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0608hev's avatar
0608hev
Member
7 years ago

Recurrence

I were first diagnosed in 2011 and had lumpectomy followed by chemo and radiation I then had a local recurrence in 2015 and had a double masectomy and reconstruction followed by more chemo and then daily letrozole  tablet I have just been diagnosed with another local recurrence in my reconstructed breast I have had surgery to remove the lump and are awaiting the results. I am wandering what sort of treatment I will have as I have been told different things .It sounds crazy but I almost want more chemo as cancer has returned twice with chemo and it scares me to think what could happen if I don't have chemo.
Anyone been in a similar situation.
  • Hi @0608hev. This BC just doesn't give up sometimes. I had BC in 2005, then again in 2009. Chemo both times and rads in 05. Tamoxifen then Zoladex. I thought I was done then in May another big dcis. I had a left mastectomy in 09, right side mast in May. I didnt do reconstructions for a range of reasons. My surgeon is confident I won't need further treatment as there were no nodes involved but I find out this week after her case conference with oncs. The thought of chemo again caused me nightmares but so does the thought of no further treatment. I am terrified that surgery isn't enough. Your doctors will consider type, any possibility of node involvement and other factors in treatment decisions. I have read many wise words from other ladies here to the effect that as difficult as it is not to worry about whats going to happen, to try and wait until you have all the info. It's not easy to do.    Have your list of questions ready for the doctor when you see him/her next. Do you know when you will have the full results? Do you mind if I ask who has been giving you the different information? It took me awhile to come on here but these ladies are amazing. So much wonderful support and good advice.  Keep in touch.  :) 
  • I too had my first diagnosis in 2011 and a recurrence in 2015 same breast, same spot :/ in the scar tissue. I did Chemo and 1yr after in 2017 I had a single mastectomy/diep flap reconstruction. I am so sorry to hear of what has happened, I know how I felt after my last bout, speechless. Im currently going on 3yrs clear so I too wonder how they will proceed. Keep us up to date how your pathology comes back. Thinking of you x Melinda
  • Oh, what a nightmare. I had a recurrence 10 years after the primary. So, over a period of 12 years lumpectomy, Double mastectomy, reconstruction, repositioning/repair X 4, AC chemo, TC chemo, rads, tamoxifen, Letrazole, Anastrozole,  auxillary clearance, ovaries out....not necessarily in that order. What do you have to get free of this shit?  I,  too, wonder what happens if I have another non metastatic event, how many potential 'cures' are there? I really struggled to commit to the last chemo as it obviously didn't work the first time. Or maybe it did. You may be a rare enough breed to qualify  for some sort of trial,  depends where you live. Best of luck, I'm looking over my shoulder (or under my tortured armpits) all the time too. Marg xxx
  • Oh dear you are having a rotten run with this, I am so sorry. What a bugger of a disease this is. I'm sorry I can't help you with your question. However having just had a reconstruction myself I am curious as to where yours has occurred. If you don't mind me asking that is. I queried this with my breast surgeon last time I saw him and he said recurrences in reconstructed breasts (I had a DIEP) can occur in the scars, the chest wall, the fold of tissue underneath the foob, just under the skin and the armpit. Quite a long list despite all we do to eliminate the risk.