GP summary is that this is a low-grade hormone-positive breast cancer that can be successfully treated usually with lumpectomy then radiotherapy. I’m seeing a surgeon next week and feel relieved that this has been caught early. That said, I’m not looking forward to the next few months and am wondered if there is anyone else at a similar starting point - or people who’ve been down a similar road and can share advice and support. I’m 59, live in Sydney, work full time in a high pressure job, and am a single mum with a teenager at home. Thank you
Breast cancer diagnosis- did you have a Mirena in place, like me?
I was diagnosed with breast cancer 3.5 months ago and had a double mastectomy 3months ago. I am 44 years old. I started doing some research as a number of people I know with breast cancer who were young also had a Mirena. There is new research coming out of: -Europe that indicates that there is a 40% higher risk of breast cancer if you had a Mirena, and -Germany that shows that the Mirena can change hormone levels in the breast based on scans I had breast ultrasound scans that show I did not have breast cancer just before my Mirena was inserted 5 years ago, and that it developed post Mirena insertion. I had no genetic factors (based on testing), and no risk factors for breast cancer. It seems highly co-incidental. I also looked up the FDA documentation for Mirena approval and it states that "Spontaneous reports of breast cancer have been received during postmarketing experience with Mirena. Because spontaneous reports and voluntary and from a population of uncertain size, it is not possible to use postmarketing data to estimate the frequency or establish causal relationship to drug exposure..." I am keen to connect with other women who had a Mirena in place and then were diagnosed with breast cancer. If this is you, please respond to this post- I would love to hear your story!Emotional speed bumps
Hi, I'm trying to figure out how to prepare for life post-mastectomy. I got my diagnosis a week ago and have been managing well, but then I tried to join a FB group for people going flat and got hit hard by a gatekeeper question. The question was something like, "Have you had a mastectomy?" Options: 1. Yes 2. No, but I'm looking at my options 3. No, but I am supporting a loved one who has. The curious thing is that I felt completely left out by this option list. I wanted the option: No, but I am about to. I got all teary and had to write about it. Funny what sets us off. Anyway, I would love some tips about clothes to wear during recovery that are easy to manage and don't make me stand out.DCIS, DMX reconstruction new diagnosis
Recently diagnosed DCIS Stage 0. Opting for DMX and reconstruction using my tummy fat same day…. Videos and some social media groups are TBH quite confronting and disturbing. I would rather know but….. Reading and hearing how awful the recovery is, pain, discomfort, loss of movement and after some helpful tips to prepare please: particularly diet, did you change your diet pre surgery? High protein to help with recovery? Can you recommend a website or recipe site? Things post surgery: hire a recliner to rest in, did you hire a wedge or breast pillow as well? Button up shirts and pjs, anything else that you found useful please? I’ve heard about the drains which sound daunting… what do i need to do with them? Toileting and cleaning myself… I hear you can’t put your arm around your back to wipe? I’ve got wet wipes but …. Don’t want to ask my partner to wipe my bum? Diet after surgery to avoid constipation. Any tips would be greatly appreciated thank you so so much.
Post surgery Rehab options
Hi all, hope you all are doing fine. I wanted to share my experience in y BC journey and also want to get some expert advice/ help if you have been thru this already. I was diagnosed with a stage 3 Triple positive BC last July. Since then I have been going through Chemotherapy and targeted therapy as advised my Breat surgeon and Oncologist. I recently completed my 6th cycle of Chemo and have my surgery scheduled this Saturday on. 6Dec. I will need to undergo full Mastectomy on my left. This will be followed by immediate reconstruction- will be a lengthy process I have been told. While understandably we are all nervous , I am also hopeful that I have been thru half of my battle. I am also a mother of two, and younger one is only 2.5 years old. I am also really anxious about the post surgery situation. My Doctor has told that I should not be taking stairs post surgery after I go back home. Given that I have little kids at home and none of our bedrooms are at downstairs, I am really keen to see if I can stay at a Rehab after I am released from the hospital. This would allow me to heal for few more days and would not endanger myself with the little one ( she jumps on to my lap anytime she wants). That would also help my husband who is my only carer at this stage. Love to get some ideas and advice how can I avail the Rehab facilities. I was also told by my Insurance provider that I have restrictive coverage for Rehab. I am in a tricky situation ( and am sure many of you are ) and wanting see what support can I get at this very difficult time. Many thanks and wish me luck!Guilt
Thanks to BCNA and the forum contributors (my new friends). I was diagnosed with IDC this week at 49 and have been 'battling' my emotions rather than sitting into them. That stops now. A couple of family and friends have tried to console me by dismissing my emotions. "Oh, you'll be fine. So-and-so had breast cancer and she's fine." "It's like appendicitis. You'll get it cut out and move on." "With all the advancements in treatment, it's not like it can kill you anymore." "You're not special. Everyone has some form of cancer these days." I was starting to feel guilty for being so emotional. I felt like I needed to get over myself and just deal with it quietly and confidently. I'm lucky I have a supportive husband... and you all!
Looking for IVF specialist who knows menopause/tamoxifen
Hello! First time poster here. I was diagnosed with triple positive BC in 2022. We welcome our first baby born via surrogacy in 2023 but have one more embryo that I’m going to transfer myself because I’ve had 2.5 years on tamoxifen and no sight of reoccurrence. My Oncologist said okay yesterday! I am hoping to find an IVF specialist in Australia- preferably Bris that has dealt with my situation before - medical menopause and 2.5 years tamoxifen. Has anyone heard of a doctor like this? I’m happy to do Telehealth. My current doctor is Tiana Ernst at City Fertility Brisbane (where our embryo is) who is lovely but want to be sure I research for our best chance. Thank you!
Letting go of blame - WHY did I get cancer?
I've just listened to BCNA's excellent podcast: What you don't know until you do, and one of the comments there made me want to share something that might bring comfort to anyone wondering “Why me?” When I was diagnosed, I went straight to questioning what I might have done wrong. I think a lot of us do. It’s easy to assume cancer comes from our own doing - e.g. drinking, not exercising enough, or eating poorly. But in my case, none of that fits. I have never smoked or drank alcohol (!), and for decades now I’ve exercised daily and eat a vegetarian/pescatarian diet with no dairy, no processed food, and very limited processed sugar etc. Over the last years, I'm moved to a job that's relatively stress-free and giving me much satisfaction and flexibility. I’m young, healthy, lean, muscly, and don’t carry any of the high-risk genes. And still, I got breast cancer. I’m not sharing this to scare anyone or suggest healthy habits don’t matter. They absolutely do — and I believe they’re helping me now in recovery, physically and mentally, and hopefully they've contributed to having less aggressive cancer type. But I’m sharing it in case it helps some of you lift some guilt. If you’ve been blaming yourself for a glass of wine, skipped workouts, or a part of your diet — please don’t. Cancer is complex, and sometimes it just happens, even when you’ve done everything “right.” Sending love and strength to everyone going through this. *Moderators - pls feel free to remove if not appropriate*
