Lego! Feel like a kid again
Well, I’m 5 months in to my BC journey & am going to be off for at least another 5-6 more months (2 surgeries & 2 x rounds of AC chemo down, 14 rounds of chemo left, then radiation, then hormone therapy). I kept stocking up my spotlight online cart, but then I thought with my track record of not completing much craft, I turned my idea to Lego. I bought the kit of ‘The Office’ & I think this is something I’ll actually finish! The kids are sad because I told them they could only play with it if they were in character 😂 I’ve let them build the characters & help pass me pieces, but the structure is all mine. I’ve done Michael & Pam’s work areas. I’m trying to pace myself though. We’ve got to treat ourselves right, this is a crap thing to live through. Any other Lego kits anyone has completed or can recommend?
Is everyone sleeping or just not posting?
Hi there Not sure at what point I go from newly diagnosed (August 2024) to more? Or if I’m no longer considered “new” if I’ve just had surgery early October? Like many others I’ve been busy just getting ready and preparing and being overwhelmed. These few days post surgery at home are the time I can now think. Only I can’t really think, it’s just blank and nights are the worst.
My painting for my Surgeon
Hey creative buddies, I recently made this painting for my surgeon as a thankyou gift. I named this painting cosmic connection. I will be doing a lot more in the coming days while I enjoy my chemo journey :) Hopefully one day I can start my own exhibitions and sale my paintings to raise funds for everyone going through the breast cancer journey. I pledge to support all my cancer mates with anything little I can do to contribute. 😍
Ode to ovaries
Hello all I’m Nelly ., so I’m new here newly diagnosed and although some may think it’s a bit ‘out there’ I thought I share my latest creation. I call it ode to ovaries as I’ve just started zoladex and entreating the menopause stage at 42 I think it’s beautiful and honouring and it warms me to create this type of work.. I found all the materials on my walks and now it sits in the corner of my bedroom. I do love ritual and I guess it’s me processing positively and honouring my body and journey. I loved making this x
Another long night
Come to the conclusion I’m going to have to get used to broken sleep and averaging 4 to 5 hours. That great night i had feels like soooo so long ago. I really don’t want to live up to my nickname with grandkids tomorrow 💤💤💤💤 where are you. I have to get up and do the before and after school plus run the 16year old around to her appointments and get to one of my own at 2 ho hum twiddle dee dum. Settle down body shut up brain i need to go to sleep
Writing to express yourself
Hello there, Has anyone else felt the urge to write or be creative to express how you are feeling about your diagnosis/ treatment? If so, what do you do with your pieces? I wrote a poem about chemotherapy, and I don't know what to do with it. All I can think of is to share it here. So here it is: Chemo sucks balls – A Poem On a scale of one to balls, chemo sucks balls. I hate sitting in the ward as the nurse jabs at my veins with his needles. I feel guilty that I harbour momentary ill will towards him, this man who works to help me. Blank faced while poison pumps through my body, I fight to stay calm as though this were a normal thing to do on a Wednesday morning. I see other people in the ward and wish that they were not there, having poison pumped through their bodies. We don’t talk – we are bound in solidarity, yet maintain our solitary thoughts. I hate the tiredness that overcomes me as anti-nausea medication takes effect. I ebb and flow through consciousness, aware but unengaged with my mother’s attempts to cheer me. At home I feel heavy, hollow, ill. I make the sounds and nod the nods to indicate I am alright, I will be alright soon. Nausea follows sleep and restless sleep awakes to nausea. The days pass. Is this living? Where did the week go? I wait for the haze to lift to feel human once more. I hate the strange taste and feel I find in my mouth after treatment. A feeling indescribably dull yet unrelenting, as though my teeth and tongue are not my own. Smells too strong make my stomach turn – how strange that my clothes should repel me because they smell too much like me. I observe these physical phenomena from a distance, waiting until they abate. This is but a point in time, I think. I awake each morning hopeful for my regular senses returned. I hate the shift in identity as breaking hair falls through my fingers. The world now knows – I am a cancer patient. I was naively hopeful as I whisked hair from the bottom of the shower; the coming days dash hopes when I find hair on my pillow, on my couch, on my clothes. Frustrated, I cut it short and suddenly I am a new version of me, the version who wears a head scarf and contemplates wigs. I dig deeper and fold this new me in, lest in anger I spit it out. I hate that other people must experience this strange “therapy” called chemo. My heart breaks for children who surely struggle to understand why the medicine makes them sick. My soul hurts for the elderly who endure this at the end of their lives, a trauma where there should be peace. I anger for people young and healthy, like me, who are told we are not in fact healthy, and we must be poisoned to be better. Chemo is a cruel and unusual punishment for sins unknown. On a scale of one to balls, chemo sucks balls.
Sewing... does anyone sew?
i tried to sew today lol it is supposed to be downtime..... tomorrow is the first meeting with the oncologist. I am trying to deal with the nerves. I did did however make the second of a bralette. Organic cotton from spotlight. Totally flat... no shape to the cups at all in fact no cups but it will stop my shirts from gaping and me from scaring the natives. Perfect for my bilateral scars.
Am I being overly anxious?
Hi all ive been thinking (as I do) and my treatment plan changed from mastectomy to neoadjuvant chemo which starts in the 12th July (Thursday) I’m getting worried that I’ve been put at risk of the tumour spreading because this is 5 weeks since diagnosis and I have a 4cm ,gd 2/3 Her2 + IDC cancer I also have axilla lymph node positive i know i am probably being silly as they clearly know what they are doing but I’m questioning myself and worrying that whilst I am waiting it’s just sitting there getting worse x
