Feeling overwhelmed
Hi thereAll I am 59, happily married, have two adult children. One grandson and baby no 2 due anyday now... Had surgery last week for lumpectomy and Sentinel node biopsy. Everything went well Saw surgeron yesterday . Lymph nodes are clear. Margins good. My issues is I am SO overwhelmed. Smiling for family. Smiling for friends. Little background. I had **bleep** cancer 10 years ago, back in 2016. Chemo and radiation. It was brutal. The burns were horrible. The exhaustion was the worst. Everyone is saying.... your so lucky you caught it early. You've done this before... you'll be right. Support is encouraging and I am lucky to be surrounded by lots of love. I am to be a grandmother again in two weeks and have a lively gorgeous 2 year old grandson. Timing suck.... I am overwhelmed with sadness I am overwhelmed With discourage, feeling of resentment. Feeling very isolated. **bleep** THIS CANCER... so sorry for language but it express how I feel. I want to shout. Cry. Hit something and hide under the covers and not deal with this. I know that I should be grateful. I am sick and exhausting from smiling on the outside, but paddling like hell of the inside. Hiding my emotions. I still work. Love the job. I work for a Toy library as assistant. Its not a stresing job. Only 3 days a week. They have been wonderful. How has everyone else cope. I know what I am going through is normal. Can anyone suggest a good cancer support group. I live in Victoria on the Mornington peninsula. Love and support to everyone going on this same journey Let's kick ass . Cancer sucks. XxxxxxNewly Diagnosed
Hi everyone, I was diagnosed on the 12 May with Invasive ductal Carcinoma ER + PR+ and HER 2 negative. I'm still getting my head around the situation. I stopped all forms of hormone therapy, for menopause when I was told about my diagnosis and am now experiencing more menopause symptoms, hot flushes, night sweats, lack of sleep, and aching joints. I've met with the surgeon this week and have decided to have a lumpectomy. I'm now waiting on a surgery date. I've collected my hormone blocking medication Tamoxifen and am planning to start this weekend. I'm worried about the side effects that I might experience and how it might affect my work as a disability support next week.
Tamoxifen..
Hi I had been on Tamoxifen for 3 months. I'm post menopausal. I'm 64. I started getting a discharge after couple months and heavy feeling in bottom of stomach like having a period again. Haven't had one in 18 yrs. Also diagnosed with ongoing constipation. Told med onc she said get gp to do an xray of pelvis and u sound. Had Gray then trans vaginally u sound. Results..thickened uterus and possibly hyperplasia along with increased uterine volume. I am off Tamoxifen and have appt with Gyno at qe2 in Brisbane on 12th may. I am more nervous of this app than when diagnosed with ILC. Has anyone had this while being on Tamoxifen. I d like to have a historectomy I don't need my uterus annymore then I could go back on Tamoxifen. Stay safe.. Tanya xx
Radiation Therapy
It's all been very quick diagnosed with stage 1, grade 1 invasive breast cancer, ER+ then appointment with surgeon 2 days later, lumpectomy and removal of two lymph nodes 4 days after seeing surgeon. Currently day 3 after surgery, home recovering. Get results on lymph nodes and margins next week. I'm trying not to think too far ahead, but ... I worry about radiation (been told 5 days a week for 4 weeks) and how it will affect me as I work full-time. Any advise on what I can do to make the next stage of treatment easier and what to expect ☺️Working while waiting for surgery
Hi all, was diagnosed 3 weeks ago today with early stage and was told I’d be having surgery pretty quickly. Ended up having to have more tests to eliminate issues in the other side and thankfully that all seems to be clear. But that has meant I still don’t have a date for surgery (I should find out tomorrow hopefully). My question is about how you’ve all kept sane during this ‘limbo’ period. My emotions and anxiety are all over the place, I can’t really focus or concentrate so I’ve taken a fair few days off work. I’m lucky enough that I can work from home (when I’m up to it) and my boss is awesome but I weirdly feel guilty about taking time off as though I should be managing this better. I’m conscious my surgery might not be for another few weeks so feel I need to work out better ways to handle this. Any inputs welcome! Thanks.
Newly diagnosed and waiting for appt. breast becoming more tender as I wait :-(
Hi there, I feel I’m in the difficult position of waiting four weeks between diagnosis and first surgeon appointment. Invasive lobular ER+ PR + HER2 - lump that I noticed in right breast a month ago. I’ve had the MRI done privately this week so the information is ready at that appointment. Trouble is the breast and armpit just feels increasingly niggly and slightly tender while I wait. I’m worried that it’s just growing/spreading as I wait. I don’t have private insurance, do have savings. but wanted to hold out for public and it being a more multi-disciplinary team. I’m really struggling wondering if I should have gone private and quick :-( Thank you x
I dont even know what my question is..
I got a lump out and thought nothing of it. The ultrasound and GP kind of indicated it was in the skin not the breast tissue. So when I got a call to go back to surgeon a little earlier, I thought they were just checking the wound care. Until they said its what it is and booked me in for another surgery (this week) and had MRI and CT and biopsy. On a referral it says possible IDC and DCIS. Im getting a call tomorrow and surgery Friday. GP told me the lymph nodes are positive. Its been a blur over Christmas. Will I ever think about something else or will it always be on my mind before bed and as and soon as I wake and every moment in between? I've 2 kids. Im scared.Emotional speed bumps
Hi, I'm trying to figure out how to prepare for life post-mastectomy. I got my diagnosis a week ago and have been managing well, but then I tried to join a FB group for people going flat and got hit hard by a gatekeeper question. The question was something like, "Have you had a mastectomy?" Options: 1. Yes 2. No, but I'm looking at my options 3. No, but I am supporting a loved one who has. The curious thing is that I felt completely left out by this option list. I wanted the option: No, but I am about to. I got all teary and had to write about it. Funny what sets us off. Anyway, I would love some tips about clothes to wear during recovery that are easy to manage and don't make me stand out.
Just diagnosed IDC HR++ Her2 low mulitocal, still awaiting further tests and freaking out!
Hi all nice to meet you all but wish it were under better circumstances. I have just been diagosed earlier this month for a check up that I thought was going to show nothing so I was really thrown. I have a least two 1.5cm lesions and a number of smaller ones they are not sure about yet. Just met with the breast team yesterday for my first appointment. They were all lovely but not much info yet as they need to run more tests. They did two more biopsies of lesions not done initially and also ordered a bone and CT scan as well as an MRI. I was expecting teh MRI as I have Very dense breast tissue. I was not expecting the bone and CT scan, which they said are staging scans, as given the size of the lesions I thought I was considered early breast cancer. She reassured me this was just standard practice for lesions over 1cm but I have been in a tail spin since worrying it is already stage 4. I have a 9 year old son, his dad is completely unreliable and probamatic so does not and will not be living with us anytime soon. I havebnt even told him about it yet as he's not in a potisiton to do anythign right now and it would just cause more stress. I am the sole provider for us and all I can worry about is what happens if I go down. Who pays the mortgage, who puts food on the table. I know this is all way down the line and I keep trying to bring myself back but it's so hard. I am usually a very rational person so this is killing me. My next lot of scans are on Sunday and Monday and my follow up appointment will be a week after that to give them time to review the results and discuss my case before coming up with a plan. On one hand I am terrified it's going to be worse case senario and on the other I am terrified it if is bad news they won't wait until my next appointment and they'll call just before christmas and I'll have to manbage that on my own without ruining my sons day. He's already had to deal with enough of an emotional rollercoaster with his dad I don't want to add more to that. I thought I was doing ok but I'm crumbling. Every ache or pain has me over analysing. I know the waiting is the hardest part. I almost think I would be handling it better on my own as it would be ok to fall apart but I have to stay strong for my son.
