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Inspiration-Rising above
Hi everyone, this is my very first attempt of writing a post. I have read a lot of inspiring stories from a lot of inspirational women and thought I would try to share my story. I am on that crazy Breast Cancer Journey. It started back on the 16th December 2011, just over a week till Christmas, when I got the dreaded news…
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Chest looking like it has caved after double mastectomy
hi everyone. Just wondering if anyone has experienced this? for the last few days I have been feeling a "tugging" sore feeling over my mastectomy scar (double mastectomy 18 months ago, no chemo or radio). I checked the chest and I have an area beneath the scar on the chest wall that looks to have sunken. Any ideas what…
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Hormone Therapy
Hi Everyone I am feeling very grateful today ,I have been on Femara and 4 weekly infusions of Zometa for 12 months now and the results for the scans were good, at 6months they worse. January 2016 I was diagnosed with er+pr+her- metastatic breast cancer with mets in my bones. I had the primary back in 2002 , found early…
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Hair loss whilst not having treatment
Hi ladies, Has anyone experienced hair loss even though they are not having treatment? I am currently not on chemo or doing any treatment for my mets, yet in the last few weeks my hair is falling out. I haven't done any chemo since July this year when I took Xeloda for two weeks and ended up in hospital. Anyway my…
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Reconstruction with active bone mets?
Today I had an appointment with my oncologist to get my recent PET results. My last PET three months ago showed that my bone mets were inactive and almost resolved. So, today I thought I was going to be told the same and could get my name on the waiting list for a reconstruction. However, I was told that my bone mets…
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Immunotherapy for er+pr+ HER2-
it's wonderful to see that there are trials for triple negative metastatic bc. Are there trials for er+pr+ HER2- happening here at all? I have just returned from the Hallwang Clinic in Germany where I was given the GP2 vaccine as the Clinic tested my tumour which they sourced from Australia and I tested positive for HLA…
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Fulvestrant/Faslodex
Hi ladies, Saw my oncologist today & he wants to put me on Faslodex injections. Is anyone else having these injections and any side effects? Thanks Ange
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Duration of MBC?
Hi ladies - hope this question isn't too confronting, but I'd love to know how many years some of you have gone with "mets"??? One thing I struggled with at the outset was the "how long" question. I was diagnosed in Feb this year. The first oncologist mumbled about 10 years.... Obviously they don't know, and from what I…
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Depression over Mets
Hi Everyone, I'm new here and thought I would share my story. I was first diagnosed with breast cancer in November 2012. A lump was removed then 2 weeks later I went back in to get the lymph nodes removed. All went well with the op and all but then a year later another lump was discovered in the other breast so back into…
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Three weeks into my journey.
Hi everyone, i wanted to say hi and thank you to everyone for the useful comments puts on this page. I started my journey 3 weeks ago when I was diagnosed with breast cancer in my right breast after going to the doctor with a suspected hematoma to my breast after a simple fall. Sadly results came back with a diagnoses of…
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Stable bone mets - rising tumour markers
I posted this on Saturday - not as a "New Discussion" but at the end of my previous one - oops, still negotiating the online network ! You may recall that I recently had a bone scan as I had some "renewed pain" in my pelvis and upper femur Sometimes it is painful just sitting on the lounge. More comfortable to stand…
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3rd time - not so lucky .....
In 2003, I was diagnosed with breast cancer in my right breast. Lumpectomy (removal of lymph nodes which showed 6/15 were cancerous), followed by partial mastectomy due to non-clear margins (I did raise the question of a full mastectomy however my surgeon said "You are 37, young - I would advise against it).I underwent…
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Feeling confused
Hi lovely ladies, It's been a while since I posted on the forum but need to share my current thoughts. Earlier this year I was diagnosed with bone & liver mets. The oncologist advised that I should go on the oral chemo drug called Xeloda. I took the first course in July & ended up in hospital for three weeks with severe…