Recurrence group?

Hello Deekay77, 
I'm on your rollercoaster too! 
I've had similar issues trying to navigate. There simply isn't much info out there on recurrence. It would be great to see advice on how to manage a recurrence diagnosis both with the mental adjustment as well as medical treatment options. Everything seems to focus on the fear of recurrence but what about when it actually happens?
It's a bit like hitting replay, but at the same time it's a new experience that I would love to hear from others what their new course of action involved.

So sorry about your recurrence, @deekay77 and @Esjay xx
.... I think a private group For Recurrence Members would be a terrific idea & give you immediate support and access to others who've been diagnosed. I'll tag @Mez_BCNA to see if she may be able to get it up & running.

I've done a search here on ''local recurrence'' and I am sure you'll find some threads here that may help you ....

Clicking on the Liz O'Riordan link might help too - she is a UK Breast Surgeon who was diagnosed with BC and has had 2 x recurrences ..... she has a very interesting blog where you can follow her story from her 'D Day' (Diagnosis Day) up to the present ... and has also written a couple of books about Breast Cancer. She is very active on Instagram with lots of VERY informative posts on anything to do with BC.

https://onlinenetwork.bcna.org.au/search?domain=all_content&query=%22local%20recurrence%22&sort=-dateInserted&scope=site&source=community

Take care & all the best xx

What a good idea - it would make the pathway to targeted information and support very clear. 

Thanks @arpie - really appreciate your help and suggestions. 

@Esjay very good point about the 'fear of recurrence' info vs someone who has had a recurrence. We have taken this feedback to our Content team for consideration when updating future supporting information in our resources. @arpie good suggestion - we are holding off on any new groups just for a very short time, however it is the second one on my list to consider in 2025  :) very valid points and hopefully for now the Online Network can provide support for you @deekay77

Thanks @deekay77
Not sure you want to hear my story..it sends shivers down everyones back ...if you look at my profile you'll see it there. I'm very fortunate to have a brilliant medical team & fantastic family to support. It's all about hanging on tight for the ride! 

I also think a group for recurrence would be good it's always in the back of my mind.

Thanks for starting this topic. I have been reading posts here for about 3 months but haven’t found the right time or place for me to comment. 

Hi @SarahS0309
OMG - roller coaster for you is an understatement! I’m so sorry about your recurrence…just at the five year mark too!’ 

@deekay77 it is being treated as a new cancer. All the Dr's have said I might just be unlucky!

Hope you get through your radiation ok. Just one day at a time is how I see it. 

I have great friends and family support. Unfortunately my brother in law was diagnosed with Stage 4 bowel cancer in February. He was here for a few weeks recently but is now really unwell home in London. So my husband is flying there next Thursday indefinitely to help out etc. We have had a super challenging year with this and then my stuff just added to it! Oh and we are renovating our house....

Friday tomorrow so I hope you and everyone else has a good day and enjoy the weekend ahead. X