Things you wish you had know!
Hi, I am Shelli,
For those that don't know me I am 39, stage 4 bi-lateral breast cancer with mets to the bones. Fun hey! Not really. I have just been though 6 rounds of Dotax, Herceptin and Perjeta.
I am currently on the Herceptin and the Perjeta every 3 weeks for the rest of my life until they wont work anymore so hopefully a long time, and also about to have a double maestecomy in December. It has been on heck of a rollercoater of a year.
But why am I here and asking! I am putting together a pocket notebook of all the things you wish you knew when you were starting out, (and not the medical hand outs and the long books and the marketing material you are given- the real deal stuff that can help you) especially from diagnosis to chemo, to share with people just starting on this journey.
There is so much out there for prevention and cure but not enough fo the patients that are in the thick of it! I found myself very lost and confused through the process, but also found some great things that I think have all been through that we could all share!
So, if you have anything from products, tips and tricks, things that happen to your body that no one tells you about, the things that scare you (like losing my hair was more confronting that having the chemo) and more.......
I would love to hear about them here! Also any of the funny stories...... I have one where my boob exploded gunk on the mirror - I was so scared at the time but now its actually quite funny....
I look forward to hearing all your stories - Please share!
LOVE Shelli xx