Recurrence group?

Question

Hi everyone I am a few months into treatment for a local recurrence. It’s hard to find people who have gone through or are going through something similar. Any threads or group discussions you could recommend would be helpful. Only looking for experiences of others and not academic or medical journals etc (I think I’ve read them all 😂😂)Thank you!!

mez_bcna · Answer

@Esjay very good point about the 'fear of recurrence' info vs someone who has had a recurrence. We have taken this feedback to our Content team for consideration when updating future supporting information in our resources. @arpie good suggestion - we are holding off on any new groups just for a very short time, however it is the second one on my list to consider in 2025&nbsp; :) very valid points and hopefully for now the Online Network can provide support for you @deekay77

arpie · Answer

So sorry about your recurrence, @deekay77 and @Esjay xx.... I think a private group For Recurrence Members would be a terrific idea &amp; give you immediate support and access to others who've been diagnosed. I'll tag @Mez_BCNA to see if she may be able to get it up &amp; running.I've done a search here on ''local recurrence'' and I am sure you'll find some threads here that may help you .... Clicking on the Liz O'Riordan link might help too - she is a UK Breast Surgeon who was diagnosed with BC and has had 2 x recurrences ..... she has a very interesting blog where you can follow her story from her 'D Day' (Diagnosis Day) up to the present ... and has also written a couple of books about Breast Cancer. She is very active on Instagram with lots of VERY informative posts on anything to do with BC.https://onlinenetwork.bcna.org.au/search?domain=all_content&amp;query=%22local%20recurrence%22&amp;sort=-dateInserted&amp;scope=site&amp;source=communityTake care &amp; all the best xx

tri · Answer

What a good idea - it would make the pathway to targeted information and support very clear.&nbsp;

melzzs · Answer

I also think a group for recurrence would be good it's always in the back of my mind.

esjay · Answer

Hello Deekay77,&nbsp;I'm on your rollercoaster too!&nbsp;I've had similar issues trying to navigate. There simply isn't much info out there on recurrence. It would be great to see advice on how to manage a recurrence diagnosis both with the mental adjustment as well as medical treatment options. Everything seems to focus on the fear of recurrence but what about when it actually happens?It's a bit like hitting replay, but at the same time it's a new experience that I would love to hear from others what their new course of action involved.