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Kari210's avatar
Kari210
New member
1 hour ago

Just diagnosed

Hi, I thought I would introduce myself here. I am 49 years old and have just been diagnosed (two days ago) with an Invasive Ductal Carcinoma in my left breast. HR+ HER 2 negative, provisional grade 1, 4 small lumps. 
Will be meeting my surgeon at RBWH next week on Wednesday. The last 11 days, since the Breast screen recall feel like a blur.  So much has happened and of course I didn’t anticipate any of that (lumps aren’t palpable). I have been directed here by the wonderful nurse from the Breast Screen and am very grateful to find so much support and information. 
I haven’t told my kids or friends yet so it feels good to be able to open up here. 

3 Replies

  • Hi Kari210​ 

    We are so sorry to see you joining our select little group  …. Whack up ANY questions that you may have, as we’ve all ‘been there, done that’ and all of us combined, should be able to give you a helpful answer. xx

    Everyone remembers the shock of hearing the ‘diagnosis:  “You've got breast cancer” ..... Causing sadness, distress and even anger.   It really mucks with your brain, sometimes even more than your body!  It can be highly stressful & upsetting in the early days of diagnosis - so if you feel a bit overwhelmed by it all, give the Helpline a bell on 1800 500 258 (Mon-Fri, 9-5) for a confidential chat with one of the Mods xx.

    Make sure you take a trusted friend or relative with you to all your meetings from now on (for physical and mental support - and also a 2nd set of ears!) & also consider recording them too, on your phone xx. It is almost impossible to remember everything that is said & this way you can go back over it in the quiet of your home & take notes. xx

    Also, make sure you stay away from “Dr Google’ (difficult tho it is) - as a lot of info there is not only out of date - it probably also isn’t even relative to your own diagnosis.  Going down that rabbit-hole will also muck with your brain.

    If you feel stressed/upset (which is 100% normal) Consider listening to Charlotte Tottman's Podcasts on her own experience with BC - as she explains it all very well xx  She is a specialist breast cancer Counsellor who had a double mastectomy following her own diagnosis, choosing to stay flat. She was surprised at her own reaction to the news/surgery/treatment, as she'd been counseling others for many years & thought she 'knew it all'!
    She has done 2 ‘podcast seasons' ... check out the 1st season, right from her diagnosis onwards and how she coped, then move on to the 2nd season. She is very easy to listen to & you'll probably recognise your own reactions in many of the podcasts. 

    http://www.drcharlottetottman.com.au/my-podcast.html

    Check out this thread too - there is a lot of info on the forum & what to take with you to hospital - even 'tick sheets' that you can fill in to take with you to your appointments on your mental & physical health .... this info has been gleaned from many of our members over the years ... I hope it helps you xx
    https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest

    take care & all the best for your Surgeon’s appointment next week.

  • Hi Kari210​ it is good to be able to open up in this forum.  I am 52, was diagnosed with early breast cancer (invasive ductal carcinoma) and the end of July and had my surgery last week.  There was a real shift for me post surgery, in the realisation that this is a long road, longer than anything I have traveled on before. And it will be different for everybody.

    It sounds like you are in Brisbane (the RBWH reference)? I am too.  Happy to chat/meet later down the track.  I wonder if there is ever any meet ups arranged by BCNA?

    • arpie's avatar
      arpie
      Member

      KalGal​  Sometimes BCNA has Webinars in various cities or towns ... but many of us just have informal 'meet & greets' when we know members are living nearby for a coffee & a chat!
      I've made some fantastic 'lifelong' friends from BCNA & are in regular contact with them, both on & off the forum!   ;)  
      You can use the personal messaging to chat with individual members too  😉