Who me ?

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  • LisaG
    LisaG Member Posts: 62
    edited March 2015

    O no - not Man Flu!!?  Luckily it only affects men in a life threatening manner - ha ha. I have found that the best way to head off a cold/flu bug is to hit up the Vitamin C and Echinacea but of course we are not in a normal situation so hopefully your GP will dose you up with something quick and seriously effective. Good luck with that! How's your skill with chicken soup? We like to rub a fresh garlic clove on to hot toast - it melts straight in and makes for a really strong garlic hit with your soup - the bonus is you wont have to worry about stinky breath with your husband sleeping on the couch ;-)

    Look after yourself. O and I agree - a meeting on the other side of all this would be great! I was tempted to go to the convention in Sydney but I will be in the middle of my radiation treatment and unable to get away...

  • magicmum
    magicmum Member Posts: 285
    edited March 2015

    Good advice - I am taking echinacea/vit C/zinc tablets which can't hurt.Love the sound of the garlic bread with soup, have to try that.

    Yes, man flu ! I know he's unwell but he thinks he's dying ! I told him he can't die yet cos I wouldn't be able to manage without him and besides I don't get a pension for another 6 years and his super won't last me long enough !!!! That made him feel all warm fuzzy and loved , haha.

    Good news is that my tummy has begun to work again - so that's the GLAD for today.

    magicmum

  • magicmum
    magicmum Member Posts: 285
    edited March 2015

    Chemo #3 down and now I'm on the downside of this part of the trip. It feels good.

    Same reaction as before on the day - none ! Feeling a wee bit tired this evening but I'm expecting that. I had a companion at the unit today that my sister knew (my sister was my ice buddy today) and this lady has all sorts of cancer, terminal, she's just having treatment to slow it down a bit so she can settle her life. Only 45. I felt sad, and slightly guilty for being as lucky as I am.

    I know I have a lifelong journey ahead but right now I'm ok - I just have to be watched and be ready.

    I hope all your "trips" are going as well as can be expected at the moment.

    Tonight is a thinking night.

    magicmum

  • magicmum
    magicmum Member Posts: 285
    edited March 2015

    I have absolutely no energy today. Just keep on falling asleep. It's doing my head in. 3 days out of chemo ? Is that normal ? I don't remember it being this bad last cycle, does it cumulate ?

    I shouldn't grumble, I'm doing OK. Bloods are good. Headaches have been reduced. I should be thrilled.

    Trying to work tonight - prob a mistake but I need the income. Lucky I can just sit in my office and crash !

    magicmum

  • magicmum
    magicmum Member Posts: 285
    edited March 2015

    I can't shake the creepy thoughts today. My mind keeps on wondering how will I know if I have a brain tumour ? I'm doing so well it's silly really, except I know it's a possibility. Her2+ recurrence riskier and brain metastases are the ones to worry about cos Herceptin doesn't protect the brain.

    Have to ask the doc next time, it's really doing my head in.

    magicmum

  • magicmum
    magicmum Member Posts: 285
    edited March 2015

    I can't shake the creepy thoughts today. My mind keeps on wondering how will I know if I have a brain tumour ? I'm doing so well it's silly really, except I know it's a possibility. Her2+ recurrence riskier and brain metastases are the ones to worry about cos Herceptin doesn't protect the brain.

    Have to ask the doc next time, it's really doing my head in.

    magicmum

  • magicmum
    magicmum Member Posts: 285
    edited March 2015

    I've just had a turn at crap side effects after chemo no 4. My apologies to everyone who copes with this all the time, I've been spared before.

    SOOOOO tired I could barely move, how is it possible when you tell your arm to lift that it doesn't ? Couldn't eat, drink, nauseous, heartburn. 4 days. Guessing this will be repeated after no 5 and no 6, yayy can hardly wait.

    BUT I can't complain really as it's been so little. I can do it, I'll make it through.

    I only have to read the blogs of others who are doing it way tougher than me. I salute you. I have NO idea where you get the strength.

    magicmum

  • magicmum
    magicmum Member Posts: 285
    edited March 2015

    Does anyone else suffer from really watery eyes ? It's been like this for a week ormore now, driving me crazy. Blurry and just weeping. I read somewhere that it's Herceptin that does it - which is crap cos I'm on that for a whole year !

    Any suggestions would be a help.

    Feeling low today as well, you know, one of those down days where your whole positive attitude just goes down the gurgler. I've tried thinking "up" but I can't. Done nothing, just sat around watching telly.  Hope it goes tomorrow, I don'tike this at all.

    magicmum

  • magicmum
    magicmum Member Posts: 285
    edited March 2015

    Doc appt today - my gated heart scan was good ! That's a relief. Bloods not so much - liver and kidney results not the best but nothing to worry about yet she tells me. Also anaemic. Have been advised to take magnesium as that is also very low.

    Nothing to be done for the watery eyes - use drops if they're irritated. *sigh*

    Anaemia will be contributing to the tiredness, that's all I needed.

    Oh well , after tomorrow I will have only 1 left of the full chemo. Then finish out the year with Herceptin. I hope to be able to have my radiation done before xmas. Timeframe is tight but I'd LOVE to start 2012 with all that behind me.

    Better get to bed although not sleeping well at the moment. How is that fair when you are SO tired !!

    my best wishes to everyone on this trip.

    magicmum

  • magicmum
    magicmum Member Posts: 285
    edited March 2015

    Chemo #6 - last one - coming up on Tuesday. A few weeks wait and then chemo.

    Why am I not happy, excited ? No idea. So tired, so lacking in any motivation, don't want to do anything at all. Getting back to the early fears and worries about "what if". I don't know how to handle this right now. Lost all my courage, positivity. Is that just exhaustion ? Will it come back ?

    I don't want to do this anymore.

    magicmum

  • DansBoobs
    DansBoobs Member Posts: 150
    edited March 2015
    I hear ya sister! I'm at the end of chemo but still have herceptin until July next year. It's an awful shadow that will now follow us but as my friend who is 10 years cancer free says the further away you get from treatment the easier it is. So I just hold on to that thought and do everything I can to make my body a hostile cancer environment. Big hugs Dan
  • magicmum
    magicmum Member Posts: 285
    edited March 2015

    Thanks Dan - yes that's what my friend who is 8 years out tells me.

    I'm in the REALLY LOW phase after chemo right now, so tired I can barely stand and wanting to eat but feeling sick at the same time. I know I only have another week of horrible and then it's all up from there. I can do the Herceptin and the radiation, I'm sure.

    We'll be coming out of Herceptin about the same time, all the very best of good wishes to you for a successful time and NO recurrence.

    Life will never be the same again.

    magicmum

     

  • magicmum
    magicmum Member Posts: 285
    edited March 2015

    The call from the clinic came today to tell me my radiation starts next Monday. Means I will going through xmas but at leats it's starting and the next step on the recovery road begins. I also started Arimidex today. Had a bone density scan on Monday and it was excellent ! At least some piece of me is in good nick !

    The effecets of chemo are gradually subsiding. I can taste again, that's a bonus in time for xmas. Tummy still hasn't settled back to normal but I guess that'll be slower. I'm feeling ok, ready for whatever radiation throws at me.

    Watching every day to see if my hair is growing ! Haven't quite started to measure individual hairs but who knows :P

    It's a bit of a bummer how your whole life revolves around doc's appts and tests and scans - takes over everything. Impossible to forget it even for a minute.

    My husband lost a cousin the other night to an aggressive lung cancer. She only knew for about 2 months. He's quite subdued, I think he's more worried for me now than he was before.

    I am NOT going to recur - I say that to myself as often as I can. It has to work doesn't it ?

    Keep on keeping on girls

    magicmum

  • magicmum
    magicmum Member Posts: 285
    edited March 2015

    The call from the clinic came today to tell me my radiation starts next Monday. Means I will going through xmas but at leats it's starting and the next step on the recovery road begins. I also started Arimidex today. Had a bone density scan on Monday and it was excellent ! At least some piece of me is in good nick !

    The effecets of chemo are gradually subsiding. I can taste again, that's a bonus in time for xmas. Tummy still hasn't settled back to normal but I guess that'll be slower. I'm feeling ok, ready for whatever radiation throws at me.

    Watching every day to see if my hair is growing ! Haven't quite started to measure individual hairs but who knows :P

    It's a bit of a bummer how your whole life revolves around doc's appts and tests and scans - takes over everything. Impossible to forget it even for a minute.

    My husband lost a cousin the other night to an aggressive lung cancer. She only knew for about 2 months. He's quite subdued, I think he's more worried for me now than he was before.

    I am NOT going to recur - I say that to myself as often as I can. It has to work doesn't it ?

    Keep on keeping on girls

    magicmum

  • magicmum
    magicmum Member Posts: 285
    edited March 2015

    It's SO much easier than chemo. Seems to take only a few seconds. And the therapist yesterday told me that I shouldn't have too much trouble with my skin as it's smooth and there are no folds where the beams go. That's good.

    I think Arimidex is keeping my tummy gurgling though. It hasn't really settled since chemo finished and I read that Arimidex can cause upsets. Great - 5 years before it's ordinary again. Oh well, it could be worse.

    I have started to wrry again about metastises. Silly I know, but I'm really fretting about how I will know whether I have any. I spose it;s because a few poeple I know have died recently after a very short time and I'm just anxious.

    How do you deal with that ? How do you know when a pain is just a pain, or when should you go and ask about it ? I do NOT want to spend my life having checkups and worrying myself for no reason, but I don't want to  find that something I thought was nothing turns about to be serious and too late. Oh crap, why isn't this getting easier.

    magicmum