Triple Positive HER2+

HiJ_Nelly I just pasted the link in a separate standalone reply in this thread. If I try to incorporate it in with this message error messages pop up. If you request to join the online administrators usually join us fairly promptly within a day. 
Just want to say huge congratulations on completing your chemo this week. It’s no cake walk so big salute for getting to this important milestone. Hope you’re feeling as well as can be. Once you are in the Triple Positive Group please do ask any questions and share your story there too! 

https://onlinenetwork.bcna.org.au/group/triplepositivebreastcancer

I have tried to include a link to the Triple Positive Group in my first reply to your message but unfortunately I keep hitting a blocker lollyshopgirl 

This link should take you to a list of all the Groups, just scroll down until you see the Triple Positive Group. There’s also a Lobular Group.

Category: Groups | BCNA Online Network

Hilollyshopgirl 

I am sorry to hear about your diagnosis and yes, it’s absolutely ok to discuss being diagnosed with Triple Positive here.

Suki mentioned that there’s a private Triple Positive Group join by clicking through the link and requesting to be added.

Good wishes for tomorrow’s first treatment my experience was that the nurses provide quite a bit of information at this first treatment. I had my doses intravenously and at the first treatment the nurses discussed getting a “port” inserted for the duration of my treatment. I don’t know if it’s been mentioned but it was something that made things easier because I am always told my veins are hard to find. 
I think the treatments affect each of us so differently so it’s worth keeping an open mind about it because you might have minimal side effects. I found I could always ask the nurse on the ward where I went for my treatments if I was uncertain about a side effect but also, you can always ask a question through this network about tips or suggestions. For example I found using Biotene helped with some of the side effects (a dry mouth) and having soups and crackers if I wasn’t feeling like a big meal. 

I echo Suki’s suggestion- even if you can manage 20-30 minutes walk or 3 x 10 minutes walk during the days after chemo I found being mobile and active useful. Eventually I discovered the oncology exercise rehabilitation program that was being offered by my hospital- a game changer for the good me.

Might I ask whereabouts you are located; there might be some of our members in the same area and they might know of other resources local to you? 
Will be thinking of you tomorrow 

Hi lollyshopgirl 

Sorry to hear of your diagnosis and that you didn't get to meet with a BC nurse.  Definitely follow up on the BC nurse, as they are very helpful.  Mine could visit while I was having chemo, so maybe ask if that is possible?

We have a private Triple Positive Group - you can select to join through "Groups" at the top menu.  But otherwise, there are awesome people who can provide you with their experience in this thread.

Chemo is daunting, but you do what you have to do.  I completed six rounds of TCHP chemo for triple positive cancer, one session every three weeks.  Make sure you tell your oncologist and the hospital about any side effects.

Be kind to yourself.  Eat whatever works for you and drink lots of water.  Take books, puzzles or whatever you like to do, as the first session of chemo takes quite a while (they go slowly to watch for any reaction).

Try to do some form of exercise (even just walking) over the time you are completing chemo, as it is known to provide both mental and physical benefits. 

All the best for tomorrow morning xx

HiSuki yes thanks - cannot believe it’s nearly a year since I started my “restoration (me) project” and feeling strong and how about you? 

Yes but the Group members who joined pre-31 March 2025 are no longer showing as members. There’s only 5 or so of us, compared to about 30 of us prior to 31 March