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Stopping treatment
I (and only I) have made the decision to stop my chemo treatment. After suffering for weeks now since my last round with hospitalisations, infections. pain, oral thrush to the extent that I haven't eaten in 3 weeks I just think that any more treatment would actually kill me. I know my family is going to argue this with me but the decision must be mine, I certainly don't want to leave them yet but I also watch their faces when they come to see me and see the pain and grief in their eyes. On the subject of hospitals I hate bloody COVID ! Who thought it was a good idea to keep cancer patients from their loved ones during the hardest times?
Creative Corner!
CREATIVE CORNER: Because art is good for you Inspire and be inspired Creative Corner group is gone but that doesn't mean we should mute that creativity! Time to get inspired by each other. This thread is just for fun and expression, be it craft or drawing or photography, from a snap of your colouring-in to your take on a Degas painting, a wild exploration of your soul or just a stick figure you drew on the bus, you can share it here. Your work as well as your tips, tricks, tutorials, tasks, fun little DIY's, and anything that fuels your creative side are all welcome! Bookmark this thread (click the little star at the top right) to find it easily.
Our Gardens
For those of us for whom our gardens are special, or for whom our gardens aided in our recovery whether physical or emotional, post your photos of your garden that bring you joy. Cassia fistula (Golden Shower Tree) Delonix Regis (poinciana) Every afternoon these trees are visited by lorikeets and other nectar feeding birds.
Cold sensation in chest when drinking cold drinks after bilateral M
Just a quick question - does anyone else have a weird sensation when drinking cold drinks after their mastectomy? I had bi lat mastectomy 6 weeks ago and when I drink cold drinks, I can feel the coldness travelling down through my chest. I asked my breast nurse and she said she had never heard of that before and it's not due to my operation! So bizarre!📣 Share your views: All.Can Patient & Carer Experience Survey
All.Can Australia is conducting a survey that seeks to collect perspectives of Australians who have experienced any type and stage of cancer, as well as their caregivers, to identify key gaps in cancer care treatment and support to shape the future of cancer care in Australia. The aim of this retrospective cross-sectional study is to obtain qualitative data on the experiences of patients and carers who have been directly impacted by cancer with the current processes of diagnosis, treatment and post-cancer care across Australia. 📝 The anonymous online questionnaire comprises of 40 questions which takes around 20 minutes and includes questions about your experience with diagnosis, treatment, and post-cancer care. Your insights will help improve care for others across Australia. ✅ This project has ethics approval from The University of Melbourne (Project ID 32576). 👉 Click here for survey. To find out more about the project, please read the project plain language statement attached. Thank you for helping make a difference 💗
Is everyone sleeping or just not posting?
Hi there Not sure at what point I go from newly diagnosed (August 2024) to more? Or if I’m no longer considered “new” if I’ve just had surgery early October? Like many others I’ve been busy just getting ready and preparing and being overwhelmed. These few days post surgery at home are the time I can now think. Only I can’t really think, it’s just blank and nights are the worst.
