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holly1981's avatar
holly1981
Member
10 years ago

Yet another new girl

Hello everyone

My name is Holly. I am 34yrs old and was diagnosed with stage 1, grade 3 invasive breast cancer in June this year. My tumour was very weakly receptor positive ER+1 and Pr+1 HER2-. No family history of breast cancers so just damn unlucky I guess. It's taken me a while to try and digest this diagnosis and be ready to receive help but i've finally joined up to seek some much needed support.

I had a partial mastectomy in June followed by four rounds of chemo every three weeks. Wow what a rough ride that is! Finally finished chemo and now waiting to start 6 1/2 weeks of radio starting next week. Then to be followed by hormone therapy, Tamoxifen I think, even though they say it probably won't help me that much as my receptor status was so weak. At my age you try anything though right?!

Not sure how most young women feel at the beginning and i'm sure it's never fun, but it's certainly been no picnic for me! To say that I am lost, confused, angry, bewildered, depressed, fearful, frustrated and just downright sad at the whole thing would have to be the understatement of the century!

I have always been the strong one in my family, the glue that holds everything together, but now I feel totally helpless and so do they. Is it normal to feel so totally disconnected from the world in general? It's like i'm living someone else's life having been robbed of my own young life in ways I never thought would be possible. 

Having been made redundant earlier this year and separated from my husband only 1 week before my cancer diagnosis, I am now suddenly faced with being alone, having no hair, bad nerve pain, puffiness from the dex, suffering with terrible night sweats and hot flushes having been thrown into early chemo induced menopause and the prospect of no children to name just a few. Hello, self esteem, where are you?

I am trying to stay really positive and have managed to keep smiling so far (mostly anyway) but sometimes it's all just a bit much when each new appointment seems to bring up more issues to contemplate and bad news to deal with. Does it ever get any easier? I miss my happy confident self and feel like i'm being punished for something but i'm not sure what it is. Can't help feeling like i've done something wrong, Is this normal?

Cheers ladies, sorry to sound so dreary, it's nothing like me normally I promise!! Any comments or tips on how others get through the beginning would be appreciated, thanks :)

17 Replies

  • Hi Holly,

    Welcome to the network. It's the support group that has been my lifeline.  You've been through a lot. And Yes there are so many different breast cancers that everyone's treatment is slightly different depending on the pathology. 

    Contact the Look good Feel better to attend a workshop.  I had a fun day sitting with a bald head being pampered with makeup, and tried various wigs. I found various ways to tie scarves from youtube. There's also a young women's support group online here and also through cancer council.  I joined a yoga group during my chemo at the Chris O'Brien lifehouse, most of us are BC women of all ages.  It's been invigorating, relaxing and a great way to meet other women (we have lunch afterwards). I'm sure most hospitals now have yoga.

    What you're experiencing is entirely normal with the emotions. The amount of times I've cried in doctors' surgeries and gone through tissue boxes at home.  You haven't done anything wrong (I thought that too!) It doesn't help when doctors can't give you a cause. We don't feel sick but the treatment makes us sick. 

    I've found the menopause symptoms to be depressing, no sleep doesn't help and I've started taking remifemin (recommended by my oncologist)Exercise is the key too, even just a walk.

    Take one thing at a time,

    Sending you a big hug,

    Karen xx

  • Hey holly. 

    Sounds like you have lots to deal with. Take it one step at a time dont look too far ahead as it can be overwhelming.

    You will always have friends here that understand from experience. Everyone reacts differently to treatment so dont beat yourself up over what may happen. I planned for the absolute worse possible  scenario and found that chemo wasnt anywhere near as bad as i expected. A lot of the side effects can be treated so make sure you let your oncologist know what you are feeling. Its important to stay positive with baby steps you will surprise yourself how you will breeze through it all.

    Sending positive vibes your way and dont hesitate to ask questions here as there are ladies always happy to help. ??????

    Maryrose 

  • I am so so sorry you have to go through this - it sucks so much

    you have come to the right place for support - we all get it 

    Your feelings sound completely normal but access a psychologist if you need to, they can help

    What a lot of losses you have had to deal with this year :(

    hugs !!!!

     

  • Hi Holly welcome to the site, so glad that you have found this site there is alot of support here. I'm pretty sure there is a young womens group here that you might like to connect with.Treatment varies for everyone it is a tough trip, ask for help from where ever you can get it. No need to apoligise the amount of times I have got on to vent and the ladies have come out and chatted, it helps.

    Take care and one day at a time xx

  • Anonymous's avatar
    Anonymous

    Hi Holly, and welcome to the network. Sounds like you've already been through so much. I hope that you have someone close to support you, be it family or friends. Try and link up with a local breast you support group, it's good to meet with people who know what you're going through. My breast care nurse linked me with my group. Have you been to a Look Good, Feel Better workshop ? They give you cosmetics, and show you how to use them, they also demonstrate nice hats and head wear, along with linking you with a local wig bank. My only advice is to remember how strong you really are, look what you've coped with already. You are remarkable girl, put that lippy on every day, hold your head up and be proud of yourself. Sending you a big cuddle, Trace ??????

  • Thank you Chriss

    I know what you mean, I only broke down once so far when I went for genetic testing last week! They are testing me anyway even without family history as my type was so aggressive for my age. I have only had a lumpectomy/partial at this stage but am currently waiting on more biopsy and genetic test results that may mean I will need to do bilateral mastectomy. Scary phase right now! I didn't want mastectomy straight off as I haven't had any children yet and went through IVF round before I started chemo to try keep that option open. 

    You are so strong Chriss, what a huge decision, but very wise with a young family as you say. Good on you :)

  • Hi Holly1981 and welcome.... Newbie here too and yes no family history here either.  I guess we are the "lucky" ones.  Yes I was the strong one in family and keeping it all together, with a hubby and 3 teenage kids you have too, but now I have put my hands up and said ok now you guys have to take care of me..... I'm very strong in the sense I have not broken down yet except when told I have BC, now I'm ready to start the fight and get on with what I have to do.

    Can I ask did you have a lumpectomy or a mastectomy first?  I had lumpectomy, now chemo and then made decision for mastectomy.

    Be positive and stay strong no matter how hard it is.

    Chriss