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OTISMYCAT's avatar
OTISMYCAT
Member
20 days ago

Tamoxifen..

Hi I had  been on Tamoxifen for 3 months. I'm post menopausal. I'm 64. I started getting a discharge after couple months and heavy feeling in bottom of stomach like having a period again. Haven't had one in 18 yrs. Also diagnosed with ongoing constipation. Told med onc she said get gp to do an xray of pelvis and u sound. Had Gray then trans vaginally u sound. Results..thickened uterus and possibly hyperplasia along with increased uterine volume. I am off Tamoxifen and have appt with Gyno at qe2 in Brisbane on 12th may. I am more nervous of this app than when diagnosed with ILC. Has anyone had this while being on Tamoxifen. I d like to have a historectomy I don't need my uterus annymore then I could go back on Tamoxifen. Stay safe.. Tanya xx

anxiety

5 Replies

  • Christina_BCNA's avatar
    Christina_BCNA
    Community Manager
    18 days ago

    Hi OTISMYCAT​ , as we wait for others to respond with their lived experience, I just wanted to reassure you that you’ve done all the right things in following this up with a gynae who can advise the best options for you. It makes perfect sense that this feels more worrying right now, new symptoms and waiting for answers can feel really unsettling. Be gentle with yourself in the lead-up to your appointment - we’re here with you 💫

  • JoSky's avatar
    JoSky
    Member
    16 days ago

    Hi there, sorry to hear of your side effects and hoping your appointment went well on the 12th. I'm 52, peri-menopausal and had a laprascopy hysterectomy last year due to fibroids before I knew I had IDC and very glad I did now. I've been on Tamoxifen - Nolvadex for one month after surgery and radiotherapy for IDC. Have terrible constipation, with some nausea, cold shivers and crazy itchy scalp, waiting on my breast care nurse to return my call to find out if this is normal. P.S. I recovered well from the hysterectomy and don't miss my uterus, cervix or fallopian tubes :) 

    • OTISMYCAT's avatar
      OTISMYCAT
      Member
      12 days ago

      Thankyou. My scalp is driving me crazy it's so itchy. I'm using elocon lotion to help. I have to wait 2 weeks for results from gyno. 

  • JoSky's avatar
    JoSky
    Member
    11 days ago

    Hi, I've been taking a Zyrtec every night and the itchy scalp has gone, and it stopped the itchiness the first night I took it. And bonus - my sleep has improved because Zyrtec causes drowsiness. All the best for the results from your gyno.