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Glemmis
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Joined 10 years ago
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Re: Have you had withdrawal side effects after stopping Arimidex!
Hi @Hopes_and_Dreams, we were diagnosed around the same time. Glad to hear you are doing well. When I saw my Oncologist last year she said I will probably come off Letrozole this March as it will be 8 years & it is long enough. It will be interesting to see if I feel any different, hopefully better, not worse!240Views2likes0CommentsRe: Confused re Zometa-Purpose
@Abbydog I have completed 6 infusions of Zometa over 3 years to improve my bone density. I lost 5% when I started taking Letrozole 6 years ago. I was just above the threshold from being osteoporotic. My bone density has now improved so I will stay on Letrozole for another 4 years. My oncologist has suggested a maintenance dose of Zometa maybe once a year.40Views0likes0CommentsRe: Pilates
I have osteopenia from treatment & have had 6 Zometa infusions. Depending on my next bone density my oncologist said I might need a yearly top up. I have always been an exerciser & at 63 still do pump classes which are weights, body combat & dragon boat racing. I have also taken up reformer Pilates which is a great workout for your muscles using resistance & weights are used too. I don’t know whether this has helped as I have been on Letrozole for over 5 years but just as important is to keep muscles strong as you get older.23Views0likes0CommentsRe: Finished AC. Taxol next
My surgeon told me chemotherapy would knock me flat so I was determined to prove her wrong. I completed 4 rounds of AC and 12 rounds of Taxol & while it wasn’t great I worked all the way through. I had some neuropathy towards the end of Taxol but it resolved completely. I lost my sense of taste & did have a sensitive nose but nothing too bad. My hair started growing back a couple of weeks after finishing but I had been wearing a wig for work anyway so continued wearing it for a while.21Views1like0CommentsRe: Recurrence :(..treatment questions
Hi @eddiek, I had a mastectomy in 2016, then chemo & radiation. In 2019 at 59 I had the other breast removed & double Diep. Like you I was quite active & being fit before surgery helped with recovery. It was a 12 hour surgery but other than the first week being difficult every day got a little bit easier. I was back to work after a month, driving & back at the gym. Back to dragon boat racing at 2 months. As suggested join the breast reconstruction group as there are many positive stories there.15Views0likes0CommentsRe: Letrozole(Femara) +Zoledronic Acid (Zometa)
I have been on Letrozole for 5 years now and have just completed my 6 six monthly infusions of Zometa. I had some aches and pains in the beginning but just now have a bit of stiffness but that could be from getting older. After the first Zometa infusion I had flu like symptoms for a few days but nothing with the rest. My oncologist says I may need a yearly infusion from now depending on my bone density so am due to have another scan. Those side affect sheets do seem scary but serious side affects are rare so I wouldn’t take too much notice. My oncologist also mentioned there is new research to show that bisphosphonates may prevent bone metastasis.34Views0likes0CommentsRe: 4th Melanoma found after skin check
@Cath62, I think for peace of mind at least six monthly checkups & then anything is picked up early. The GP who picked up my first melanoma was a particularly good one I think & once you are seeing a dermatologist you can get in early with any further concerns. @arpie, I hadn’t heard of that rare melanoma either. I knew about Angiosarcoma & asked radiation oncologist about it before treatment & she said she hadn’t seen a case in 20 years but you don’t usually follow up with them years later. It usually occurs after 5 to 7 years. Dermatologist said I was also at risk of angiosarcoma because of lymphodema in that area. Something to look forward to🙄27Views0likes0Comments
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Choosing breast reconstruction
PRIVATE GROUP. Choosing breast reconstruction after single or double mastectomy can feel overwhelming, and deeply personal. This group is here to connect you through others' stories and images. Please respect everyone’s privacy—do not copy or share content outside this space. Information is based on personal experience and is not medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️ Members may share photos of breast surgeries. These images or discussions may be distressing or triggering for some. If you need support, please contact the BCNA Helpline - we are here for you.
