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SarahLM's avatar
SarahLM
Member
20 days ago

New grade 1 diagnosis

Hello. I’ve just been diagnosed: left breast invasive ductal, grade 1, hormone receptor-positive, HER2-negative. GP summary is that this is a low-grade hormone-positive breast cancer that can be successfully treated usually with lumpectomy then radiotherapy. 

I’m seeing a surgeon next week and feel relieved that this has been caught early. That said, I’m not looking forward to the next few months and am wondered if there is anyone else at a similar starting point - or people who’ve been down a similar road and can share advice and support.

I’m 59, live in Sydney, work full time in a high pressure job, and am a single mum with a teenager at home.

Thank you

11 Replies

  • SarahLM​ I'm sorry to hear of your diagnosis.

    I had a similar diagnosis in September 2025 in my right breast.  The experiences we have can vary a lot but my advice would be to focus on one step at a time as each step can vary the steps that follow, and to give yourself a chance to rest when it comes to recovery. Hopefully the teenager will leap to action for things like hanging laundry and putting away dishes at times when your movement might be restricted. 

    I made sure to eat extra healthy, stay hydrated, and I was moisturising my skin a lot in the weeks before surgery hoping to give the surgeon the best chance at a neat result :) 

    I had a wide lumpectomy with sentinel node biopsy at first and the recovery from that was okay. Some discomfort and weird sensations but they passed. I made sure to follow the exercise regime given to me by my Breast Care Nurse to recover arm movement. I returned to work after a week to a physically active job - at first I took a few extra moments in the days to sit down and needed help in pushing/pulling/lifting tasks that needed use of my affected arm but each day things got easier. I learned to do a lot of things with my non-dominant arm!

    If you haven't already started, put together a list of questions for the surgeon that you can go through at your appointment. 

    Have you been referred to a Breast Care Nurse? If not, your surgeon might recommend one for you or else you can search on the McGrath Foundation website. Mine was helpful for answering questions about surgery, results, and lining up appointments.

    I found the initial stages went by very fast. It was a big jolt to go from diagnosis to having my first ever surgery in less than a month.  If it feels frantic, take a moment to breath. 

    And reaching out here like you've done is very helpful when you have questions.  

    All the best.

  • Thank you. It’s extremely helpful to hear from someone who has been through it, thank you.

  • Hi SarahLM​ 

    I"m sorry to hear you're on this path, and can completely relate to the feelings of the unknown path ahead. 

    I'm only about 2 weeks ahead of you in the process - SO much happens in these first few weeks - it IS a complete jolt and head spin as you're flung into this new world. I had a wide excision and sentinel node biopsy. Give yourself all the time you can in the week or two following to rest and recover. Make sure you have support to do practical things - especially around the house and driving, I had my friends cook for me and provide beautiful homemade meals for 2 weeks which was a Godsend. I personally have had more discomfort with my arm / arm pit from the sentinel node biopsy than the breast. Really working hard on the exercises and massage to get those new lymphatic pathways going. Wearing soft crop tops, button up shirts and open fronted tops helps as it's taken a while to lift my arm. 

    Your surgeon will be a wealth of knowledge and the Breast Care Nurses are literal Angels - they'll fill in all the gaps and answer all your additional questions. 

    I own my own business and had to completely take my hands off it for the lead up and recovery from surgery. As one of my employees said 'if you can't step back from it now to focus on your health - when can you?' So I hope you can have a similar reprieve from your job as well. 

    Take one step at a time, you've got this!! 

     

    • SarahLM's avatar
      SarahLM
      Member

      Thank you so much. Wishing you a smooth path ahead :)

  • Hi, I was diagnosed 3 weeks ago left breast cribriform carcinoma est grade 1. ER+ PR+ and Her2 equivocal. Saw a surgeon last week but all booked out for April so off to another surgeon this Wednesday. Similar stage to you. I'm in Gippsland Victoria, 61yo no kids at home.

    We've got this Sarah.

     

    • SarahLM's avatar
      SarahLM
      Member

      Thanks Beachy. So much easier to deal with these things when we can share our experiences. I see my surgeon tomorrow and will then get an idea on timings. Hope you get on well on Wed.

  • Hi Sarah,

    My diagnosis is much the same as yours. I’m 55. I had my lumpectomy / wide local excision with sentinel node biopsy four days ago. I will get the results next week. At this stage the expectation is radiation (3 weeks) and hormone suppressants (5 years). 

    I found it helpful to write down my questions and email them to my surgeon before my appointment. I also gave a copy to my husband, who comes to my appointments with me, so that he could ask any that I missed. Just before my surgery I also spoke with a breast care nurse, who gave me additional information and advice.

    Since the surgery I have mostly been moderately sore but able to follow the exercise advice, with (very) gradual improvements each day. I only need paracetamol since getting home the day after surgery.

    Not saying it’s all going to be easy or that there won’t be any surprises along the way but we’re both starting in a good position in the (admittedly horrible) scheme of things. Happy to be part of your support crew.

    Hang in there 🌸

    • SarahLM's avatar
      SarahLM
      Member

      Thank you for your helpful note. I’m glad you are recovering well.

      I’ve had more scans and am now waiting for a date for my lumpectomy.

      Feeling a little anxious also grateful that things are moving on. I imagine most people in this situation feel the same at this point - just want to get it “out” and move on through treatment!

  • Hi SarahLM - snap, me too (except I'm in Melb and slightly younger). Exactly the same diagnosis, although my kid is 12.  Having surgery in mid April and keep thinking about it.  Having had a read in this group, it seems the waiting is the constant bug bear.  Also have a high pressure job I love and frankly I'm too busy for this!!!  Hope your brain is keeping quieter than mine.  We can do this (ha we have no real choice!).

    • SarahLM's avatar
      SarahLM
      Member

      Sorry to hear you are on the same path. My brain is in complete overdrive and i’m trying to listen to the advice that says to take it one stage at a time. I know that having a network of people here going through the same thing is going be an enormous help through the ups-and-downs that are likely to come to us over the next weeks and months. But yes, we’ll get through this – because we’e strong women, and that’s what we do! 

      • LuckyA's avatar
        LuckyA
        Member

        Thanks SarahLM.  I’ve actually just realised in my brain fog that I’ve got a grade 2. Not really sure that it matters much - it’s small and coming out. I am finding my patience is zero especially with Miss 12 who is amazing but can be sassy. She doesn’t know yet . How old and what gender is your teen??