Unintended Consequence

@Anne65 I have my endocronologists appointment in September so will be asking on future plans. It's pretty stable now. 
 Either way its a tablet a day. 

@kmakm Thanks for your story. You poor thing, why am I not surprised you have a thyroid condition along with everything else you have had to endure. Sounds like your thyroxine is keeping your levels normal & if I end up having radioactive iodine to have my thyroid shrunk, then I will be on thyroxine forever as over active thyroid will then be under active!! I was on medication for over 20 years but was then taken off but a few years later, it has returned. Interesting that your function hasnt changed with all you've been through. yes, thyroid probs are quite common among us but it does seem like there are many controversies & differing opinions out there depending on which doc you speak to. xx

@Scaredycat Sounds like you have had many battles with your thyroid but great to hear that since your surgery, you have felt much better. I am very interested to see what is my next step & I reckon it depends on which doc you speak to! It took the doctors ages to even diagnose my condition. I couldn't even go into a heated building as I would faint & my hubby had to sit in the bathroom while I had a shower as I would faint then also. I agree that thyroid probs are very interesting & often perplexing to many doctors!!xx

@primek Another Graves disease sufferer!! Very interesting to hear yours returned for the 3rd time around bc time. Are you on your medication forever now & has that stabilised your condition? i was on propythiouruacil for around 20 years but it can  be quite toxic to your liver & you're only supposed to be on it for a short time!! Around 3 years ago, the endo took me off it & my blood was fine for a few years until now. I am booked in for a thyroid scan in a few weeks & then i see another doctor to discuss my results & a path moving forward. i will mention your medication to him instead of the drug I was on & see if that is a better path than having the radioactive iodine to shrink the gland completely. I will take along all my blood tests & tell him about my neutropenia & Vit D levels & see what this doctor has to say. Thanks for your feedback. xx

My Graves disease resurfaced for tbe 3rd around the time my breast cancer was diagnosed and i missed the swing because I was so bloody stressed and post surgery I attributed symptoms to that. I am on carbemazole and have remained on since treatment. My endocrinologist didn't want to do the radioactive iodine as we first decided if it returned as he felt my body had enough for now.
As to neutropenia...I doubt its related to Graves.
I guess all you can do is treat the symptoms of all...as potentially it could cause major health risks if not.

This thread is giving me much to think about. I do have low vitamin D levels which is common re my arthritis issues. I didn’t know that there was a link re breast cancer as well. I don’t have a family history of breast cancer but I do have low levels of Vit D.
In regards to thyroids, I really don’t think anyone fully understands thyroids yet. I had a multinodular thyroid which had to be totally removed due to the size. However, the thyroid functions were apparently normal....... The hospital lost my file for a few years, once followed up & further tests, I had high blood calcium levels caused by a tumour on one of my parathyroid glands. I ended up having a total thyroidectomy & two of the 4 parathyroid glands removed.
after the surgery, I felt fantastic ....... I realised that I’d been feeling crap & seriously unwell for at least ten yrs. 
Hence, why I don’t believe my thyroid could have been functioning ‘normal’ when it was multinodular & prior to the tumour on the parathyroid test.
 I do feel that there is more to our thyroids than has been discovered/fully understood at this time. Just my personal view from my own experiences 

I have had Hashimoto's (an underactive thyroid) for almost 20 years. I take my thyroxine and that's pretty much it. However I do a deep internet dive every now and then and it seems to be an area where many doctors are highly dismissive. It's my perception that there's a lot of controversy out there about how seriously to take and treat thyroid conditions. So I'm not surprised by the reaction you've had from your doctor.

For the record, my BC diagnosis and treatment has not changed my thyroid function. Good luck, K xox

As alluded to above, I recently visited an endocrinologist following a few hiccups in my recent blood test. It showed my Vit D level has dropped which sounds common among a lot of us especially during winter. It also showed I had moderate neutropenia (low white blood cell count) & my Graves disease (over active thyroid) had returned after being in "remission" for a few years. I asked the specialist if all these abnormalities are related & could any of them have been caused by/realted to my bc & rad treatment & he said NO & dismissed it. I have been playing "Dr Google", which I know you shouldnt, but i seem to be finding a few websites/studies that have a common linkage. has anyone else had a similar experience as it seemed like this doctor is looking at just "killing off" my thyroid as an easy option instead of linking all the pieces together & hoping this will cure my neutropenia also? Thanks for any help!! xx

I take vitamin D every day, all blood test are good while I take it

My oncologist makes me take a vitamin D supplement as mine was low and when I was diagnosed and she said there was a correlation between low vitamin D and breast cancer. I have always eaten a lot of mushrooms too but didn’t do enough. Luckily now my vitamin D seems to be great. 

Thanks @Anne65, I will, just devoured some lentil bolognaise with mushies, zucchini, lentils, tomotoes...........I don't even bother with mince bolognaise anymore, everyone eats this one!
It is hard to get more sun when there just isn't any :( so I purposely don't buy foundation with sunscreen anymore either (and I've had melanoma) as I think I'm sensible enough to get out of the sun when I think I've had enough rays.
Sorry to hear about your Graves disease, cancer does have that domino effect , upsetting other bits and bobs.....I have too many stories to tell on that subject....maybe another day!
Sending you hugs too and hoping it all settles down soon . xo

@poodlejules That is great news!! I went for my annual full blood test the other week & unfortunately my Vit D was a little low. GP said I could take a supplement or just get more sunshine but the later is a bit hard in the middle of winter so, even though I prefer to get my vitamin/mineral intake from food, i am now taking a tablet once a day. i am a vegetarian so eat HEAPS of mushrooms...meat for vegetarians.......so maybe my reading would have been a lot lower, if I hadnt been eating my mushies!!  GP said that following my BC surgery & also having ovaries/tubes removed, its not uncommon for this to effect your vitamin levels. My blood test did reveal however, that my Graves disease(over active thyroid) has returned, after being in "remission" for a few years  & my levels were scarily low so now I'm off to an endocrinologist. Again, this could all be due to what I've been through the last couple of years. I guess one thing effects another so thats why its important to keep having regular blood tests/bone density tests etc to make sure us ladies continue in the best health possible. Enjoy those mushrooms!!  Love & hugs xx