Triple Positive HER2+
Hi everyone BCNA Online Network established a Group with Triple Positive breast cancer which is useful also for people who might be HER2+ but not positive for oestrogen or progesterone. This post i...
Forum Discussion
I am sorry to hear about your diagnosis and yes, it’s absolutely ok to discuss being diagnosed with Triple Positive here.
Suki mentioned that there’s a private Triple Positive Group join by clicking through the link and requesting to be added.
Good wishes for tomorrow’s first treatment my experience was that the nurses provide quite a bit of information at this first treatment. I had my doses intravenously and at the first treatment the nurses discussed getting a “port” inserted for the duration of my treatment. I don’t know if it’s been mentioned but it was something that made things easier because I am always told my veins are hard to find.
I think the treatments affect each of us so differently so it’s worth keeping an open mind about it because you might have minimal side effects. I found I could always ask the nurse on the ward where I went for my treatments if I was uncertain about a side effect but also, you can always ask a question through this network about tips or suggestions. For example I found using Biotene helped with some of the side effects (a dry mouth) and having soups and crackers if I wasn’t feeling like a big meal.
I echo Suki’s suggestion- even if you can manage 20-30 minutes walk or 3 x 10 minutes walk during the days after chemo I found being mobile and active useful. Eventually I discovered the oncology exercise rehabilitation program that was being offered by my hospital- a game changer for the good me.
Might I ask whereabouts you are located; there might be some of our members in the same area and they might know of other resources local to you?
Will be thinking of you tomorrow
Hiya there.
Thank you for your lovely reply. Things changed within hours of me posting. Date of 1st Her2+ and chemo starts today now. l
It's early am and I can't sleep or keep still. After having orientation to treatment instead of actual treatment and 1 hour plus of side effects
I'm a bit of a mess.
There is good news, I've been transferred to the smaller and nicer hospital in Lilydale Vic and will maintain the one Oncologist through entire treatment - hooray! Maroondah was overwhelming and a blood test takes up to 2hours waiting.
Lilydale's Oncology nurses do your blood tests etc Great news.
All a few mins from home.
I found lumb 1st Feb. diagnosed 7th Feb. Had many biopsies and then markers implanted. Then heaps of other things ie PET scan, MRI, loads of scans on other organs finishing up last week with a colonoscopy. PET showed flares in a few places, all had to be excluded. Except one biopsy couldn't be done, near top tier lymph... All negative. Exhausting
Treatment 1st thing this morning. Wish I could sleep instead of trembling.
First time I've been anxious - the whole lead up is like many body slams - was ready for Tuesday. Now I'm undone.
Sorry to go on. I've never said so much about myself. Not even my friends know yet.
I'm single mum with four adult sons. They've been wonderful - wow- who knew they were made of solid gold. For that I'm am truly humbled.
Big smiles and regards