@jennyss So Dr De Boer does go by having a holiday off the medication and recommends it for most of his patients who are struggling, purely to see if it is the medication or other components. I put up a post in 2017 having just done that..
https://onlinenetwork.bcna.org.au/discussion/16116/6-weeks-trial-off-arimidex-has-finished-as-requested-by-oncologisthttps://onlinenetwork.bcna.org.au/discussion/16432/oncologist-checkup-yesterday-am-pulled-off-arimidex-and-now-on-aromasin-any-ladies-on-this/p1Somedays I find worse than others, but Id have to say overall Im not too bad, Im seeing him next month and am undecided whether to change to letrozole or stay on this for 18 more months then im done. My main motivator to change is Aromasin is steroidal and stores fat in the LPL cells, so you cannot lose weight no matter what you do. Letrozole is not so feel I can try and change it with that.
The Oncologists semi acknowledge the side effects but theyre more focused on treatment and survival unfortunately as thats success to them, which I understand from their perspective...but from someone living through it?? there needs to be substantial studies done and medication improved dramatically.