Just diagnosed - it's all moving so fast
Hi everyone, I was just diagnosed yesterday (Wednesday) with DCIS, plus a focal area of invasive carcinoma NST, provisional grade 2, ER and PR positive and HER2 negative. I meet with the surgeon tomorrow and it all just feels like it is happening so fast my mind is swirling. Very thankful to have found this site as I have already found so much useful information!85ViewsSign in to react to this post4Comments
Just diagnosed
Hi, I thought I would introduce myself here. I am 49 years old and have just been diagnosed (two days ago) with an Invasive Ductal Carcinoma in my left breast. HR+ HER 2 negative, provisional grade 1, 4 small lumps. Will be meeting my surgeon at RBWH next week on Wednesday. The last 11 days, since the Breast screen recall feel like a blur. So much has happened and of course I didn’t anticipate any of that (lumps aren’t palpable). I have been directed here by the wonderful nurse from the Breast Screen and am very grateful to find so much support and information. I haven’t told my kids or friends yet so it feels good to be able to open up here.ViewsSign in to react to this postComments
Waiting, waiting, waiting….
Hi all, diagnosed 1st September, multifocal invasive lobular carcinoma. Surgeons appt scheduled for 17 September. Surgeon has referred me for an mri with contrast. The surgeon completed my biopsies (3) in breast screen clinic, so I’ve met her. My biggest question now is how long do you wait for the mri apointment? They acknowledge receipt of ‘urgent referral’ on 2nd of September and now it’s the 10th, they’re telling me they are waiting on ‘protocols’, my breast care nurse is wonderful and is following it up along with me, how long did you all wait? I thought I was coping not too bad, but today it all just seems really cruel……?ViewsSign in to react to this postComments
Very difficult to listen the Podcast
Hi all, so I started listening to Charlotte's podcast. I just started the Episode 2. While this podcast is fantastic, I find it extremely hard to listen and my emotions just overcome me. I would love to know how is everyone going and what do you do to stay calm and not be a slobbering and emotional mess like me. 😔 Thank you everyone 💓ViewsSign in to react to this postComments
So it turns out waiting is not for me….
Hi everyone- my name is Jenni and I was diagnosed last Tuesday 28/07/26 with invasive ductal carcinoma and DCIS. I was told a surgeon would be in touch within the week after getting a referral the same day. I have since requested my GPs reception to forward the referral twice - and was met with such hostility I will change doctors. We found out today that the referral was still not sent and hadn't got to where it needed to go. So my husband did a round trip (over an hour as we live in rural Vic) and went and got a hard copy from my GP and took it to the cancer care clinic as instructed via phone- to be told they did not need it yet and he nicely insisted she take a copy and give it to my BC nurse - I am so overwhelmed- how quickly should surgery be happening? I’m sorry to vent but its been a lot ❤️🌸ViewsSign in to react to this postComments
Fear of the unknown
I have recently been diagnosed last week l had a lumpectomy and nodes removed for further examination and, now l am anxious fearful about the follow up appointment this week. I really would like to become an ostrich put my head in the sand as l am not looking forward to their findings.ViewsSign in to react to this postCommentsa difficult day
Today was my PET scan & also a CT scan. Awful. but I did it. I’m just still struggling with the enormity of it all. It’s surreal. I feel like I’m in a bad dream. And on the scan table I was wondering how the hell I got here. I’m scared. I cry lots. I know I’ve posted this before 🫶🏻 it’s good to be able to get it out! Thanks for listening 🌸ViewsSign in to react to this postCommentsDevastated and confused
Hi all, I have just been diagnosed with early breast cancer and I am absolutely devastated, confused and just overwhelmed. So much is going through my head and I am just beside myself. I am completely lost and would love to chat to others. Thank youViewsSign in to react to this postCommentsfloundering
Hey everyone Im new here and just found out I have invasive lobular carcinoma grade 2. I’m in shock after a whirlwind 2 weeks of tests. Today it’s hit me hard. I’m 68. I’m now taking Letrzole and surgery is 12th August. I’m having a lumpectomy and although no lymph nodes are involved, the surgeon is taking 3 nodes for testing. I am also dealing with CPTSD and all of this has triggered me. I just cry a lot. I don’t know who to turn to for support. I do have husband & family. I’m not sleeping which doesn’t help. It’s just so overwhelmingViewsSign in to react to this postComments
Feeling angry
I have recently been diagnosed and had a lumpectomy last Thursday. I’m feel fine not overly sore but tired. Mine was picked up on a mammograms so early and I’m very grateful and know how lucky I am. I’m ok with diagnosis 1 in 7 my turn. The issue is I’ve been through so much recently and I’m finding myself angry. Well the last 2 days. 2 knee replacements, fibromyalgia, depression, late adhd diagnosis at 62, mum with dementia I’ve had to put into care, I sold her house without her knowing which is heart breaking - no help from siblings and that just this year. Lol. I had a breakdown a few years ago through work, got divorced, my dog died and I burnt my nachos the other day. A bit of light relief. There is more but that will do. I’m exhausted keeping a lid on everything. I’ve spoken to my psychologist who suggested Emdr. I’m by myself and just so angry. My kids have their own lives and basically my safe place is my home (with a massive mortgage) and my dogs. I had started a wonderful new business but have had to put that on hold until I find out what happens next. Which is next Monday. This is not a why me post it’s a is it normal to be angry. Not all the time but it’s scathing and my dogs have heard some words that I have never mentioned before. I’m not really good at asking for help. And was disappointed with the support I received with my knee replacements so reluctant to go through that rejection again. I think maybe it’s the lack of control, not knowing where we go from here. Again I know how lucky I am and whatever treatment (looks like radiation and hormone therapy and possibly another op and chemo if it’s travelled) I will gladly do and be thankful. I guess I’m just bewildered and have no idea what’s normal and whats not. And if I’ve honest I’m teary too. Ok I feel lonely and unsupported as well.ViewsSign in to react to this postComments
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