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Queensland Members?
Any Queensland members in the group? I'm near Brisbane and have found it hard to to meet other women dealing with BC, at any stage. There was a free gym program but people didn't really mingle. Cancer Council website directs me to call to find local groups, who has time or energy for that? It all just seems so hard! Thinking of starting my own group, but where would I even start 😅 How are you all keeping your social life going during treatment and beyond?84ViewsSign in to react to this post2CommentsStopping treatment
I (and only I) have made the decision to stop my chemo treatment. After suffering for weeks now since my last round with hospitalisations, infections. pain, oral thrush to the extent that I haven't eaten in 3 weeks I just think that any more treatment would actually kill me. I know my family is going to argue this with me but the decision must be mine, I certainly don't want to leave them yet but I also watch their faces when they come to see me and see the pain and grief in their eyes. On the subject of hospitals I hate bloody COVID ! Who thought it was a good idea to keep cancer patients from their loved ones during the hardest times?ViewsSign in to react to this postCommentsOur Gardens
For those of us for whom our gardens are special, or for whom our gardens aided in our recovery whether physical or emotional, post your photos of your garden that bring you joy. Cassia fistula (Golden Shower Tree) Delonix Regis (poinciana) Every afternoon these trees are visited by lorikeets and other nectar feeding birds.ViewsSign in to react to this postCommentsCold sensation in chest when drinking cold drinks after bilateral M
Just a quick question - does anyone else have a weird sensation when drinking cold drinks after their mastectomy? I had bi lat mastectomy 6 weeks ago and when I drink cold drinks, I can feel the coldness travelling down through my chest. I asked my breast nurse and she said she had never heard of that before and it's not due to my operation! So bizarre!ViewsSign in to react to this postComments📣 Share your views: All.Can Patient & Carer Experience Survey
All.Can Australia is conducting a survey that seeks to collect perspectives of Australians who have experienced any type and stage of cancer, as well as their caregivers, to identify key gaps in cancer care treatment and support to shape the future of cancer care in Australia. The aim of this retrospective cross-sectional study is to obtain qualitative data on the experiences of patients and carers who have been directly impacted by cancer with the current processes of diagnosis, treatment and post-cancer care across Australia. 📝 The anonymous online questionnaire comprises of 40 questions which takes around 20 minutes and includes questions about your experience with diagnosis, treatment, and post-cancer care. Your insights will help improve care for others across Australia. ✅ This project has ethics approval from The University of Melbourne (Project ID 32576). 👉 Click here for survey. To find out more about the project, please read the project plain language statement attached. Thank you for helping make a difference 💗ViewsSign in to react to this postCommentHair - what did you do?
Hi all - I am almost a year post chemo and am wondering what to do with my hair. It has come back dark and curly (and a bit mullet like). I am thinking of trying to grow it into a bob and then shoulder length. I think dark hair looks a bit harsh on me and would like to dye it with bits of blonde (hopefully less toxic dye if there is such a thing). My hair is not as soft as it used to be. I did use a cold cap but unfortunately still lost most of my hair. Interested to know what everyone has done with their post chemo hair 😊ViewsSign in to react to this postCommentsAirport Security / Breast Prothesis
So 2 years ago we were seeing my daughter off at Melbourne Airport I had a not so fun experience going through the Airport Security wearing a Breast Prothesis which I have previously posted about. 2 weeks ago we flew Interstate for a mini break. I was terrified of the potential same experience. This time I had a letter from my doctor saying I have a Breast Prothesis in place due to a past history of breast cancer. I had my letter in my hand to tell the staff so I didnt have the same experience. I told man who directed me to the entrance of the security line. He said tell the staff before you go through the security xray machine. A female staff member was called over. She says.. "Whats the problem" and I thought oh God here we go again. But she was fine and I stood on the xray machine and I was good to go. This was such a huge relief. I still had to tell 3 people but I wasnt letting go of my letter. Then coming home from Interstate I wasnt able to show my letter to the staff I had to put it in the box that went through the scanner. I told the staff member and she was fine and said all was good. I had so much stress leading up to that moment.ViewsSign in to react to this postCommentsWhat book are you reading?
I know there was a discussion a few months ago about what people are reading at the moment but I can't find it so I'm starting a new one! I read lots of good books (and some not so good ones) but I just finished one that was fast-paced, an easy read, a bit quirky AND the main protagonist was a not quite young woman! "It's All Fun and Games Until Someone Loses an Eye" is by a Scots author, Chris Brookmyre and can best be described as "The Long Kiss Goodnight" meets "Shirley Valentine" (I know the medium is different but the imagery works).ViewsSign in to react to this postCommentsWhat pets do you have?
I am interested what pets every one has. I have two old Standard Schnauzers (one of which knew I had breast cancer but I fobbed his sniffing off as being a sticky beak at the time), a rosella called Arnie because he will rip your fingers off like Arnold Schwartzeneggar as quick as you like and he is the boss of us. I also have about 15 aquariums with mostly pleco L number catfish and guppies and cherry shrimp.ViewsSign in to react to this postCommentsMy Surgeon tells me see you in 6 months
Hi,everyone!! surgeon says my operation went very well all clear margins see me in 6 months, to everyone here who has supported me through a nightmare I thought I would never recover from thankyou,thankyou xx I have made such lovely friends here that I care for so very much I know what I will be doing to raise monies for to this amazing support network Melissa xxxViewsSign in to react to this postCommentsLadies in Black (TV Series) Starts tonight on ABC -
Did you watch the movie Ladies in Black when it came out in 2021? I did & really enjoyed it. It was a great Aussie movie, set in Sydney in the 50-60s .... in the fashion department of a large Department Store, like Grace Bros or David Jones. It was really quite quaint ..... if you have access to Netflix, you can watch it there! ;) Tonight, on ABC, there is a TV Series of the same name! It should be fun to watch! Enjoy! (If you miss it tonight, you'll be able to watch it on iView!) ;)ViewsSign in to react to this postCommentDizzy turns - BC Trip Negative diagnosed July 2019
Hi ladies! I thought I’d reach out & ask if anyone is going through same thing as me! As I don’t feel I’m getting anywhere at the Doctors even though tests done, bloods, heart monitor & all come back ok!?!?!? So I had a bad dizzy turn back in 2021 at work & ambulance called. Nothing for 2 years then from Jan ‘23 to now I have had 7 more. Some worse than others. Going dizzy, vomiting, some taking days to get over. Normally I feel it come on the dizziness & nauseous but one of my recent ones, there was no signs at all & I collapsed at work as I walked down the hallway momentarily blacked out, then started to vomit as usual, this one actually scared me as no sign or symptoms at all. Obviously went to Doctors again, more blood tests, heart monitor- all clear! Still Left with no answers!!! Doctor ruled out vertigo early on, he mentioned vestibular migraines to which he put me on medication as I was getting headaches through the night which I was weaned off! But I have no headache when the dizzy turns have happened. Now i feel in limbo as I don’t know why I’m having these dizzy turns & left with no answers! So wondering if anyone is going through same! Just hard not knowing & when next ones going to happen & with nothing from Doctors 🙏 ☺️ViewsSign in to react to this postCommentsCan't handle any more
Hi Every one. I have 4 more taxol sessions to go and I am unrecognizable. I have no hair no lashes no eyebrows, I have to poets hanging put of my arm that have exma all around them. I have put on weight from my treatment and tired all the time etc. I know the end is near but mot sure how I'm going to get through the next 4 weeks and fear I'll never be the same as I was againViewsSign in to react to this postCommentsCompression Garments
Hi all. Ten weeks ago I had DIEP flap breast reconstruction surgery which all went well. I have been progressing along great although I am curious how long everyone was wearing their compression garments or binder for. I tried to go a day without wearing it and found my stomach area to be sore and feeling quite hard and contracted. Is this normal? Do I need to wear the compression pants for a longer period of time? Thank you. SueViewsSign in to react to this postComments- ViewsSign in to react to this postComment
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