Breast cancer diagnosis- did you have a Mirena in place, like me?

I was diagnosed with breast cancer 3.5 months ago and had a double mastectomy 3months ago. I am 44 years old.

I started doing some research as a number of people I know with breast cancer who were young also had a Mirena. There is new research coming out of:

-Europe that indicates that there is a 40% higher risk of breast cancer if you had a Mirena, and

-Germany that shows that the Mirena can change hormone levels in the breast based on scans

I had breast ultrasound scans that show I did not have breast cancer just before my Mirena was inserted 5 years ago, and that it developed post Mirena insertion. I had no genetic factors (based on testing), and no risk factors for breast cancer. It seems highly co-incidental.

I also looked up the FDA documentation for Mirena approval and it states that "Spontaneous reports of breast cancer have been received during postmarketing experience with Mirena. Because spontaneous reports and voluntary and from a population of uncertain size, it is not possible to use postmarketing data to estimate the frequency or establish causal relationship to drug exposure..."

I am keen to connect with other women who had a Mirena in place and then were diagnosed with breast cancer. If this is you, please respond to this post- I would love to hear your story!