Forum Discussion
Kiwi_Angel
8 years agoMember
Such a scary learning curve
Hi all,
i am just starting to through this process. 3 years ago I found a lump and went for an ultrasound, they found 4 and said they were just fibroadenomas so no further action required. Fast forward 3 years and these lumps had grown and they found a new one so recommended just testing 2 of them. Went and saw a surgeon and he said to just remove them all and that would be it, might have to have some HRT therapy and stop taking the pill. Got the results and the pathologists thought was mucinous carcinoma but had to confer and then came back with papillary carcinoma. Had to have breast sparing surgery and it is now invasive ductal carcinoma and there are areas of DCIS in there too and it is hormone receptor positive which I believe is a very good thing. End result is today is a right sided mastectomy with lymph node removal. The surgeon has told me most likely HRT and radiation afterwards. I’m so scared when the results come it is going to be worse than expected since that is what has been happening since the start and I’m worried about getting lumphoedema. I’m also so angry that this was most likely cancer 3 years ago and I was told there was no need to do anything about it. This is all so scary and new and just trying to work out what everything means (I work in the veterinary industry but trying to figure out the pathology report was a mission). Luckily I have a very supportive husband and great friends and I am trying to be so positive but you cant help thinking worst case scenario every now and then. Sorry about the lengthy rant - thanks for reading
i am just starting to through this process. 3 years ago I found a lump and went for an ultrasound, they found 4 and said they were just fibroadenomas so no further action required. Fast forward 3 years and these lumps had grown and they found a new one so recommended just testing 2 of them. Went and saw a surgeon and he said to just remove them all and that would be it, might have to have some HRT therapy and stop taking the pill. Got the results and the pathologists thought was mucinous carcinoma but had to confer and then came back with papillary carcinoma. Had to have breast sparing surgery and it is now invasive ductal carcinoma and there are areas of DCIS in there too and it is hormone receptor positive which I believe is a very good thing. End result is today is a right sided mastectomy with lymph node removal. The surgeon has told me most likely HRT and radiation afterwards. I’m so scared when the results come it is going to be worse than expected since that is what has been happening since the start and I’m worried about getting lumphoedema. I’m also so angry that this was most likely cancer 3 years ago and I was told there was no need to do anything about it. This is all so scary and new and just trying to work out what everything means (I work in the veterinary industry but trying to figure out the pathology report was a mission). Luckily I have a very supportive husband and great friends and I am trying to be so positive but you cant help thinking worst case scenario every now and then. Sorry about the lengthy rant - thanks for reading
46 Replies
- Kiwi_AngelMemberThanks so much for your support everyone. The CT scan and nodes r huge wins for me considering this time last week I was incorrectly informed about my prognosis and was inconsolable. Have my first appointment with the oncologist next week so will find out what the plan of attack is then.
- onemargieMemberHi there @"Kiwi Angel" so pleased your scans are all clear it’s such a relief isn’t it. I remember that feeling all too well and now it’s just a bad memory thank god. Hang in there love take it a day at a time. Once you get all your results and your plan of attack hopefully you will feel a bit better. Rest assured love we are all here for you and you’ve got this ok. Holding your hand right now and giving you a big virtual hug. Make sure you take any help that’s offered, you will soon find out who your true friends are and don’t be afraid to ask for help if you need it too. Keep us posted lovely. Margie xxx
- SisterMemberFantastic news @"Kiwi Angel"
- kmakmMemberThat is SO good to hear. Hooray! K xox
- lrb_03MemberFantastic news about both the CT and the lymph nodes. What a huge relief
- Wooooo hoooooo!!! That is just wonderful @"Kiwi Angel". I’m so pleased for you. Jane x
- primekMemberFantastic news @"Kiwi Angel"
- Kiwi_AngelMemberFinally starting to get some good news. They took out 17 lymph nodes and they are all clear!! So happy
- Kiwi_AngelMember@Giovanna_BCNA - I have no idea!!!
- Giovanna_BCNAMemberHello @"Kiwi Angel"
Great news re the CT results you must be so relieved!