Let's get palbociclib on the PBS
Cosette
Member Posts: 652 ✭
Palbociclib (also called Ibrance) is used to treat hormone receptor positive, HER2-negative metastatic breast cancer. Palbociclib is available in 52 countries, but Australia is not one of them. The only way Australians can get it is by buying it from overseas for about $10,000 a month, or participating in a clinical trial.
Palbociclib is being considered for sale in Australia and BCNA needs your help. Sign our online petition. Tell the government decision-makers that this is an important drug. We need it in Austraila and we need it to be affordable.
Sign our petition here: https://www.bcna.org.au/about-us/advocacy/current-advocacy-issues/palbociclib-petition/
And share it! Tell others to sign it too.
And share it! Tell others to sign it too.
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Comments
What a wonderful initiative, I am one of those women who would benefit from Ibrance, I am on Xeloda and have been for 12 months, the side effects arent very nice, but I have had to learn to live with them, {dont fancy the alternative!} this drug would change the quality of life for so many of us - thank you to you and all of the fantastic women who sign and share this - we can make a difference! -
I turned 65 last week - unexpectedly! I wasn't eligible for the trials and wasn't really expected to last at all past 2015. Then I wasn't expected to get through 2016 either, until I found an overseas oncologist willing to prescribe and supply it.
And it works for me.
I spend about $10,000 each month to receive it from overseas. I'm just lucky I had all my superannuation ready to last the next 20 years, which is now being spent on palbociclib instead.
It's working so well that I've just completed a 14-week ocean swimming training program with the Can Too fundraising foundation, and competed in 4 ocean swimming races since January 2017.
The only side effect I've really noticed is that I need more sleep plus more exercise to keep up the same energy levels.
Plus a couple of minor side effects that haven't affected my way of life.
Right now, I'm feeling better than I have for the past 5 years, since the first cancer diagnosis.
I'm very happy, but I hate it that I am being so blessed with extra quality time on earth due to palbociclib, while most others with breast cancer simply cannot afford it!