I dont even know what my question is..
I got a lump out and thought nothing of it. The ultrasound and GP kind of indicated it was in the skin not the breast tissue. So when I got a call to go back to surgeon a little earlier, I thought they were just checking the wound care. Until they said its what it is and booked me in for another surgery (this week) and had MRI and CT and biopsy. On a referral it says possible IDC and DCIS. Im getting a call tomorrow and surgery Friday. GP told me the lymph nodes are positive. Its been a blur over Christmas. Will I ever think about something else or will it always be on my mind before bed and as and soon as I wake and every moment in between? I've 2 kids. Im scared.ER/PR+ HER2- invasive lobular
I’m a 47 yr old mum of one 6 yr old. I received my ER/PR+ HER2- invasive lobular cancer diagnosis this week. Due to strong family history (mum passed away at 62 in 2012 with triple negative BC- and her mother also passed away at similar age from BC type unknown as it was late 1970s) - my sister and I had started the process of having additional screening etc. My mammogram and Ultrasound in Jan this year was clear - MRI last month showed something- which following a core biopsy has revealed 3mm ER/PR+ HER2- invasive lobular cancer. As I was already under care of private breast surgeon due to wanting extra screening etc- I feel grateful to have already talked to her about surgery options and possible surgery week of 12th January. I went for genetic testing this week and now wait to see results. Am weighing up option of double mastectomy(and reconstruction) - though surgeon has advised its very early and very small so lumpectomy and sentinel node surgery is a very feasible option too. Followed by radiation therapy and tamoxifen. If I chose a mastectomy it may reduce my need for radiation and tamoxifen.
Looking at the 3rd surgery in 1 month
Hi all, I have been diagnosed with Stage 1 breast cancer with two less than 2cm but fast growing grade 3 tumor in mid Sept and had the lumpectomy surgery to remove the tumor . however pathology report came back saying they found DCIS cells at the margin. So I quickly done a re-excision surgery in mid Oct. The second surgery hit me really hard for not only I felt more pain but also i felt way weaker. But this tues, the surgeon told me they find IDC cancer cells at another margin. Now the surgeon is saying you should do another lumpectomy re-excision surgery. Emotionally I am devastated. But I cannot understand why can't they do a MRI to double check the margin? Or is this newly grown mass? My surgeon was not very open in sharing information. I am now seeking 2nd opinion. But i am so worry it will delay my whole treatment process. Anyone has similar experience to go through multiple surgeries?
Early HER2+
I understand what Early is and I am grateful that I found something at the same time as my breastscreen mammogram and it is not in lymph glands, PET was also clear but they need a new name for Early. My treatment is starting 9/10 and will be Chemo (abraxane) & hercepton then surgery and radiation. I thought I had choice after doing a lot of research on trusted websites, listening to great podcasts and asking questions of my MDT but although they say I do they highly recommend the above plan. I am resolved to losing my hair and looking forward to the freedom no hair should bring me, I am self employed so can regulate my hours, I am active and look forward to keeping that going, as I know how good it makes me feel and again research shows, it helps us through chemo and everything else. What I struggle with is seeing others reactions to the news and seeing my husband frustrated by the time it takes to have tests and get things started. I would delay treatment even longer if I could but know that is not a good decision as the HER2+ is a grade 3. With a name like Early people seem to think 🤔 I will have an easy run, and I certainly hope I do but have read enough to know that I may not. People also say oh that’s good it’s not urgent then and not that bad. For someone who limits toxins as much as one can this is testing my self control to the limits and then having people say and think 🤔 it is going to be an easy road does not sit well with me. I am babbling and that is certainly something that has happened since diagnosis. I spent 24 hours in denial and 24 hours in why and have decided to tell only positive supportive people going forward and focus on things I can control and leave the rest to my team. thankyou for letting me rant and thankyou for all your encouraging posts and links which I have loved. Let’s kick this tumours out of here xWorking while waiting for surgery
Hi all, was diagnosed 3 weeks ago today with early stage and was told I’d be having surgery pretty quickly. Ended up having to have more tests to eliminate issues in the other side and thankfully that all seems to be clear. But that has meant I still don’t have a date for surgery (I should find out tomorrow hopefully). My question is about how you’ve all kept sane during this ‘limbo’ period. My emotions and anxiety are all over the place, I can’t really focus or concentrate so I’ve taken a fair few days off work. I’m lucky enough that I can work from home (when I’m up to it) and my boss is awesome but I weirdly feel guilty about taking time off as though I should be managing this better. I’m conscious my surgery might not be for another few weeks so feel I need to work out better ways to handle this. Any inputs welcome! Thanks.
Newbie…long story
Hi everyone, Newbie here. Never dreamt I would be joining this club, but who does ?! This forum and website have been so helpful to me over the past month. My journey started last June when I decided to speak with my GP about a tender spot right on the inside edge of my left breast. She reassured me that tenderness isn’t typically a symptom of breast cancer, but we would check it out. Got an ultrasound and mammogram. US identified a small mass, mammo some calcifications. Got an us biopsy around October, all clear. Then around Christmas I noticed some brown nipple discharge (took a while to accept it was coming from the nipple, thought I had spilt something…. Every few days in the same spot!!!). Back to the GP, another ultrasound. The report said there was “debris” in the duct, couldn’t exclude papilloma, MRI would confirm, surgical consult recommended. So off for the consult, after which I was told the discharge was due to trauma to the breast from the biopsy (they didn’t send me for the MRI). This was purely based on discussion and very brief examination. In hindsight and knowing what I do now, I would have pushed back and demanded the MRI regardless. Relief! But my GP wasn’t convinced. She sent me for an MRI then a consult with a specialist breast surgeon who, after looking at the MRI, immediately sent me for some MRI and stereotactic biopsies…2 in my left and one in the right. That was a bit of a marathon! I was convinced it was all a waste of time and money! I turned up to the surgeon for results unconcerned…obviously rather naive! “You’ve got a lot going on in your breasts!” were her first words. LCIS and papilloma in my right breast, DCIS and invasive Mucinous carcinoma in my left. I was speechless. Shocked. Bewildered. Confused. We briefly discussed next steps, but I couldn’t get out of there fast enough! I called my husband in tears. We went back together to the surgeon the following Monday, after doing a bit of research, lots of reading, and chatting with a wonderful McGrath Breast Care Nurse. After asking more questions, I decided on a left mastectomy and right lumpectomy. Plus sentinel node biopsy on the left. But I was so angry. How could the first surgeon send me away without really being sure??!! I went through all the feelings, disbelief, anger, sadness, grief, a bit more anger, and finally acceptance (mostly anyway!!). I realise I have to let go of the anger, and am taking it on as a learning - it’s important to advocate for our own health and not accept something too easily if it doesn’t seem right. Hubby and I had a two week holiday booked up north the following week, which the surgeon said was fine, so we booked surgery for August 13, ten days after we would get home. The holiday was great, we hadn’t told anyone at that point (except my mum and work). We were able to not think about it and had some really special time together. It was good to have the space and time to process what was happening. so now I’m one week post surgery, contemplating the future, keen to get back to everything I used to do. I had been training for a half marathon in September, which of course now won’t be happening. We are hiking the Overland Track in February, so that’s what I’m aiming for. I’m so very lucky to have an amazing, competent, supportive partner. He has taken the same time off work as me to support my recovery. He even washed my hair for me yesterday :-) Recovery is going pretty well, although I’m often still uncomfortable in bed. Getting the drain tube out a couple of days ago was wonderful! We go back to the surgeon next week (two weeks after surgery) for dressings etc and results. Fingers and toes are all crossed! Thanks for getting this far, there’s something a little cathartic in writing this down. I’ve really appreciated reading others stories, it helps with knowing we are not alone and the feelings are valid. Thank you :-) Belinda xx
What a whirlwind
Diagnosed last week with Triple Negative, picked up in my routine 2 yearly mammogram and I am heading into hospital on Friday for lump removal and sentinel node biopsy. The last 2 weeks have been like a whirlwind, both mentally and physically. I am already a cancer survivor, having been through kidney cancer 13 years ago. Lost a kidney but was caught early enough that I didn't need any further treatment. Thought that would be the end of my cancer journey. But unfortunately it wasn't. This time I have to have both chemo and radio and frankly I am petrified of what's to come. How did others get through those first few weeks when your mind feels jumbled and overloaded with info and in my case fear. Any tips appreciated. Thanks 🙂
Newly diagnosed, WLX / Lumpectomy - What's next ...
I had my routine MG at BreastScreen in mid-Nov 2022, and got called back to do further MG, US and biopsy after 2 weeks. On 8/12/2022 got told I'd got breast cancer ER+, PR+, HER2 pending. BreastScreen had also arranged my initial Oncology appointment in the public sector in a week time, and told me that my surgery would likely be in early Jan. Everything happening so fast, surgery for WLX (lumpectomy) and SLNB (3 nodes) was done on 5/1/2023. And result got back in 2 week time. It is breast cancer NST (15mm), Stage 1, Grade 2, -ve on all sentinel nodes, ER+/PR+/HER2-. In the post surgery visit, the registrar told me that I will have radiotherapy and hormone therapy. As for chemo, he told me that although it is HER2- and -ve on sentinel nodes, all the cases he'd seen for my age group would also have chemo. I'm thankful that all my treatment so far seems to be in a timely manner although I'm in the public system. But at the same time it's kind of in the dark and I can only see and make one or two weeks plan as I would have no idea when my next treatment starts, and for how long. My first radiation oncology appointment will be tomorrow and I still have not much clues in what should I ask. The medical oncology one is in March. So I guess, in between time I'll be occupied by radiotherapy. It always puzzle me that I hadn't do any CT / PET scan to check if any cancer got to other part of my body. Should I rely on the -ve sentinel nodes result? Or is it the public practice that they won't do the CT / PET scan if sentinel nodes are clear? Or should I ask for it? Who should I have it check out with? Although I've got told that my case is handled by the multidisciplinary team, but I only get to see each specialist one at a time, when one specialist had finished his/her work then move on to the next.
recovery and life
It has been a week since my surgery for the lumpectomy and node removal. Funny enough, I was not nervous. I went into surgery calm and with the attitude - I am in good hands. Surgery took a bit longer because I found out today they got a rather nasty surprise.....the lump measured 8.5 cm or 85mm instead of the 2.5 cm they thought it was going to be. In their words "it was angry". With my slightly dark sense of humour - all I thought was "you would be angry too if someone came and threw you out of your comfortable home!" However, i know that 'angry' is not a good phrase in medical terms. The nodes biopsy hauled out 5 and 4 came back positive with the 5th showing signs of being 'annoyed'...clearly another medical term for "Not happy Jan!' This afternoon, I am being 'rushed' in for a full body cat scan and on Monday a bone scan is to be done. The medical team were hoping for both scans to be done tomorrow so they could have the results to be back for the conference being held prior to our meeting Monday afternoon. Alas, they will only have the CT scan. The doctor was truly fantastic in her delivery of how things had gone and she gave me time to try and catch my breath again. Once we had finished talking, my Breast Care Nurse called and confirmed the appointments, requirements for them and then asked the important questions - "How are you feeling??" - shell shocked again but to be honest, I had a 'feeling' that there would be more to come. So, come Monday - a new ball game will begin and this time the team and I will be going in to win the game! Oh yes by the way - the scars have healed amazingly. had 1 really rough day out which had me in tears, I found as long as me and my new best friend - my little u-shaped pillow go everywhere together - I am comfortable. Hope you are all coping with the lock-downs and life is throwing you giggles, chuckles and laughter. Lois xx
