-
"Bubble of Disbelief"
The ‘bubble of disbelief’ is what I ask my supporters to burst and say ‘tricked ya’ when they ask ‘what can I do to help’. Breast cancer diagnosed just after my 60th birthday in 2012. Right mastectomy and just one chemo treatment which caused complications and I nearly lost my life. As a result, I didn’t proceed with the…
-
Secondary to Liver
Hi there, I have breast cancer which has now gone to my liver. I had it under control but my last CT showed the tumours have all grown back and quite large. I have been put on Everolimus and Exemestane (probably not spelt properly) but can't up my dose as I keep getting mouth ulcers. This is the last tablet they have for…
-
Here I go again
Today i have been told that i have secondary breast cancer in my spine. So here we go again. I was first diagnosed with primary breast cancer in April 2012, after several months that included 3 surguries, 9 lots of chemo and 10 weeks of radiation, I was left with some side effects that I may not be happy with but learning…
-
initial diagnosis of stage 4
Hi everyone, I was lying in bed last night thinking thinking as you do, and i am wondering just how many of us out there were initially diagnosed with stage 4 metastic breast cancer, I had been having my mammograms every two years and then three months before my next one I had excrutiating pain in my left breast, went to…
-
Dealing with secondary TNBC
Hi there My name is Jenny. I'm 36 and have just been diagnosed with secondary TNBC in my lungs. I was originally diagnosed with breast cancer early August and have just completed 3 rounds of TC to find out that recent scans show some nodes on my lungs have grown - aka secondary cancer. Something no one, including my…
-
Things you wish you had know!
Hi, I am Shelli, For those that don't know me I am 39, stage 4 bi-lateral breast cancer with mets to the bones. Fun hey! Not really. I have just been though 6 rounds of Dotax, Herceptin and Perjeta. I am currently on the Herceptin and the Perjeta every 3 weeks for the rest of my life until they wont work anymore so…
-
What a Year
Given the time of year, I want to share some joy and much happiness. I have been living with Secondary Breast Cancer for 8 years. I am HER2 Positive and my body has been through the mill many times with bone and brain metastases. This is my reality which I now embrace as part of me and consequently I enjoy every day and…
-
Meeting with Pharmaceutical Company Eisai
On Tuesday 16 September I represented BCNA as a Consumer Representative as a guest speaker at a luncheon being part of an internal conference run by Eisia, Eisai is a global research orientated pharmaceutical company committed to improving the health and all individuals worldwide regardless of wealth or geography. A drug…