Forum Discussion
jennyss
6 years agoMember
Dear @kmakm, I watched and listened to the webinar today - luckily all the slides and sound worked for me. Thanks very much; you put important issues bang in the middle of the table. Your experience with letrozole side-effects was put clearly and strongly. You advocated for the negative experience of many network members with AI side-effects. You asked what happens to the information/records of us BC survivors and now AI consumers in regards to side effects. This was not answered.
I thought Dr De Boer's talk focussed on 'hormone therapy is it worth it' in connection to studies which show increased survival rates, and how long the AI's should be taken.
Professor Hickey seemed to view things through a 'menopausal symptoms' lense. But later, during questions, Dr De Boer mentioned studies where it was measured the effect of people taking a 'drug holiday'. It was interesting to hear that a six week drug holiday (once a year??) does not effect recurrence/survival rates, and sometimes side-effects don't come back quite as bad after the AI's are started again. He also seemed to say something about a drug holiday showing whether symptoms were medicine side-effects vs chemical menopause??
Perhaps I'm being a bit critical; but I do appreciate BCNA organising this webinar, and the information, opinions and time of Dr De Boer and Professor Hickey, and we'll look forward to more webinars in the future. But most of all I appreciate your input Kate - you are the greatest!
I thought Dr De Boer's talk focussed on 'hormone therapy is it worth it' in connection to studies which show increased survival rates, and how long the AI's should be taken.
Professor Hickey seemed to view things through a 'menopausal symptoms' lense. But later, during questions, Dr De Boer mentioned studies where it was measured the effect of people taking a 'drug holiday'. It was interesting to hear that a six week drug holiday (once a year??) does not effect recurrence/survival rates, and sometimes side-effects don't come back quite as bad after the AI's are started again. He also seemed to say something about a drug holiday showing whether symptoms were medicine side-effects vs chemical menopause??
Perhaps I'm being a bit critical; but I do appreciate BCNA organising this webinar, and the information, opinions and time of Dr De Boer and Professor Hickey, and we'll look forward to more webinars in the future. But most of all I appreciate your input Kate - you are the greatest!