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Palbociclib Side effects back

cranky_granny
cranky_granny Member Posts: 936 ✭
in Metastatic breast cancer
That didn’t take long to have all the side effects back. i sure enjoyed the break maybe too much did heaps and had lots happening Just finished my 21 days and it's been like i didn’t get a break at all, mind you day 5 in and caught the flu and haven’t been able to shake it. The worst congestion and cough ever which doesn’t help the sore throat etc that I usually have with palbo. The itch is back. The snake skin and all the other joint aches from AI are intensified and about the only thing that hasn’t gotten bad yet is the lethargy (give it time). The alternative is not seeing any of the grandkids make me a great-granny.
 See the clinic this week. Had my dates out thought it was next week just as well they send me a text reminder. Its the gynaecologist next week. 
I’m going to see about a dose reduction to 100mg instead of the 125mg of Palbo 

Comments

  • Julez1958
    Julez1958 Member Posts: 1,283 ✭
    Hi @cranky_granny
    The side effects thing on the various drugs is a real lottery that’s for sure!
    Some get such terrible side effects ( like heart or lung damage 😱) they have to go straight off these types of drugs, others sail through  with very many Nina’s side effects and often there seems no rhyme or reason.
     Sending you virtual hugs.
  • arpie
    arpie Member Posts: 8,239 ✭
    Bugger bugger bugger xxx so sorry to hear that @cranky_granny xx  Sending big hugs too .... hope they can minimise the SEs xx
  • arpie
    arpie Member Posts: 8,239 ✭
    WOOHOO!!  Congrats on your first great Grand Child @cranky_granny xxx   How lovely xx 

    All the best for your continuing treatment  xx
  • cranky_granny
    cranky_granny Member Posts: 936 ✭
    Thanks @arpie. 
  • iserbrown
    iserbrown Member Posts: 5,782 ✭
    Best wishes @cranky_granny
    Here's hoping the break from the meds puts you in good stead to cope better this time and the Neutrophils readings are good!
    Congrats on the arrival of the Great Grandchild - what a joy that must be

    Take care
  • cranky_granny
    cranky_granny Member Posts: 936 ✭
    Thanks @iserbrown. I hope to get another cuddle soon. Just has to be when mee maw (nanny) are at work. My daughter and son inlaw are besotted with their first grandchild.  Haha I remember the feeling well. 
  • Anne94
    Anne94 Member Posts: 167 ✭
    Hi @cranky_granny
    I have been on Palbociclib since 2019. Started on the 125mg, neutrophils and platelets took a dump. Made me a little bit ill. Dose reduction to 100mg - same thing happened. Dose reduction to 75mg and although the platelets and neutrophils are lowish, they aren't critical like they were with the higher doses. Some days I get a bit nauseous, I seem to drink tea now rather than coffee at home. And I have a slight addiction to Dare Iced coffee :D
    Also how awesome to have cuddles with new babies. <3 I got cuddles with new nephews at Christmas time. it was awesome.  :
  • cranky_granny
    cranky_granny Member Posts: 936 ✭
    @Anne94. Last blood test showed a drop again but like you not dangerously low. Staying on the 125mg for now. See how i go. Have gallbladder ultrasound next week  I know i have stones showing up in ct. hopefully thats all they find. They’re doing mammogram straight after to save me going back in a months time. 
    After that i hope to get 3 mths before the next round of scans.
  • Julez1958
    Julez1958 Member Posts: 1,283 ✭
    Hi @cranky_granny and others , I am on another drug but my oncologist has me on Neulasta injections which bring my neutrophils back up to normal range,
    Might be different protocols for different drugs ( and individual circumstances) but thought I would mention it .

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