Why not join the Living with metastatic private group? Access group via the link here.

Palbociclib Side effects back

That didn’t take long to have all the side effects back. i sure enjoyed the break maybe too much did heaps and had lots happening Just finished my 21 days and it's been like i didn’t get a break at all, mind you day 5 in and caught the flu and haven’t been able to shake it. The worst congestion and cough ever which doesn’t help the sore throat etc that I usually have with palbo. The itch is back. The snake skin and all the other joint aches from AI are intensified and about the only thing that hasn’t gotten bad yet is the lethargy (give it time). The alternative is not seeing any of the grandkids make me a great-granny.
 See the clinic this week. Had my dates out thought it was next week just as well they send me a text reminder. Its the gynaecologist next week. 
I’m going to see about a dose reduction to 100mg instead of the 125mg of Palbo 

Comments

  • Julez1958
    Julez1958 Member Posts: 1,253
    Hi @cranky_granny
    The side effects thing on the various drugs is a real lottery that’s for sure!
    Some get such terrible side effects ( like heart or lung damage 😱) they have to go straight off these types of drugs, others sail through  with very many Nina’s side effects and often there seems no rhyme or reason.
     Sending you virtual hugs.
  • arpie
    arpie Member Posts: 8,151
    Bugger bugger bugger xxx so sorry to hear that @cranky_granny xx  Sending big hugs too .... hope they can minimise the SEs xx
  • cranky_granny
    cranky_granny Member Posts: 904
    Well here I am again I made it from May 2023 to Nov 2024 then needed another break off the Palbociclib and didn’t that 4 weeks go fast again. Best part this time is neutrophils went up over 3 this time. Saw the oncologist understudy (I suppose they have to learn face to face) 
    start the Tablet back up tonight full strength again. 
    I will keep doing whatever works to keep this thing at bay 
    OH YEAH forgot to mention I have met my first Great Grandchild a lovely little boy 10 days old today. Just going to hang in there now for one of them to have a little girl. 
  • arpie
    arpie Member Posts: 8,151
    WOOHOO!!  Congrats on your first great Grand Child @cranky_granny xxx   How lovely xx 

    All the best for your continuing treatment  xx
  • cranky_granny
    cranky_granny Member Posts: 904
    Thanks @arpie
  • iserbrown
    iserbrown Member Posts: 5,744
    Best wishes @cranky_granny
    Here's hoping the break from the meds puts you in good stead to cope better this time and the Neutrophils readings are good!
    Congrats on the arrival of the Great Grandchild - what a joy that must be

    Take care
  • cranky_granny
    cranky_granny Member Posts: 904
    Thanks @iserbrown. I hope to get another cuddle soon. Just has to be when mee maw (nanny) are at work. My daughter and son inlaw are besotted with their first grandchild.  Haha I remember the feeling well.