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Anonymous
14 years ago

It's scary stuff...

I lay in bed awake at night...is this chemo working? Is the Herceptin working? Are the tumours shrinking? ...Stable? Is this cancer spreading?...to my brain? bones? liver? skin?...Or has the whole lot  disappeared now...making this all just a terrible nightmare?

Then I ask myself...what more can I do? I have changed my diet, combined natural supplements with conventional medicine, use no chemicals at home,  reduced the stress in my life...but is this enough? 

I have my first lot of scans for secondary BC on 28th and 29th December and I am terrified at times just thinking about it. I am trying to 'learn to dance in the rain' again, but boy it is tough! The unknown is so scary...I only hope this new 'way of life' I'm trying to adjust to gets easier in time. I sincerely hope that in 5 years or even 10 years time I can look back and help those newbies who are feeling as scared as I am xx

  • I loved this post Leonie! I try to think the same as you and enjoy life. Unfortunately, this has resulted in me spoiling myself a little too much, but hey, why not? My husband works way too much also, and I was telling him just tonight that he should indulge more in his favourite hobbies. He has never let our lives revolve around my cancers and it's the best approach he could have taken. He feels breast cancer is just one small aspect of our lives, certainly not the main storyline! He encourages me to look outward rather than focus on myself, and his positive outlook has rubbed off on me and our daughters tremendously. Love Jane xx
  • Oh wow, I can totally relate to your post Celeste! I was getting overwhelmed with all the 'what if's' after my first diagnosis in 2002. I would imagine all sorts of horrible things and wonder how my girls (who were 6 and 9) would cope without me. Then I started seeing an amazing psychologist who helped me change my thought patterns. I only concerned myself with what was happening TODAY, not what might happen in the future. He also helped me to realize that some things were simply out of my control, and worrying about them was pointless. What a relief it was to give myself permission to stop worrying. It really wasn't helping me one way or the other. When I had my new cancer diagnosed in August this year, I was so used to this new way of thinking that I coped quite well. You seem to be doing everything in your power to stay well, so be easy on yourself and enjoy the little things. None of us know what the future holds, but we can all make the choice to enjoy the present! Love Jane xxxx
  • Hi Celeste,

    I know what you mean and I only have early BC. Has the chemo worked? For the first time in a while I lay awake last night thinking what if this hasn't worked and I found myself questioning my own mortality. Thinking for the first time about dying and who would be left behind. How precious those closest to us are. Scary stuff.  Iam  still positive that things will be fine but these things cross our minds every so often.

    Thinking of you and everyone else, Celeste. We are only human and we have so much to deal with at the moment.  We are always on the lookout for ideas to reduce our risks but what works and what doesn't?

    Hang in there! Your scans will be what you are hoping for. You will be fine.

    All the very best and I know in 5 or 10 years time you WILl be there for others just like we are all there for eachother.

    Take care and good luck,

    Alison xxx

  • Hi Celeste,

    I know what you mean and I only have early BC. Has the chemo worked? For the first time in a while I lay awake last night thinking what if this hasn't worked and I found myself questioning my own mortality. Thinking for the first time about dying and who would be left behind. How precious those closest to us are. Scary stuff.  Iam  still positive that things will be fine but these things cross our minds every so often.

    Thinking of you and everyone else, Celeste. We are only human and we have so much to deal with at the moment.  We are always on the lookout for ideas to reduce our risks but what works and what doesn't?

    Hang in there! Your scans will be what you are hoping for. You will be fine.

    All the very best and I know in 5 or 10 years time you WILl be there for others just like we are all there for eachother.

    Take care and good luck,

    Alison xxx

  • Hi Celeste,

    You are doing a great job ! If I could change the diagnosis I would. You seem such a lovely person,  and it's not fair you have to deal with this.

    I am confident you are doing all you can to " fight " and  keep searching for the truth; who knows, new treatments are happening all the time.

    I am due for another double mammogram and ultrasound soon. I still get anxious about it, and am glad when it is over for an other year. I keep my fingers crossed everytthing will be ok. But after a diagnosis of BC or ABC, things are not the same. Life is different. You look at life differently I mean.

    All we have is today, so here's hoping you have a nice day, and also a nice Xmas.

    Believe me when I say, you have inspired people now, with your honesty and courage.

     Hope you can sleep too.  I take meds now ( discomforts, sleep, flushes, thoughts ).. probably always will....I go in second gear mostly too. Learning to " let go " and " accept"  helped.  

    TC, Kathy.

  • Hi Celeste,

    You are doing a great job ! If I could change the diagnosis I would. You seem such a lovely person,  and it's not fair you have to deal with this.

    I am confident you are doing all you can to " fight " and  keep searching for the truth; who knows, new treatments are happening all the time.

    I am due for another double mammogram and ultrasound soon. I still get anxious about it, and am glad when it is over for an other year. I keep my fingers crossed everytthing will be ok. But after a diagnosis of BC or ABC, things are not the same. Life is different. You look at life differently I mean.

    All we have is today, so here's hoping you have a nice day, and also a nice Xmas.

    Believe me when I say, you have inspired people now, with your honesty and courage.

     Hope you can sleep too.  I take meds now ( discomforts, sleep, flushes, thoughts ).. probably always will....I go in second gear mostly too. Learning to " let go " and " accept"  helped.  

    TC, Kathy.

  • Hi Celeste, give yourself some time to adjust to everything. Dont be hard on yourself as you have done everything possible by sounds of things. I was just saying to Tonya the other day that i truly  believe that stress is a big part of cancer starting.  Celeste you cant change what has happened so all we  can do is look to the future and prey we have done enough like you said.

    Celeste how is everything going? hope your not having to much of a rough time. We have been thinking of you on BCNA.  Where are you up to with your chemo?

    Fingers crossed for your scan results, try not to worry yourself too much as it wont change the result,  Keep telling yourself that it is all going to be ok in the end. Keep your chin up Celeste and i know things are really hard at the moment but try and have a good relaxed  Xmas.  All the best

    Cheers Jo xx

  • Hi Celeste

    It's been a year for me and I still get uptight when I go for scans - I think that's natural.  I'll have my fingers crossed for a good result for you - would be a great New Year's pressie!

    Amy x