Newly diagnosed and waiting for appt. breast becoming more tender as I wait :-(
Hi there, I feel I’m in the difficult position of waiting four weeks between diagnosis and first surgeon appointment. Invasive lobular ER+ PR + HER2 - lump that I noticed in right breast a month ago. I’ve had the MRI done privately this week so the information is ready at that appointment. Trouble is the breast and armpit just feels increasingly niggly and slightly tender while I wait. I’m worried that it’s just growing/spreading as I wait. I don’t have private insurance, do have savings. but wanted to hold out for public and it being a more multi-disciplinary team. I’m really struggling wondering if I should have gone private and quick :-( Thank you x
Recurrence group?
Hi everyone I am a few months into treatment for a local recurrence. It’s hard to find people who have gone through or are going through something similar. Any threads or group discussions you could recommend would be helpful. Only looking for experiences of others and not academic or medical journals etc (I think I’ve read them all 😂😂) Thank you!!New diagnosis triple negative BC
Hi all, I'm having a bit of difficulty reaching out to talk to anyone going through a similar experience - I'm 27 and just diagnosed with triple BC. I've joined the young persons group and awaiting to join triple negative group. I'm in the limbo period of waiting to be referred to oncologist and awaiting appt with the surgeon, so I really don't know anything yet. I suppose I'm just wanting reassurance and support from someone that has go e through a similar experience or maybe if anyone has any recommendations for other places I can go to for support, I've contacted a breast cancer nurse, but I haven't heard back yet. Thank you!
Hi from a newbie
Hi, I’m Helen and part one of my journey has flown by. Last year was a difficult year personally, so this year I decided it was time for ‘rebuilding’ - on my list was to go and have my first mammogram. I went to the Rose Clinic in David Jones for a mammogram in July, thinking nothing of it - then got a call to attend breast screening at SCGH (Perth) and was diagnosed on the day with a small cancer in each breast - ie 2 cancers, one lobular, the other ductal and more aggressive. Both the hormone positive kind. In September I had a bilateral mastectomy with lymph nodes taken on my right side (2 nodes did have cancer). A tiny margin of cancer was found to have headed toward the pectoral muscle. Now I am being asked to do everything - radiotherapy/chemotherapy/hormonal tablets, because I’m considered young at 54. I probably will but it seems like a lot. Yesterday an oncologist told me that mammogram saved my life! I’m married with three teenage daughters and a cheeky Jack Russell. I’m an Aspie (very mildly autistic), and a Christian which is helping me a lot with this journey to date, but it’s still hard! By the way my mother had breast cancer, twice, but later than me - at age 70 then in her eighties. It wasn’t considered relevant but now with my having two separate tumours I’m being sent for genetic testing. I don’t know if we’re supposed to introduce ourselves and not just our cancer situation, but I guess that’s what’s mostly on my mind just now. Wishing you all the very best, Helen 🙂
Recently diagnosed
Hi all I am new here and while would have preferred not to know about this network, I have found comfort and such helpful advice in the My Journey resources and these posts. I am a 64YO wife, mother and Nanna who loves my job caring for young people. I was diagnosed with TNBC on 20 July, following a mammogram. The shock was just overwhelming. I have found the negative overthinking and anxiety levels very difficult and something that took significant effort to keep in check. I had surgery 4 August and am due to start chemo in 10 days. I am hoping to be able to keeping working during chemo🤞 on some level, so would love to hear any advice or hints around this and preparing for chemo. Take care and thanks for posting your stories and taking the time to read my post 🌸
Newly diagnosed, WLX / Lumpectomy - What's next ...
I had my routine MG at BreastScreen in mid-Nov 2022, and got called back to do further MG, US and biopsy after 2 weeks. On 8/12/2022 got told I'd got breast cancer ER+, PR+, HER2 pending. BreastScreen had also arranged my initial Oncology appointment in the public sector in a week time, and told me that my surgery would likely be in early Jan. Everything happening so fast, surgery for WLX (lumpectomy) and SLNB (3 nodes) was done on 5/1/2023. And result got back in 2 week time. It is breast cancer NST (15mm), Stage 1, Grade 2, -ve on all sentinel nodes, ER+/PR+/HER2-. In the post surgery visit, the registrar told me that I will have radiotherapy and hormone therapy. As for chemo, he told me that although it is HER2- and -ve on sentinel nodes, all the cases he'd seen for my age group would also have chemo. I'm thankful that all my treatment so far seems to be in a timely manner although I'm in the public system. But at the same time it's kind of in the dark and I can only see and make one or two weeks plan as I would have no idea when my next treatment starts, and for how long. My first radiation oncology appointment will be tomorrow and I still have not much clues in what should I ask. The medical oncology one is in March. So I guess, in between time I'll be occupied by radiotherapy. It always puzzle me that I hadn't do any CT / PET scan to check if any cancer got to other part of my body. Should I rely on the -ve sentinel nodes result? Or is it the public practice that they won't do the CT / PET scan if sentinel nodes are clear? Or should I ask for it? Who should I have it check out with? Although I've got told that my case is handled by the multidisciplinary team, but I only get to see each specialist one at a time, when one specialist had finished his/her work then move on to the next.
Newly diagnosed
I had my first mammogram and Ultra sound in May this year and everything looks all good. Some time in July noticed a lump and went for second Ultra Sound. It came back as breast tissue nothing to concern - no lump. Even though I still feels it on my left breast. Gone back to GP after 2 months and referred to a breast specialist. Had my third ultra sound and this time not looking good. Went for CT Scan, Bone Scan and biosy. Deep down I knew it's going to be cancerous. I cried after my third ultra sound result, I cried after my biosy. But today when my doctor broke the news to me and my husband, I was calm. My cancer has spread to my arm pit, CT scan and bone scan came up OK but I am being sent to do a PET scan next Monday. I read a lot of stories on BCNA and trying to seek for some comfort that everything will be alright... in the same time I am overwhelmed with informations.Newbie triple negative
Hi everyone I was diagnosed in December with triple negative bc. I’ve been visiting this wonderful forum probably daily, but have only now had the courage to join. I’m currently having fortnightly dose dense ac chemo, about to have my third round and am feeling really anxious about it. I found the second round a lot more challenging than the first and am worried about how the third round will go - and just looking for some support I guess. I don’t really have a question just wanted to join this lovely supportive network and say hi.
